Strand, London, WC2A 2LL |
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B e f o r e :
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The Mental Health Trust The Acute Trust & The Council |
Claimants |
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- and - |
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DD (By her litigation friend, the Official Solicitor) BC |
Respondents |
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Michael Horne (instructed by the Official Solicitor) for the First Respondent (DD)
BC (not present nor represented)
Hearing dates: 26 & 27 January 2015
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Crown Copyright ©
The Honourable Mr Justice Cobb :
1 Summary of Judgment | 1-13 |
2 Introduction & Summary of Previous Judgments | 14-19 |
3 The Applicants and their duties towards DD | 20-32 |
4 Dramatis Personae | 33 |
5 Background obstetric and contraceptive history | 34-38 |
6 Recent history (since [2014] EWCOP 13) | 39-47 |
Capacity: section 1, 2 and 3 MCA 2005 | |
7 General Comments Diagnostic test |
48-52 53-58 |
8 Capacity to litigate | 59-63 |
9 Capacity to make decisions in relation to contraception and sterilisation | |
Relevant Information on which to make a decision; Section 3(1)(a): 'unable to understand'? Section 3(1)(c): 'unable to use or weigh'? Section 1(3): have all "practicable steps" been taken to help? Section 4(3): Likelihood of regaining capacity Conclusion on capacity to make decisions in relation to contraception and sterilisation |
64-66 67-69 70-75 76-77 78 79-80 |
Best interests: section 1(5) MCA 2005 | |
10 General legal principles | 81-86 |
11 The risks of future pregnancies | 87-95 |
12 Less restrictive options: section 1(6) MCA 2005 | 96-98 |
13 Are separate Article 12 ECHR rights engaged in this case? | 99-102 |
14 Sterilisation and contraception options; the 'Balance Sheet' | 103-114 |
15 DD's wishes and feelings: section 4(6) MCA 2005 | 115-122 |
16 BC's wishes and feelings: section 4(7) MCA 2005 | 123-128 |
17 Conclusion on best interests | 129-131 |
18 Giving effect to the order: section 16(5) MCA 2005: If necessary, forcible entry into the home | 132-137 |
19 Date of intervention: should DD and BC know? | 138-139 |
20 Orders | 140-141 |
Dramatis Personae (attached) |
Summary of Judgment
i) Ante-natal care and pre-birth scanning ([2014] EWCOP 8);ii) The manner and location of delivery of the baby (caesarean section in hospital) ([2014] EWCOP 11);
iii) The administration of short-term contraception at delivery, and education about future contraception ([2014] EWCOP 13);
iv) The administration of short-term contraception post-delivery ([2014] EWCOP 44);
v) The further administration of short-term contraception pending this hearing (December 2014).
i) DD's capacity to litigate in these proceedings;ii) DD's capacity to consider, and make decisions concerning, long-term contraception and/or therapeutic sterilisation, and
iii) If lacking the relevant capacity, to determine whether it is in DD's best interests to receive long-term contraception or sterilisation, and if so, which specific therapeutic intervention.
I am further asked to consider (if I were to conclude that such were in DD's best interests) how any such medical procedure can be achieved, given DD's increasingly determined resistance to professional and/or medical advice and support. DD's current opposition to professional intervention in her life causes the Applicants to apply, once again (as they have at previous hearings), for authorisation (in each case for as short a time as is necessary, and only if necessary) to deprive DD of her liberty, to use restraint, and further to obtain permission to intrude into the privacy and sanctity of her home to remove DD to hospital for the treatment proposed.
i) The Court of Protection will intervene in the life of a person who lacks capacity only where it is demonstrated that it is in the best interests of the vulnerable person to do so. Each case will be considered on its own facts;ii) Those who lack capacity have the same human rights as everyone else, and are entitled to enjoy those rights without discrimination on account of their lack of capacity. The ECHR nonetheless recognises that it may be justifiable to interfere in their private lives, and even deprive them of their liberty, in certain circumstances;
and
iii) This is, in my judgment, an exceptional case on its facts; the Applicants seek a range of relief which is likely to arise only in the most extreme circumstances.
"The risk to [DD] of a future pregnancy, especially if concealed, is highly likely to lead to her death."
i) Place dangerously unsafe pressure on DD's uterine wall which would be likely to rupture in child-birth (if not during the pregnancy) causing the almost certain death of the infant, and significant intra-abdominal haemorrhaging of DD which would materially threaten her own life. The uterine wall was noted during the last caesarean section procedure performed in July 2014 (pursuant to my earlier order) to be "tissue-paper thin" with the baby visible through it; this was a most unusual finding, according to Consultant Obstetrician & Gynaecologist A (Mr. A);ii) Pose a significant risk of either placenta accreta or placenta praevia; placenta accreta is a condition in which the placenta is morbidly attached to the uterine lining having invaded into the deeper muscle. Uterine scarring due to caesarean sections predisposes a woman to this condition. If DD were to suffer placenta accreta, it would inevitably lead to massive haemorrhage at the point of delivery of her infant. Placenta praevia involves a low-lying placenta located in the lower segment of the uterine cavity. If DD were to suffer from this condition, as her cervix dilated in labour she would inevitably experience massive haemorrhage such that safe delivery of the baby could not be achieved and her own chances of survival would be compromised.
Moreover, I am conscious that further pregnancy would inevitably raise the risk of DD suffering a repeat of an intra-cerebral embolism causing her protracted fitting (status epilepticus); this is a condition which she suffered during (and was probably a consequence of) her fourth pregnancy. Worryingly, in recent conversations with medical professionals, DD has denied ever suffering this seizure, and has been unable to accept the risk of it recurring.
i) That DD has a history of concealing, or attempting to conceal, her pregnancies from professionals; previous pregnancies (certainly the third, fourth and fifth) have only been discovered after the critical 24-week limit during which a termination of pregnancy can normally be considered;ii) If DD were to fall pregnant again, she would almost certainly want to (and no doubt take steps to try to) deliver her baby at home, her declared intention in relation to all her recent pregnancies. She actually achieved this in relation to her third and fifth babies, though in grossly unhygienic circumstances;
iii) DD and BC have been, and are, fiercely resistant to medical and professional support. My review of the events of the last seven months (since the involvement of the Court of Protection) reveals very limited levels of co-operation from either; the picture is characterised by opposition to and rejection of help. Illustrative of professional clinical concern in this regard, which I unreservedly share, is the description of events in 2011 when BC failed to take any action when DD suffered her intra-cerebral embolism and began fitting in their home. Only by good fortune did a social worker visit the couple and encounter this grave situation; emergency services were instantly called, and DD was admitted urgently to hospital, where she was placed in an induced coma to control her seizures. BC was unable to say how long DD had been fitting before the social worker had arrived. The baby (which was suffering foetal bradycardia, slowing of the heart and consequent distress, during DD's fitting) was delivered by caesarean section. Following this birth DD suffered significant post-partum haemorrhage, and was hospitalised for nine days.
i) the insertion of a 'coil', an Intra-Uterine Device ("IUD") ('medicated' with copper) / Intra-Uterine Systems ("IUS") ('medicated' with progestogen hormone) orii) laporoscopic sterilisation.
