1. Both
actions arise out of the same events and were tried together. I propose to
treat them as one.
2. The
evidence has established the following facts and conclusions on the balance of
probabilities:-
3. Jamie
Sinnott was born on 11th October, 1977. He is now almost 23 years of age, the
third child of nine. Mrs. Sinnott, his mother, is separated from her husband
for a number of years and has been Jamie's primary carer all his life. At
birth he was a healthy baby and developed normally for about the first four
months. Mrs. Sinnott is an American of Irish extraction. She came to live in
this country at or about the time of her marriage and Jamie was born here. Her
father, Dr. John Kelly, is a surgeon who has maintained close ties with Ireland
and has a house in Co. Cork at Enniskean where Mrs. Sinnott and her children
resided originally.
4. When
Jamie was about four months old he was vaccinated in the usual way. Soon
thereafter he began to develop autistic symptoms. Subsequently, in course of
her endeavours on behalf of autistic children generally, Mrs. Sinnott founded
an organisation called The Hope Project. She stated in evidence that she has
details of about 300 families on computer who came to her for help - each
having a child suffering from autism or other condition within the autistic
spectrum. In almost every case such children were, like Jamie, normal for the
first few months of life and then sustained an insult of one type or another
and became "derailed into autism". Experience indicates that there usually is
a precipitating event after which autistic symptoms emerge.
5. The
first symptom which Jamie displayed was that he began to scream incessantly as
thought in acute pain. He lost the ability to attach to the breast. He became
extremely distressed at light and sound. He did not want to be touched or
handled. Mrs. Sinnott's description of him at that time was "He seemed to cry
all of the time. The only times he seemed to be happy is if he was in bed away
from all sound and lights dimmed, curtains closed and no-one touching him;
then he could remain calm for short periods of time". Jamie's problems also
extended to physical incapacity. This was very clearly demonstrated on an
occasion when he was about six months old. Mrs. Sinnott's sister paid a visit
and brought her son, Barry, who was a month younger than Jamie. Mrs. Sinnott
described the two babies lying on the floor side by side. "Barry was looking
at this mother and smiling and kicking and doing all of the appropriate six
months things... Jamie was lying next to him, unusually not crying... just
lying there completely flat, he was not doing anything and he was not looking
at anybody...". This was in sharp contrast with the interaction of the two
babies when together up to the time when Jamie developed autism. Jamie was
then entirely normal in behaviour and was more advanced than Barry.
6. Mrs.
Sinnott's father carried out an assessment of Jamie and became concerned about
him. Dr. Quigley, the family G.P., was consulted and he referred him to the
paediatric unit at St. Finbarr's Hospital in June, 1978 where he was assessed
by Professor Barry. At that stage he had lost control of his jaw which had
started to clamp. He has never regained full jaw control and since then up to
the present time he drools saliva which causes him on-going distress as well as
creating an element of revulsion in those who come in contact with him. Jamie
was detained in hospital for a period of observation and tests on the basis of
which Professor Barry advised that the child was not reaching his milestones.
He was healthy and they had found nothing physically wrong with him. It was
reported that all of his tests were normal. On being pressed by Dr. Kelly,
Professor Barry stated that he would not discount autism. His advice was that
Jamie be taken home and that they watch the autism develop. They were not
directed to any other service where the child might receive treatment, nor were
they asked to bring him back to the hospital for further assessment.
7. Jamie
was brought home and Mrs. Sinnott embarked upon a search for appropriate
treatment for her son which in turn developed into a crusade on behalf of
autistic children generally - a huge struggle over two decades seeking to
prevail on State health and education authorities to recognise autism and to
provide appropriate education and training for those afflicted by it -
particularly children like Jamie with severe or profound physical and mental
disabilities which are frequently a feature of autism. Anyone who heard Mrs.
Sinnott's evidence in court and witnessed her demeanour must have been moved by
her account of intelligent, selfless dedication and heroism in contending over
the years with so much official indifference and persistent procrastination
which has continued up to and through this trial. It is a sad commentary that
even at this late stage the State has failed to address realistically its
constitutional obligation to provide for the on-going education of Jamie Sinnott.
8. The
history of Mrs. Sinnott's efforts for upwards of twenty years to obtain
education and care for Jamie and others seriously afflicted with autism and
related symptoms is a very depressing story with many disappointments and
set-backs arising out of failure on the part of officialdom to address the
problem of autism and how it should be treated - notwithstanding substantial
international progress in that area since the 1960's and earlier which is
well-known and documented. The evidence of Mr. Matthew Ryan, a senior
administrator in the Department of Education who has particular responsibility
in the area under review, underlines the depth of ignorance of autism and its
problems at official level. In Jamie's case the difficulty was aggravated by
actual professional misinformation on how he should be treated which
contributed to setting back his education and training for years.