Given that an IUD/IUS has a low failure rate as a long-term contraceptive, and is generally effective to prevent pregnancy (as indeed I discussed in A Local Authority v K [2013] EWHC 242 (COP), [2014] 1 FCR 209), it will be a rare case, in my view, in which the more radical alternative of sterilisation will be found to be in the best interests of an incapacitous woman of child-bearing age. This is particularly so given the court's duty to have regard, when considering the best interests of the vulnerable woman, to the less restrictive option under the 2005 Act (referred to in [6] above).
i) The risk of pregnancy to DD carries such high stakes; DD could pay for pregnancy with her life. In this unusual circumstance, I have been driven to adopt the statistically most effective form of precluding further pregnancy;ii) Were a long-term IUD/IUS to be inserted but expelled (or removed), there is every reason to believe that DD would not disclose this to medical or other professionals, thereby leaving her unprotected from the risk of further pregnancy;
iii) Repeat administration of long-term contraception, whether by repeat Depo-Provera injections (her current three-monthly regime of contraception), or repeat insertion of the IUD/IUS, will inevitably cause further professional intrusion into DD's private life, which I am satisfied she finds utterly objectionable.
Introduction & Summary of Previous Judgments
i) [2014] EWCOP 8 (Pauffley J) (18 June 2014); In this judgment, the court explained its authorisation for the Applicants to arrange a placental localisation scan and an ante-natal assessment, and to take such necessary and proportionate steps so as to give effect to the 'best interests' declaration to include forced entry, restraint and sedation;ii) [2014] EWCOP 11 (Cobb J) (4 July 2014): I authorised the Applicants to arrange for DD to be conveyed to the Second Applicant Trust's Hospital and for the medical, nursing and midwifery practitioners attending upon her to carry out a planned caesarean section procedure and all necessary ancillary care and to provide DD with all necessary ancillary pre-operative care and treatment (to include the administration of prophylactic steroids) and post-operative care and treatment, and to take such necessary and proportionate steps so as to give effect to the 'best interests' declaration to include forced entry into her home, restraint and if necessary sedation; the court at that hearing refused the Applicant's application for authority to enter DD's home forcibly prior to the delivery of her expected baby for the purposes of conveying her to a clinic to provide education about contraception to her;
iii) [2014] EWCOP 13 (Cobb J) (15 July 2014): Before the baby was born, I further considered whether DD had the capacity to make decisions about contraception, and on my finding that she did not I adjudicated upon the Applicant's plan to facilitate education for her in relation to contraception once the baby was born. I also authorised future short-term contraception (Depo-Provera) at the point of delivery in her best interests.
iv) [2014] EWCOP 44 (Cobb J) (2 September 2014): I authorised a repeat administration of the short-term Depo-Provera injection. This judgment was delivered at a hearing which had been set up in order to consider the issues of long-term contraception / sterilisation; however, at that time there were small glimmers of hope that DD may be willing to co-operate with the professionals. I recorded at that time ([6]) that:
"Although she has not maintained a consistent position on her future childbearing intentions, it is a source of some reassurance to me, and no doubt a source of some optimism on the part of the professionals, that she is at least able to and willing to have that sort of discussion about contraception and sterilisation".It was hoped that with time, further "practicable steps" (section 1(3) 2005 Act) could be taken to enable DD to make a decision about contraception and sterilisation. I authorised the Applicants to take steps to effect the contraception in the event that co-operation waned.v) For completeness, I add that at a further hearing in December 2014, and in the absence of sustained co-operation from DD, I authorised the administration of a further short-term Depo-Provera contraceptive injection and gave case management directions in order to set up this hearing.
The Applicants and their duties towards DD
"The law regulating the protection from abuse of vulnerable adults in England and Wales derives from a complex mishmash of legislation, guidance and ad hoc court interventions."
i) 'Community care' statutes including, but not limited to, National Assistance Act 1948 (local authorities under a duty to "make arrangements for promoting the welfare of persons": section 29), the Chronically Sick and Disabled Persons Act 1970 (section 2), Care Standards Act 2000, Safeguarding Vulnerable Groups Act 2006, Disabled Persons (Services, Consultation and Representation) Act 1986, and importantly section 47 of the NHS and Community Care Act 1990;ii) The common law (see Re Z (Local Authority Duty) [2004] EWHC 2817 (Fam), [2005] 1 FLR 740 at [19]) (see [25] below);
iii) The Human Rights Act 1998, and
iv) The 2005 Act.
"In my judgment in a case such as this the local authority incurred the following duties:
i) To investigate the position of a vulnerable adult to consider what was her true position and intention;
ii) To consider whether she was legally competent to make and carry out her decision and intention;
iii) To consider whether any other (and if so, what) influence may be operating on her position and intention and to ensure that she has all relevant information and knows all available options;
iv) To consider whether she was legally competent to make and carry out her decision and intention;
v) To consider whether to invoke the inherent jurisdiction of the High Court so that the question of competence could be judicially investigated and determined;
vi) In the event of the adult not being competent, to provide all such assistance as may be reasonably required both to determine and give effect to her best interests;
vii) In the event of the adult being competent to allow her in any lawful way to give effect to her decision although that should not preclude the giving of advice or assistance in accordance with what are perceived to be her best interests;
viii) Where there are reasonable grounds to suspect that the commission of a criminal offence may be involved, to draw that to the attention of the police;
ix) In very exceptional circumstances, to invoke the jurisdiction of the court under Section 222 of the [Local Government Act] 1972 "
"who is or may be in need of community care services by reason of mental or other disability, age or illness; and who is or may be unable to take care of him or herself, or unable to protect him or herself against significant harm " (para.2.3)
The Guidance, it seems to me, is targeted at protecting vulnerable people from 'abuse', even if that arises from an act of neglect or an omission to act, and from which the authority has a duty to protect the vulnerable person. Although the definition of abuse by neglect may be said to cover DD's situation (viz:
"Neglect and acts of omission, including ignoring medical or physical care needs, failure to provide access to appropriate health, social care or educational services, the withholding of the necessities of life, such as medication , adequate nutrition and heating" (para.2.7)),
this does not arise, in the instant case, as a result of abuse by a third party.
" that the existence of a "real and immediate risk" to life is a necessary but not sufficient condition for the existence of the duty".
The Supreme Court in that case discussed the 'operational duty' under Article 2 existing in the following circumstances:
i) Where there has been an assumption of responsibility by the state for the individual's welfare and safety (including by the exercise of control) (i.e. in prison, in a psychiatric hospital, in an immigration detention centre or otherwise) (Rabone [22]);ii) In circumstances of sufficient vulnerability, the ECtHR has been prepared to find a breach of the operational duty even where there has been no assumption of control by the state, such as where a local authority fails to exercise its powers to protect a child who to its knowledge is at risk of abuse as in Z v United Kingdom Application No 29392/95, [2001] ECHR 333 (10 May 2001) (Rabone [23]);
iii) Where an 'exceptional' risk arises, not an "ordinary" risk of the kind that individuals in the relevant category should reasonably be expected to take (in which no article 2 duty arises) (Rabone [24]).
"The jurisprudence of the operational duty is young. Its boundaries are still being explored by the ECtHR as new circumstances are presented to it for consideration. But it seems to me that the court has been tending to expand the categories of circumstances in which the operational duty will be found to exist."
Dramatis Personae
Background obstetric and contraceptive history
"DD's medical notes (more fully available since the last hearing, and discussed by both Dr. F and Dr. Rowlands) reveal that during her childhood and adult life she has periodically received advice about contraception, and has been prescribed, and has used, different forms of contraception. The evidence appears to show that the contraceptive pill was first prescribed for DD when she was 12 years old. Her first Depo-Provera injection was in March 2000 but she was unwilling to use it again after 2 injections because of heavy bleeding, and in September 2000 she requested to go back on the oral contraceptive pill. There is a note of a discussion between DD and her GP in March 2002 at which DD requested contraception the GP discussed a range of contraceptives including the pill, coil and implants, and DD agreed to an implant. The GP inserted the implant later that month although it was in place only briefly as, in fact at that time it transpired, DD was pregnant with Child 1; accordingly, the implant was removed. Following Child 1's birth, a further implant was inserted. In September 2003, the family planning clinic prescribed the oral contraceptive pill in addition to the existing implant. In December 2003, DD attended her GP requesting sterilisation (this was not the first time she had made this request). A specific referral for sterilisation was made in January 2005. When seen in hospital two months later, that request was refused as her motives were felt to be inconsistent and therefore unreliable. In October 2005, DD attended the family planning clinic and underwent the re-insertion of a contraceptive implant. This was removed in 2008, and at that time she indicated that she and her partner would use condoms. Later in 2008 she sought advice on becoming pregnant."
i) When DD was seen in 2002, she expressed the view that she did not want to be fitted with an intra-uterine device (IUD/IUS), although no reasons were recorded for that view;ii) On 18 February 2003, at a GP appointment, DD expressed the wish to be sterilised;
iii) On 3 September 2003, at a follow-up appointment, DD repeated her wish to be sterilised, although her partner did not agree;
iv) On 2 December 2003, at a further follow-up appointment, DD again expressed a wish to be sterilised;
v) On 18 May 2004, DD re-attended the clinic. Again she expressed her wish to be sterilised, stating that she and her partner were determined not to have any more children; she was referred for a consultation, although it was noted that she was then only 26 years old;
vi) On 13 January 2005, DD was reviewed in clinic; she expressed the view that she did not want an IUD/IUS;
vii) On 24 January 2005, she was seen by a Consultant Gynaecologist (on the referral relating to sterilisation); the consultant rejected her request for sterilisation on the basis of inconsistency in her reasoning;
viii) By 2008, DD indicated to the clinic that she was no longer proposing to use contraception as she wished to conceive; she was then in a new relationship with BC;
ix) There is little indication from the notes that DD has used contraception at any stage during her relationship with BC.
i) Twenty-five unannounced visits by a range of personnel from social services were made to DD's home, none of which resulted in DD or BC allowing access to their property or engaging with statutory services in a meaningful way. As a result, the Applicants were unable to confirm the position in relation to any pregnancy;ii) The Applicants then made a number of visits to DD's property attempting to engage her in midwifery care, all without success. For instance, DD did not allow access on 16 April, 15 May, or 22 May. In addition, she failed to attend antenatal appointments booked at the hospital on 23 April and 21 May 2014.
Recent history since [2014] EWCOP 13
"During [DD]'s caesarean section it was noted that the lower part of her uterus, below the previous caesarean incisions, was very thin. So much so it looked like paper, with her baby's head visible through the thin muscle layer which is usually much thicker.
Capacity: section 1, 2 and 3 MCA 2005
i) Ability to understand the information relevant to the decision;ii) Ability to retain that information;
iii) Ability to use or weigh that information as part of the process of making the decision, and
iv) Ability to communicate her decision.
i) It is necessary to proceed to determine capacity on the evidence as it presents at this stage, in respect of this current decision: see, inter alia [4.4] Mental Capacity Act Code of Practice;ii) Assessment of capacity is a decision-specific determination: York City Council v C [2013] EWCA Civ 478; [2014] Fam 10
i) DD has mild to borderline learning difficulties; she has a full scale IQ between 67 and 75;ii) DD has an Autistic Spectrum Disorder
" Her Autism is characterised by an extremely rigid style of thinking with difficulty in cognitive flexibility, a repetitive and stereotyped style of speech, abnormalities in non verbal communication (eye contact and facial expressions), difficulties in social interactions and forming relationships and a restrictive interest pattern. Her Autism significantly impairs her ability to think flexibly and adapt her beliefs)"[DD] presents with a mental disorder, namely Autism Spectrum disorder and borderline learning disabilities. [DD] was unable to demonstrate the ability to use information regarding antenatal care and the safe delivery of her baby due to her lack of cognitive flexibility and rigid thinking style, both of which are caused by her mental disorder. The fixed belief that she can have natural labours made her incapable of weighing any information regarding the potential risks that she might face during her pregnancy. On the balance of probabilities she lacks capacity as she is unable to weigh up information regarding her need for obstetric care and the risks associated with not engaging in this care Her inability to weigh information regarding these decisions is unlikely to be susceptible to improvement through input from professionals." per Dr. F (see [2014] EWCOP 11 [52]);
Insofar as their opinions differed at all, I preferred the evidence of Dr. F (see [2014] EWCOP 11 [78]
" lacks the essential characteristic of discrimination which only comes when the relevant information is evaluated, and weighed" (see [2014] EWCOP 11 [86]).