9. Mrs.
Sinnott's own family home is in Chicago, Illinois, where her father carried on
practice as a surgeon. Having endeavoured without success to obtain treatment
for Jamie from several institutions in Cork, Mrs. Sinnott decided to bring him
to Chicago and see what might be done for him there. He was brought to the
paediatric unit at Loyola University Hospital where he came under the care of
Dr. Eugene Diamond. He was detained for five days and had a comprehensive
series of tests under a team of specialists. He was found to be generally
healthy and of good growth. It appears that his substantial disablement was
diagnosed as autistic in origin with a major deficit in motor development which
affected his muscles, skeleton and general movement. He was diagnosed as
suffering from a psycho-motor problem the effect of which was that the brain
was not sending messages to his muscles and limbs. Mrs. Sinnott was informed
that Jamie needed intense therapy designed to teach the brain to send the
messages necessary to put him back on track. The Loyola specialists
recommended intensive intervention in the nature of occupational therapy,
physiotherapy, speech and language training.
10. Jamie
was then enrolled at the Disfunctioning Child Centre at the Michael Reese
Hospital, Chicago, the director of which was Dr. Naomi Abraham. The centre
provides a range of therapists to deal with dysfunctional children, including
those suffering from autism and related disabilities. Jamie attended three
sessions a week from the end of September until Christmas, 1978. There were
two sessions with Ms. Elizabeth Osten, occupational psychotherapist, and one
session with other therapists or undergoing tests. Every month a written
assessment was made of Jamie's progress by the therapists concerned in
consultation with Mrs. Sinnott and her father. She described that when her son
arrived at the centre he was screaming continuously and when not screaming he
was lying there like a spongy lump. He did not appear to see anybody or do
anything. She described him as being "glazed over" and not wishing to be
touched. He had also started to display repetitive autistic behaviour. An
autistic person is self-centred in a literal sense who tends to shut out the
world around him. He or she is also prone to repetitive behaviours such as
pulling the hands and mouthing them. The treatment at the Michael Reese
Hospital brought about substantial improvements in Jamie's behaviour, physical
capacity and enjoyment of living. He was watching people and giving some eye
contact. He stopped most of his autistic repetitive movements. He started
interacting with people around him. He ceased to cry and he even smiled.
There was quite a traumatic change in his level of happiness. He was able to
weight bear on his legs and to push with them. He was able to sit up and could
be put in a high chair with the family at meal times. Mrs. Sinnott described
that she and the family could touch Jamie and "he could be one of us in the
midst of the family". As time went on he developed his capacity to inter-act
and he started playing with toys.
11. An
important part of the training at the centre involved Mrs. Sinnott and Jamie's
elder siblings. Family collaboration and participation in Jamie's education
and care was regarded as being of particular importance. A detailed programme
was developed with the intention of having it carried on when Jamie returned to
Ireland.
12. Mrs.
Sinnott was asked what practical differences did Jamie's improvement in Chicago
make in her own life. In response she spoke of the difference of being able to
get a couple of hours sleep. Previously she had to catnap when she could in
the context of a very demanding, very upset baby. She was able to put on some
weight herself and have some more energy, time and freedom to work with her
son. She went on to say "As a mother having him actually look at me and
acknowledge that he knew I existed, you know, that recharges a mother. It
enabled me to bring much more of myself to him. In practical ways within the
family the fact that he was looking at brothers and sisters re-enforced their
interest in him. You know everything seemed to run better... every single
thing he gained had huge practical consequences for us..."
13. Mrs.
Sinnott returned to Ireland with Jamie and her other children at Christmas,
1978. She was provided with a programme, notes and records from the
Disfunctioning Child Centre and also medical records from Loyola Hospital. She
also had her own notes about the treatment Jamie had received while in Chicago.
The intention was that all of these would be handed over to Professor Barry and
others in the belief that continuing treatment and educational facilities would
be made available to Jamie in Ireland. Dr. Abraham also expected that that
would happen. She had a particular interest because she had a home in West
Cork which she visited frequently. She had been assured that there were
facilities in Cork similar to those provided at her Centre in Chicago.
14. Sadly
the hopes of Mrs. Sinnott and Dr. Abraham were not realised. It seems that
nothing was achieved with Professor Barry and Mrs. Sinnott continued to be
fobbed off by other organisations in Cork. All the while Jamie regressed and
gradually sank back to the situation he had been in before going to Chicago.