"DD demonstrates marked black or white thinking regarding the different types of contraception available. She is unable to hold both positive and negative aspects of each type of contraception in mind, which is an essential component of weighing information to reach decisions".
He goes on to opine that this is caused by her Autistic Spectrum Disorder, a condition which is characterised in DD by an extremely rigid style of thinking with difficulty in cognitive flexibility, repetitive and stereotyped style of speech, abnormalities with non-verbal communication (eye contacts and facial expressions), difficulties in social interactions and forming relationships, and a restrictive interest pattern. It is accepted that the quality and intensity of some of these features will be more apparent on clinical examination than they will to experts considering matters only on the papers.
Capacity to litigate:
Capacity to make decisions in relation to contraception and sterilisation.
i) Progesterone pill;ii) Condom (male and female);
iii) Depo-Provera injection;
iv) Sub-dermal implant;
v) Intra-uterine (hormonal) coil;
vi) Non-hormonal (copper) coil;
vii) Sterilisation.
i) the risk of a thrombo-embolic disease during any future pregnancy (as mentioned above, DD suffered a thrombotic embolism during her fourth pregnancy);ii) the risk of delivering a pre-term infant (her fourth child was born at 29 weeks and suffered breathing difficulties);
iii) the impact on DD's mental and emotional health of any further pregnancy (DD has suffered from a delusional disorder following her second and third pregnancies);
iv) the additional risks of a home birth for DD (which would always be likely to be her preferred mode of delivery);
v) the risk of placenta accreta; as mentioned above ([9](ii)), given that DD has undergone four caesarean sections, this would be particularly dangerous for DD, given the significant risk of extensive haemorrhaging at the point of removal; if bleeding cannot be stemmed DD faces the prospect of hysterectomy;
vi) that she faces considerable (and, with each pregnancy, increasing) risks to her life through the delivery of any child. Vaginal birth after caesarean carries considerable risks associated with rupture of the uterus; this is particularly acute given that the uterine wall is now seen to be 'tissue thin'; caesarean section carries risk of operative failure, adhesions or bowel or bladder injury, and the general risks associated with general anaesthetic.
"[DD] expressed the belief that there was no father to her baby she stated that she took a tablet from a health food shop which had affected her hormones and this had led to her pregnancy" (Dr. F)
"What [DD] is unable to consider is the possibility that there is an overriding medical reason for contraception in terms of her own physical health. In her interviews she either simply denies this is a possibility or behaves in ways that make it at best unclear whether she understands that there could be severe consequences for her health. Overall, therefore I do not believe that [DD] has the capacity to understand or to weigh the relevant information that would allow her to decide on the need for contraception in her case."
"[DD] has demonstrated an inability to weigh information regarding all forms of contraception. In relation to sterilisation, she demonstrates black and white thinking and jumped from one extreme position to another without weighing the relevant information. She is unable to view the various forms of contraception 'in the round' being unable to acknowledge and weigh positive and negative aspects of the various choices. She was also unable to weigh information regarding future risks of stroke and the risk of premature births. [DD]'s black or white thinking is caused by her ASD and her rigid thinking relating to risks in future pregnancies is also caused by the rigid thinking caused by her ASD"
And later
"[DD] is unable to hold both positive and negative aspects of each contraception in mind, which is an essential component of weighing information to reach decisions."
Dr. F confirmed in his most recent (January 2015) report that he remains of the same opinion.
"[DD] engaged well with the social story although asked afterwards if it was a real person. She chose the sterilisation option for Helen giving the following reasons: only one operation would be needed for the sterilisation versus repeat procedures for the coil; she believed that it would be 'discomforting' to have something inside her. She did not question the risks which Helen faced from future pregnancies "
I discuss this 'social story' again below, relevant to DD's wishes and feelings (see [120(ii)] below).
Best interests: section 1(5) MCA 2005
General legal principles:
"[The Grand Chamber] agrees [with the Chamber] since 'private life', which is a broad term, encompassing, inter alia, aspects of an individual's physical and social identity including the right to personal autonomy, personal development and to establish and develop relationships with other human being and the outside world (Pretty v UK [2002] ECHR 2346/02 at [61]) incorporates the right to respect for both the decisions to become and not to become a parent."
"Any decision made or endorsed by the Court in a case such as this must, by statute, be taken in the best interests of K (section 1(5) MCA 2005), with regard to the fact that the decision should be the "least restrictive" of K's rights and freedom of action (section 1(6)). In reaching a conclusion on her best interests, I have had regard to the provisions of section 4 MCA 2005, and to "all the relevant circumstances" (section 4(2)). Those circumstances include all "medical, emotional and all other welfare issues" concerning K (borrowing the language of the pre-MCA 2005 Court of Appeal decisions of Re MB (Medical Treatment) [1997] 2 FLR 426 at 429, and R-B v Official Solicitor: Re A (Medical Sterilisation) (1999) 53 BMLR 66). In this respect, I have of course had regard to the method of achieving the sterilisation (involving the necessary hospitalisation of K), the likely permanence of the procedure, and the interference with K's physical integrity".
i) The court is not tied to any clinical assessment of what is in P's best interests and should reach its own conclusion on the evidence before it Trust A and Trust B v H (An Adult Patient) [2006] EWHC 1230. Hence, in the instant case, although there is broad consensus between the represented parties as to the orders I should make, I have considered it appropriate to review and discuss the evidence in this full judgment;ii) The weight to be attached to the various factors will, inevitably, differ depending upon the individual circumstances of the particular case. A feature or factor which in one case may carry great, possibly even preponderant, weight may in another, superficially similar case, carry much less, or even very little, weight. Re M. ITW and Z and Others [2009] EWHC 2525 (Fam); this is of particular relevance in the instant case, as the risks to DD's life and well-being are specific and highly unusual;
iii) There may, in the particular case, be one or more features or factors which, as Thorpe LJ has frequently put it, are of "magnetic importance" in influencing or even determining the outcome: Re M. ITW and Z and Others [2009] EWHC 2525 (Fam);
iv) Any benefit of treatment has to be balanced and considered in the light of any additional suffering or detriment the treatment option would entail Re A (Male Sterilisation) [2000] 1 FLR 549 at 560.
"In considering the scope of best interests, it seems to us that they have to be treated on similar principles to the welfare of a child since the court and the doctors are concerned with a person unable to make the necessary decision for himself, see Re F (Mental Patient: Sterilisation) [1990] 2 AC 1. In coming to such a decision relevant information about the patient`s circumstances and background should where possible and if time permits be made available to the judge". [36]
The risks of future pregnancies.
i) Uterine rupture;and
ii) Placenta accreta, or Placenta praevia;
There is additionally, the risk of:
iii) Thrombotic event in pregnancy.
"In future pregnancies this [i.e. the thinness of the lower part of her uterus, below the previous caesarean incisions] is likely to get worse with a significant chance of scar or lower uterine segment giving way either during the pregnancy or particularly at the time of labour/delivery. Uterine contractions would stretch this area further with the high risk of it coming apart. This would result in her baby going into her abdomen and dying and then there would be significant intra-abdominal bleeding which would be life threatening for [DD]. If she had another concealed pregnancy and this happened at home the result would most likely be the death of [DD]. It is difficult to quantify this risk; however, my clinical view is that if she went into labour, there would be a 50% risk of her uterus rupturing." (emphasis by underlining added).
Mr. Griffiths puts the risk of this at "at least 10-20%, quite possibly much higher".
i) is not predictable;and
ii) would be life-threatening it were to occur; it would almost certainly be fatal for DD and the infant if a vaginal birth were attempted unsupervised outside of a maternity unit.
"Accordingly the risks (with an attempted vaginal birth unless there had been appropriate antenatal care) of either placenta accreta, placenta praevia or uterine rupture in labour and the consequences therefore would be at least 30%.." (emphasis in the original).
Mr Griffiths explained that the 30% risk was the sum of 18.5% (representing the number of cases from the 'Cook' study where there was a finding of placenta accreta/praevia/both) and 10% (being Mr. Griffiths' lowest "crude" estimate of the risk of uterine rupture: as he put it: "Crudely I would suggest the risk of uterine rupture would be at least 10-20%, quite possibly much higher."). He added, significantly:
"The occurrence of either of these [placenta accreta, praevia, or uterine rupture] in an unsupervised birth would almost certainly be fatal to the mother".
Less restrictive options: section 1(6) MCA 2005
Are separate Article 12 ECHR rights engaged in this case?
Sterilisation and contraception options: the 'Balance Sheet'
i) For DD, it would require insertion under local anaesthetic, which she would be likely to resist;ii) The previous insertion of a sub-dermal implant caused DD unacceptably high levels of bleeding and mood swings, which she found difficult; both of these are likely to occur;
iii) The implant would require to be medically checked at regular intervals (there is a real risk which DD would resist co-operation with check-ups);
iv) The implant is removable; DD is said to have high pain thresholds, and would be capable of removing it herself (without medical supervision) or having it removed; DD would be unlikely to report its removal, exposing the risk of future pregnancy.
i) IUD is effective immediately; IUS effective within 7 days;ii) That this form of contraception is less restrictive than sterilisation, in the sense that it is more easily reversible, and once removed normal fertility resumes immediately;
iii) The failure rate at 5 years for a copper IUD is less than 2%, and of a IUS Mirena less than 1%;
iv) A woman's menstrual cycle is not affected (this is likely to be re-assuring to DD);
v) Once fitted, it does not require DD's ongoing co-operation/reliability;
vi) An IUD (as opposed to IUS) does not contain hormones, therefore DD would not experience any of the hormonal side effects which have caused her distress in the past.
i) It is invasive;ii) There would be likely to be short term distress at being removed from her home, possibly forcibly, for the procedure under general anaesthetic; (this arises in relation to sterilisation too, see below);
iii) There may be long term distress at her loss of child-bearing capacity;
iv) A further procedure will be a required in 5 (IUS) or 10 (IUD) years time to replace the coil; this would require further general anaesthetic; a yet further procedure would probably be required when the coil is no longer required, in order to avoid the risk of infection;
v) There is a risk that an IUD/IUS would be removed (either by herself or at a clinic which does not know her background history);
vi) There is a risk that the IUD/IUS could be spontaneously expelled; the guidelines produced by the National Collaborating Centre for Women's and Children's Health (Long-acting reversible contraception: NICE guideline. London: RCOG. 2005), estimate that risk is about 5% over 5 years; the evidence of the experts before me suggest a higher figure of 7-8%. Dr Rowlands reports that expulsion is most common in the first year of use, particularly within the first 3 months. The risk of expulsion is highly significant in my judgment; unlike a compliant woman who wants to use the coil, DD is most unlikely to report expulsion;
vii) IUDs and an IUSs have a range of side-effects. Women may suffer from pain and unacceptable bleeding (heavy menstruation with an IUD, or absent bleeding for the IUS);
viii) With the IUS, it is possible to suffer some hormonal side effects from systemic absorption of progestogen such as breast tenderness, mood changes, acne and hair loss, but these diminish over time. More rarely, women develop ovarian cysts which can cause abdominal pain;
ix) Any alternative (reversible) forms of contraception would be markedly less reliable than sterilisation in preventing further pregnancy;
x) Dr Denman considers that the insertion of an IUD/IUS is more likely to cause DD distress because one of her psychological processes involves a visceral appreciation of her body contents. She considers that it is "fairly likely" that DD will imagine the intra-uterine device as a massive foreign body inside herself, worry that it is moving inside her or attribute any pain or symptom to its presence;
xi) Dr. Denman is concerned about potential longer-term psychological implications of insertion of a coil she further considers (against the background of her alleged history of abuse by her father/brother and her perception of the intrusion by statutory services in her life) that DD will suffer an exacerbation of feelings of being violated, controlled and intruded on. She considers that these feelings will be stronger than with sterilisation because of the sexual symbolism of the act of inserting the intra-uterine device, but also more simply because the device can be removed by those who control her, but they refuse to do so.