One of those approached by Mrs. Sinnott was Dr. Patrick Murray, now deceased.
He was a Southern Health Board psychiatrist who worked with the Brothers of
Charity institution at Lota which dealt with mentally disabled children. He
did not respond at first.
15. Mrs.
Sinnott was asked how she reacted to her inability to obtain assistance for
Jamie and, in particular, continuation of the successful treatment he had
received at Chicago. Her reply was "I was very upset. The way I reacted was
no-one on the phone was straight with me. No-one on the phone ever said to me
look these services do not exist, you need not ring again. That would have
been honest. I would have done something about it. Maybe I would have
returned to the States, I don't know. Instead it was all evasive. It was all
vague. It was as if there was a wonderful service there but, but
something...." She concluded that one of the problems was living in Enniskean
which is 28 miles from Cork. So she moved to basic rented accommodation in the
city and incurred financial hardship for herself and family in Jamie's
interest. She explained her difficulties to Dr. Abraham who wrote to Dr.
Murray and this led to an appointment with him. Unfortunately, Dr. Murray
appears to have been misinformed as to the cause of autism in children. In the
50's and 60's in America a doctor called Bruno Betlehime propounded the theory
that children were made autistic by cold unloving mothers. What were referred
to as "refrigerator mothers" rejected their children and thereby made them
autistic. This theory had been discredited and rejected in the United States
and elsewhere at the time when Jamie was treated there. However, Dr. Murray
did not appear to be aware of that. He told Mrs. Sinnott that it was his
policy to take an autistic child and cut him off from his known environment and
put him into hospital for six weeks for the purpose of assessment. Mrs.
Sinnott was appalled by that suggestion, particularly having regard to her
experience of watching the minimal attention which Jamie had received as an
in-patient in St. Finbarr's Hospital. She contacted Dr. Abraham who also
shared her view that the proposal was "crazy". She contacted Dr. Murray but,
it seems, the only compromise which he was prepared to make was that Mrs.
Sinnott might visit Jamie at weekends or perhaps even take him home then "if
things were going alright". Mrs. Sinnott was not prepared to agree to that
course because she realised that Jamie's primary problem was isolation and she
had been led to believe that to make him even more isolated was not the answer.
She also knew very well that she was not a "refrigerator mother". Mrs. Sinnott
stated that she had Dr. Murray's lecture notes to nurses in which he propounded
the discredited Betlehime theory. She also discovered the practical
application of it subsequently when dealing with nurses at the Cork Polio
Nursery. Furthermore, she was informed later by three other parents who handed
their autistic children over to Lota for six weeks at the behest of Dr. Murray
that they deeply regretted having taken that course because when their children
were returned to them a breach had been created which they were never able to
overcome subsequently. It is appropriate to add that it seems to be accepted
by all on both sides of this case that Mrs. Sinnott is a loving, caring mother
of exceptional dedication.
16. In
November, 1979 Mrs. Sinnott was successful, through the efforts of her
landlady, a medical doctor, to have Jamie assessed at Cork Polio, the
forerunner of the COPE Foundation, by Dr. Irene Leahy, a psychologist, and Dr.
McCarthy. They were interested in the treatment he had received in Chicago and
recommended that he needed services for five days a week. However, that did
not materialise. He was given the benefit of what transpired to be a
"baby-sitting" service run by nurses who, though kind and loving, were not
teachers or therapists but were carers only. It seems that they were also
disciples of Dr. Murray's discredited theories on the cause of autism. The
baby-sitting service commenced in January, 1980 for a couple of hours per day,
once, twice, or three times a week. It broke up for the summer months and then
recommenced.
17. As
nothing was being done for Jamie who was regressing substantially, Mrs. Sinnott
decided that he should return to the Disfunctioning Child Centre at the Michael
Reese Hospital, Chicago. She returned with him to her family home and he
attended the centre as before for five months until April, 1981. They were
particularly interested in having him back again as they felt that it was not
only an opportunity to help Jamie but also gave them a chance to see what could
happen in rehabilitating a very young child through intensive services who had
been seriously derailed by autism. He was the youngest child they had treated
in that regard. They were concerned to ascertain how much of the long term
disability could be avoided. In consequence, he was accepted as a research
project and no charge was made for his treatment at the centre.