xii) DD has throughout articulated her firm opposition to being fitted with a coil and the thought of something inside her ("I don't want something up me"); this elevates the risk in my judgment that she would take steps to remove it or have it removed;
xiii) Dr. F considers it likely that DD will remain distressed until she finds a method of removing the IUD/IUS.
i) This is the outcome with the greatest prospect of preventing further pregnancy; DD's fertility carries significantly more disbenefits to her than benefits;ii) It is a single, relatively simple, and definitive surgical procedure;
iii) No medical follow-up would be required (either in the short-term or long-term). This most fully gives effect to DD's long held, and consistent, wish and feeling to be treated as normal as possible and to be left alone without interferences in her private life. She finds the involvement of agencies intolerable. Mr A said: "Following a sterilisation procedure, [DD] would not need ongoing contraceptive appointments or reviews, nor would be monitored in respect of future pregnancies; she would return to a much more independent lifestyle";
iv) There is a "considerable" risk that even if DD were to become pregnant again, an elective caesarean section would necessitate emergency hysterectomy to save her life; this would have the effect of removing her fertility at that stage in any event.
v) Menstrual periods are unaffected by the sterilisation procedure;
vi) Dr. Griffiths' view that "[i]f anything, sterilisation has a positive effect on female sexual function";
vii) There failure of a sterilisation procedure is estimated to be 2-3 in 1,000; this risk includes surgeon error in failing to occlude the tubes effectively.
i) It is invasive;ii) There would be likely to be short term distress at being removed from her home, possibly forcibly, for the procedure under general anaesthetic; (this arises in relation to insertion of coil too, see above);
iii) There may be long term distress at her loss of child-bearing capacity;
iv) Dr. Denman is concerned about potential longer-term psychological implications of sterilisation that DD may also experience the ligation of her fallopian tubes as creating a blockage, imagine babies or eggs trying to get out or worry that more has been cut out of her than people are being honest about. Dr. Denman and Dr. L are concerned that sterilisation might force DD to grieve for the losses of her children which she has perhaps been avoiding by becoming pregnant;
v) There are potential complications of laparoscopic clip sterilisation; these are identified in the recent publication Clinical Effectiveness Unit. Male and female sterilisation. London: Faculty of Sexual and Reproductive Healthcare; 2014. They include damage to bowel, bladder or blood vessels which would necessitate opening the abdomen (laparotomy). These complications occur at a rate of about 2 in 1000; the risk of death associated with laparoscopy is about 1 in 12,000. Mr A and Mr Griffiths do not give precise figures for the complications. Mr Griffiths describes these risks as "minimal"; these risks are mitigated if the procedure is undertaken by an experienced clinician, which Mr. A undoubtedly is;
vi) Sterilisation brings with it a risk of long-term chronic pain of around 1:1,000;
vii) Some post-operative pain and discomfort is possible; long term pain is said to be "very rare" (Mr. A).
i) Future pregnancy poses such a high risk to DD's life that the option which most effectively reduces the prospects of this should be preferred; this is one of those exceptional cases where medical necessity justifies the considerable interference;ii) Sterilisation is the treatment which most closely coincides with DD's dominant wishes and feelings to be left alone to enjoy a 'normal' life free from intrusion by health and social services.
DD's wishes and feelings: section 4(6) MCA 2005
"The purpose of the best interests test is to consider matters from the patient's point of view. That is not to say that his wishes must prevail, any more than those of a fully capable patient must prevail. We cannot always have what we want. Nor will it always be possible to ascertain what an incapable patient's wishes are. But in so far as it is possible to ascertain the patient's wishes and feelings, his beliefs and values or the things which were important to him, it is those which should be taken into account because they are a component in making the choice which is right for him as an individual human being." (emphasis by underlining added).
i) 16 July 2014: (in hospital, the day before Child 6's birth) she said that she had never asked for sterilisation in the past (this is factually inaccurate) and did not want sterilisation now. She said that sterilisation would leave her feeling "empty and unhappy" "I want all my organs inside me". It was explained to her that no organs would be removed. She was apparently opposed to this procedure, but showed some interest in the diagrams in the leaflets explaining it;ii) 18 July 2014 (first meeting: 13:00hs): at this meeting it was apparent that she thought that sterilisation involved the removal of organs; she seemed to be able to understand that sterilisation involved applying clips to the fallopian tubes which apparently "made her feel 'urgh'"; she nonetheless engaged with the 'social story' involving 'Helen' (see [77]) and chose sterilisation as the best option for her.
I am struck by DD's response to the social story exercise in which DD chose sterilisation for Helen on facts which, of course, related to her situation. However, I am not able to conclude on the balance of probabilities that this demonstrates a clear and determinative wish for sterilisation over and above any other form of birth-control;iii) 18 July 2014 (second meeting: 15:50hs): at this meeting DD requested to be sterilised, and immediately so. She became tearful when she was told that this could not happen straight away (the marked change in approach since the meeting on the 16 July was consistent with her 'black and white' thinking referred to at [74] above and does not in the view of Dr. F demonstrate adequate weighing of the relevant information); she told BC in this meeting that she was only agreeing sterilisation "to get the idiots off my back"
iv) 22 July: DD requested sterilisation when she met with Midwife C at a home visit;
v) 23 July: DD refused to discuss sterilisation at an unannounced home visit with Nurse I;
vi) 27 July: DD was expressing a preference for a Depo-Provera injection instead of sterilisation. She telephoned the obstetric unit at the clinic and left a message for Midwife C to that effect;
vii) 29 July: DD changed her mind when she met with Midwife C again: because " said she had had enough of all the letters and knocking on the door as it was "doing her head in" and she had decide to have the Depo-Provera injection";
viii) 30 July: DD registered with the GP surgery, and requested a Depo-Provera injection that day;
ix) As discussed elsewhere in this judgment, although DD was physically compliant with the Depo-Provera injection on 18 September 2014, she evidenced a clear intention from 17 November 2014 that she did not want another injection, a view which culminated in the need to forcibly administer the last injection on 14 December. At a visit to the GP in early January 2015 she indicated that she did not want any further injections.
"Her wishes regarding contraception have changed dramatically, initially refusing to consider any form of contraception (16 July) to pleading for an immediate sterilisation and being strongly against hormonal contraceptives (18th July) to the current position. Her current wishes do not appear to be deeply held preferences. I am concerned that once she feels people are no longer closely monitoring her, she will disengage and stop having the 12 weekly injections"
BC's wishes and feelings: section 4(7) MCA 2005
i) Psychometric (Wechsler Adult Intelligence Scale 3rd Edition [WAIS III]) demonstrated that BC had a slightly higher Performance IQ (i.e. ability to understand, reason with and use non-verbal information) of 70, compared with his verbal IQ (his understanding and use of verbal information). His full scale IQ was 62 points. This fell within the 'Significantly Impaired' Range;ii) BC's Working Memory impairments were such that when there were competing demands he would struggle with memory more than other people;
iii) Some aspects of BC's communication style were consistent with an autistic spectrum disorder;
iv) Medical and other records have suggested that BC has Asperger's Syndrome.
"Indeed, both [BC] and [DD] appear to feed into each others personality features, and exacerbate, for example, beliefs in the need to defend themselves from the 'attacks' from others, and to a degree they boost each others beliefs that they do not need support. The complex dynamics of their relationship are such that at times they will be both seek to retain control, inevitably leading one to feel that they are being 'abused' and overwhelmed, leading to the triggering of their own defensive attachment responses"
"He said: 'No! It is her decision. Leave us alone'. I explained that if she was sterilised then they wouldn't be able to have any more children. He said he didn't care and again, they didn't want any more children."
Conclusion on best interests:
Giving effect to the order: section 16(5) MCA 2005: If necessary, forcible entry into the home
i) On 8th April 2014, a warrant was executed under section 135 of the Mental Health Act 1983, pursuant to which DD's home was forcibly entered; she was taken to a psychiatric unit for the purposes of an assessment of her mental disorder, and for an important placental location scan. She was assessed by two consultant psychiatrists who concluded that she has a mental disorder namely Childhood Autism and borderline Learning Disability; it was reported that "after an initial period of emotional distress, DD became calm. She recognises the police, said Midwife C, as the local beat officers. The police presence offered reassurance and had a calming effect upon both DD and BC" (see [2014] EWCOP 8 [30]);ii) Pursuant to Pauffley J's order of 18 June 2014, DD's home was further forcibly entered (on the following day) for the purposes of conveying her to a clinic for an ante-natal scan, so that the well-being of the baby, and of DD herself, could be checked. As to this, I recorded that:
"DD and BC were initially significantly distressed by the presence of the team who had to use force to gain access to the home (as had been foreshadowed in the application, following their experience on 8 April 2014) . Within a short time of the arrival of the social work and health care team, DD was calm, and was amenable to being conveyed to the hospital for the scan and ante-natal appointment. No restraint or force was needed, and DD was co-operative on the ward." (see [2014] EWCOP 11 at [41]);iii) The Applicants then made application for further forcible entry prior to the impending delivery of her sixth child in order to remove DD to take her to a unit for the purposes of receiving contraception education (see [2014] EWCOP 11 [19(vii) and [145-160]); I refused this application as I was troubled about the increasing distress being displayed by DD and BC, and was keen to ensure that the removal of DD from her home for the purposes of the caesarean section was achieved with as minimal distress as possible. I said then, specifically [159(i)]:
"There is evidence that DD and BC were more distressed and angry by the forced entry to their home on 19 June 2014 than they were on 8 April 2014. There was nothing about the forced entry in itself which could have caused this elevated reaction. I fear (and this is a fear shared to some extent by Mr D) that each forced entry is likely to give rise to greater and greater levels of distress. The Applicants appear to concede this (opening position statement: "it seems to be the case that any limited engagement and involvement with [DD] is causing, on each occasion, an increased response" §8 and "after 19 June assessment she was certainly more oppositional and angrier" §44). It is imperative, in my view, not to take any step now which would jeopardise the arrangements for the transfer of DD to hospital for the planned caesarean procedure."iv) Pursuant to my order of 4 July 2014, the home was, however, forcibly entered on 16 July 2014 in order to convey DD to the hospital for the purposes of the caesarean section. In my judgment ([2014] EWCOP 11 [93]) I described the plan thus:
"A team of highly trained and experienced professionals has been assembled to facilitate the transfer of DD from her home to the hospital. This will involve gaining access to her home (if necessary, by force), and conveying her from her home to the hospital by private ambulance. Some resistance by DD to their objectives is predictable, though it is felt by those who have had experience of managing a similar situation on 8 April and 19 June to be achievable. The plan appropriately emphasises the importance of using the least degree of restraint of DD, and encroaching on DD's human rights, dignity and autonomy to the minimum extent necessary and only as a last resort to save her life, or prevent a serious deterioration in her mental health"When the team visited the home, they could not obtain an answer to their knocking. They gained entry to the home, where DD and BC became for a short time distressed. DD was helped to leave the flat, and by that time was calm, entering the ambulance independently and without restraint; she was calm on the ambulance journey, and exited the ambulance independently. As Dr. F summarised the situation:"Although initially distressed, [DD] had calmed quite quickly upon getting into the private ambulance and settling in to her private room."v) I made an order of the 15 July 2014, following a separate hearing, authorising forcible entry into DD's home for a time after the impending delivery of her sixth child to convey her to a community health service resource for the purposes of facilitating education for DD in relation to contraception, assessment of her capacity to make decisions in relation to contraception (at that hearing I also authorised the administration of a short-term contraception (Depo-Provera) by way of injection). After attempts to encourage co-operation, the Applicants entered by force on 13 August 2014; DD was so distressed by the events that it was not possible to engage her in the relevant education and, although she conveyed to a clinic for the purposes of meeting with the staff, she was quickly returned home. I referred to this incident at [2014] EWCOP 44 at [8] by highlighting my anxiety about the effect on DD of repeated forced entries to DD's home:
"[T]he removal of DD from her home on 13th August was considerably more difficult than that on 16th July. It was precisely the repetition of that sort of incident which had caused me to refuse the Applicant's application for the earlier proposed forced removal from the home on 7th July, prior to the caesarean section. As Mr McKendrick has pointed out, and Mr Horne agrees (and I concur), the scope for repeating this sort of procedure hereafter is now very considerably limited".vi) On 14 December, it was necessary to attend and forcibly gain entry to DD's home to administer the Depo-Provera injection. Social Worker D reports that DD and BC were angry at the intrusion; Positive Behaviour Specialist J was able to speak with DD. BC threatened Mr. D. It appears that the professionals had to use full seat restraint during which she had understandably become angry, upset and aggressive towards staff. It was said that:
"The level of distress however was of a greater level than any other previous visit I can only assume that any future visits like this are going to increase her resentment towards professional interference in her life and she is going to become more obstructive towards the professionals involved, both verbally and physically."