18. Lost
ground was recovered and further progress was made. Under the overall
direction of Dr. Abraham, Jamie again came under the care of Ms. Elizabeth
Osten, occupational psycho therapist, and also Dr. Margaret Creedon,
developmental psychologist, both of whom gave evidence at the trial. Each has
long experience in the treatment of autism and related disabilities. Having
presented in much the same way as he had been originally in 1978, great
improvement was achieved and when he returned to Ireland in April, 1981 he was
well on his way to walking, beginning to crawl, able to play with toys,
responding to people and having spoken his first word. Most of the sessions at
Chicago were videod. In the last two weeks before returning to Ireland a
teaching video was made at the centre for the benefit of people who would
deliver the services and treatment that Jamie needed in Ireland. It was shown
at the trial. Mrs. Sinnott offered it to the staff at the COPE Nursery and
also to Dr. Murray with whom Dr. Abraham had again corresponded and other
possible providers of services for Jamie, but no-one was interested.
19. As
a result of further pressure exerted by Dr. Abraham on Dr. Murray she received
assurances that appropriate services would be provided for Jamie, including a
pre-school service at a school operated by Lota in Fitton Street, Cork. In
fact no such service eventuated and all he received there was more baby-sitting
twice a week for two hours each session. No teacher was provided and a nurse
was in charge. That service continued from September, 1981 until October,
1982. From then until 1985 Cork Polio provided one (and later two) afternoons
per week "a baby-sitting facility". From 1985 until October, 1988 Jamie
attended Cork Polio, at St. John's, Strawberry Hill initially and then at
Montenotte, five days per week which was also a baby-sitting service with no
formal education provided.
20. In
October, 1988 when Jamie was 11 years old he participated in a course of
education for the first time. Ms. Naomi Smith, a physiotherapist in Cork
Polio, who had studied in Hungary at the Petit Institute set up an experimental
conductive education unit for a period of six months at Tracton. It was
designed chiefly for physically handicapped people. Jamie was not considered
suitable for it but it was put to Mrs. Sinnott that if she could transport a
neighbouring child to the course then Jamie could attend also. The course was
structured on a 'one to one' basis and was physical in orientation. There was
a lot of physical work which Jamie needed and he got on very well. Walking,
including use of stairs, was an important aspect. He also learned to feed
himself and he got top marks for toileting. He was happier in himself and this
was apparent at home. There were six children on the course and all made
progress. The parents were encouraged to participate and attend the classes.
Sadly, at the end of the trial period it was decided at COPE not to proceed
with the project. This was regarded by Mrs. Sinnott and the other parents as a
disaster. There was at that time a waiting list of disabled children whose
parents were hoping that the project would be expanded. There was also a
difficulty about returning Jamie to the COPE day centre. Before joining Ms.
Smith's education project he was unsteady on his feet and inclined to fall
which constituted a danger for other children. In consequence, he had been
obliged to sit down all day and this gave rise to regression in his autism.
Mrs. Sinnott hoped that Jamie would be allowed resume at the day centre with no
restriction on walking as he had progressed so well on the Tracton course.
However, to her dismay she found that there was no place available for him at
COPE. This caused her to replicate as best she could with the aid of a
neighbour the Tracton conductive education programme. She bought similar
equipment to that used by Ms. Smith and had considerable success with Jamie
including an improvement in his mobility so that he could walk for two miles at
a time. This continued from March, 1989 to January, 1991. Although reasonably
successful, one difficulty was that Jamie became lonely through lack of contact
with other children. Fortunately, a place became available at the Our Lady of
Good Counsel School at Lota which is for profoundly mentally handicapped
children. Jamie joined in January, 1991 when he was thirteen and a half years
old. He was in a "blue report" class, i.e., twelve children and one teacher,
Ms. Yvonne O'Malley. She found that she could not manage twelve children
together so the group was divided into two classes, one in the morning and one
in the afternoon. By and large this was a successful experience for Jamie.
The main problem about it was that terms followed the same pattern as in
primary schools. The long summer break caused much distress for the child who
seemed to be at a loss to understand why the regime he enjoyed was discontinued
for so long. He had a very good relationship with Ms. O'Malley who, in Mrs.
Sinnott's opinion, was an exceptionally gifted and dedicated teacher. Toilet
training was a problem there, primarily because toilets were cold and
substantially removed from the classroom. It had been much more successful
during the conductive education period. Jamie still required a nappy and
continues to do so at 23 years of age.
21. Jamie
remained at the Our Lady of Good Counsel School for about two and a half years
until June, 1993 when he was nearly 16 years old. At that time the Education
and Development Centre at Lota was restructured with disastrous results. For
reasons of funding the school became more health orientated than educational.