"Any physical restraint or deprivation of liberty is a significant interference with DD's rights under Articles 5 and Article 8 of the ECHR and, in my judgment, as such should only be carried out:
i) by professionals who have received training in the relevant techniques and who have reviewed the individual plan for DD;
ii) as a last resort and where less restrictive alternatives, such as verbal de-escalation and distraction techniques, have failed and only when it is necessary to do so;
iii) in the least restrictive manner, proportionate to achieving the aim, for the shortest period possible;
iv) in accordance with any agreed Care Plans, Risk Assessments and Court Orders"
i) It is imperative, in my judgment, that Ms J (a Positive Behaviour Specialist) is present on this occasion; she has been successful in engaging with DD and calming her on previous occasions;ii) I accept that the presence of the police is on the whole beneficial. As I indicated in [2014] EWCOP 11 [132]
"The presence of the police has not aggravated the situation; on the contrary, I was advised by [social worker] Mr. D that DD sees the police as neutral and therefore helpful in maintaining peace. DD does not see the police as a risk; indeed, it was felt, the presence of police (in fact, uniformed police underline for the concrete thinker the visual confirmation of authority) creates a brake on her anxiety, anger, frustration and fear. The police add a 'message' to DD that the situation is 'serious' (according to Mr D) and has the effect of calming DD and BC."In relation to the 14 December 2014 visit, Mr. D commented:"I believe that the police officers were required to attend [DD]'s house on the day and I think that it did assist in preventing any potential breach of the peace or assaults."
Date of intervention: should DD and BC know?
i) Advance notice of the projected date would be likely to raise DD's and BC's stress and anxiety levels, which is likely to have an adverse effect on DD's (and possibly BC's) mental health;ii) That they may seek to leave their home, and/or disappear. This course has been hinted at by DD in her recent letter to Ms Y. If they were to leave the area, and move to a location where they are not known to medical or mental health services, the very risks which the professionals are here attempting to forestall are more than likely to come to pass, with dire consequences.
Orders
i) pursuant to section 15 of the 2005 Act that DD lacks capacity to litigate in relation to the relevant issues;ii) pursuant to section 15 of the 2005 Act that DD lacks capacity to make decisions in respect of contraception;
iii) pursuant to section 15 of the 2005 Act that it is lawful and in DD's best interests to undergo a therapeutic sterilisation and authorise the applicants' staff to do so, together with the provision of all ancillary care and treatment;
Further,
iv) subject to certain safeguards (more fully set out in the care plan and reflected in the proposed draft order) being required, I propose to authorise the applicants to remove DD from her home and take steps to convey her to hospital for the purposes of the sterilisation procedure, and authorise the use of reasonable and proportionate measures to ensure that she is able to receive the said treatment even if any deprivation of liberty is caused by the same;
v) I authorise the applicants to take such necessary and proportionate steps to give effect to the best interests declarations above to include, forced entry and necessary restraint, and authorise that any interferences with DD's rights under Article 8 of the ECHR as being in her best interests.
Dramatis Personae:
Clinical Practitioner | Discipline |
Consultant Obstetrician A (Mr. A) |
Consultant Obstetrician & Gynaecologist, Applicant Acute Trust |
Consultant Anaesthetist B | Consultant Anaesthetist, Applicant Acute Trust |
Midwife C | Midwife, Applicant Acute Trust |
Social Worker D (Mr. D) | Mental Health Practitioner, Applicant Council |
Consultant Psychiatrist E | Consultant Psychiatrist, Applicant Mental Health Trust |
Consultant Psychiatrist F (Dr. F) | Consultant Psychiatrist in Learning Disability, Applicant Mental Health Trust |
Safeguarding Chair G | Chair Joint Commissioning & Adult Social Care, Applicant Council |
Social Worker H | Senior Social Worker, Applicant Council |
Nurse I | Nurse Consultant, Community Contraception and Sexual Health, Applicant Mental Health Trust |
Positive Behaviour Specialist J (Ms J) | Deputy Ward Manager, Applicant Mental Health Trust |
Nurse K | Learning Disability Liaison Nurse, Applicant Mental Health Trust |
Clinical Psychologist L (Dr. L) | Clinical Psychologist specialising in working with adults with learning disabilities, Applicant Mental Health Trust |
Nurse M | Primary Care Liaison Nurse, Applicant Mental Health Trust |
Nurse N | Community Psychiatric Nurse, Applicant Mental Health Trust |
Consultant Neonatologist O | Consultant Neonatologist, Applicant Acute Trust |
Speech & Language Therapist P | Speech & Language Therapist, Applicant Mental Health Trust |
Speech & Language Therapist Q | Speech & Language Therapist, Applicant Mental Health Trust |
Service Manager R | Service Manager Community Learning Disabilities Team, Applicant Mental Health Trust |
Registered Manager S | Registered Manager of Placement, Applicant Council |
Manager T | Adult Social Care General Manager, Applicant Council |
Assistant Manager U | Assistant Manager of Placement |
Assistant Manager V | Assistant Manager of Placement |
Ms Y | Solicitor agent instructed on behalf of the Official Solicitor |
GP 1 | General Practitioner, Applicant's Surgery |
GP 2 | General Practitioner, Applicant's Surgery |
GP Practice Manager | Practice Manager, Applicant's Surgery |
Nurse GP Practice | Any Nurse, Applicant's Surgery |
Instructed by the Official Solicitor: | Instructed by the Official Solicitor: |
Dr. Francesca Denman | Consultant Psychiatrist in Psychotherapy |
Dr. Sam Rowlands | Consultant in Sexual and Reproductive Health |
Mr. Malcolm Griffiths | Consultant Obstetrician & Gynaecologist |
Dr. Richard Latham | Consultant Forensic Psychiatrist |
Previously instructed (in Children Act 1989 proceedings concerning DD's children) [2003]/[2009] | Previously instructed (in Children Act 1989 proceedings concerning DD's children) [2003]/[2009] |
Dr. Lindsey | Consultant Psychiatrist [2003] |