The judgment of O'Hanlon J. in O'Donoghue's case which laid down a class size
of six for children suffering from severe or profound mental handicap was
ignored and so was the "blue book" recommendation of twelve such pupils per
class which Ms. O'Malley had discovered from experience was unworkable. The
new "school" had a class of twenty-three, including all twelve from Jamie's
original class. Ms. O'Malley was the only teacher. In addition, there was a
director of the project but she did not teach. The centre opened in October,
1993. Not surprisingly, Ms. O'Malley was unable to handle twenty-three
seriously disabled pupils. By the following January she was obliged to take
leave as her own physical health was suffering under the strain of an
ill-conceived regime. Mrs. Sinnott reminded the headmistress about the
O'Donoghue judgment and the group of parents asked her to obtain three more
teachers in accordance with its terms but nothing happened. Thereafter Ms.
O'Malley confined herself to the original group of twelve children. Not only
had she no help from any other teacher, but the volunteers who had assisted her
previously were also informed by the Brothers of Charity that their services
were no longer required. There has been no explanation of why that happened.
The only available assistants were some health care staff who had no teaching
experience. Eventually a second teacher was appointed for the remaining eleven
younger pupils. Jamie was allocated to the latter group but later was
transferred to Ms. O'Malley's class. He was bullied and subsequently assaulted
and seriously injured by one of the other pupils and required treatment in
hospital. As a result of that he was transferred back to the younger children
again which in terms of age was inappropriate for him. From June, 1995 there
was no further education at the Child Educational Development Centre and it
became a health facility only. The withdrawal of teachers also entailed the
withdrawal of transport to and from the school as this had been provided by the
Department of Education. Even before the withdrawal of teachers, Jamie was
receiving only one 45 minute teaching session per day with the result that
1994/5 was a bad year for him. The converted premises for the younger group
was small with not much space to move around. Toilet training was not possible
because the only toilet was downstairs and was used by the staff. Jamie and
some other disabled children may get tired during the day. He could not lie
down anywhere because no beds or beanbags were provided. The point was taken
up with the staff but the response was that if Jamie was tired he should not go
to school. An offer of beds made by the parents association was turned down.
It was not appreciated that disabled children might get tired at school. All
but Mrs. Sinnott and one other parent were pressurised by the Brothers to
accept a health orientated scheme in lieu of that which had existed before.
The children of those who accepted the change were all resident at Lota and the
parents did not wish to antagonise the Brothers by failing to support their
proposition. Jamie and the other child were day attenders. The end result for
Jamie in consequence of the change of orientation was that he lost much of his
ability to walk and it was necessary to provide him with a wheelchair which had
to be used at times even within his home. Mrs. Sinnott described her son as
being quite miserable at that time and he was not making progress in any area
of his life. He also was having epileptic fits more often than had been the
case in previous years. He had begun to have very short minor fits several
years earlier. About 40% of autistic people suffer from such manifestations.
22. Mrs.
Sinnott was asked to contrast Jamie's condition in March, 1995, when St.
Martin's was dissolved as an educational model, with the way he had been when
in Ms. O'Malley's class and in the conductive educational class earlier. She
responded by saying that it was like describing night and day. He was not
happy and he was not making progress. Sometimes he wanted to go to the school
and sometimes he did not, whereas earlier he had always wanted to go to school.
As already described, his capacity for walking had become severely diminished.
Mrs. Sinnott regarded St. Martin's as a failure and she stated that that was
the consensus view of others at parents meetings. That unhappy state of
affairs continued for about two years in Jamie's life. The plaintiffs'
solicitors had correspondence with the Minister for Education in 1994/95. The
information furnished by the latter about services allegedly being provided for
Jamie was untrue and indicates that the Minister appears to have been
misinformed about the realities of the case (See Book 13 letter 19th September
1994 and subsequent correspondence - in particular the Minister's letter of
21st December, 1994).
23. Eventually
the father of the other child who, like Mrs. Sinnott, had supported the concept
of an educational facility, contacted the press in Cork as a result of which
the refusal of the State to provide educational facilities for his mentally
handicapped daughter received major front page coverage. This brought about
immediate capitulation and a special class was set up for Eimer and Jamie in
January, 1996 at St. Paul's School, COPE. Educational facilities with an
enlightened qualified teacher, Ms. Miriam Kingston, was provided for five full
school days per week. Ms. Kingston had specialised training in dealing with
children with severe or profound mental handicap. She had some knowledge of
autism; had much enthusiasm and was anxious to develop her ability in that
regard. There followed a short golden period in the education of Jamie which
restored much lost ground and a variety of new talents were developed. It
illustrates graphically what would have been achieved if he had received
similar education from his early years. Ms. Kingston brought a lot of
happiness into Jamie's life which helped him greatly in overcoming the misery
of the previous two years. He was then 18 years of age and it was necessary to
lobby the Minister to obtain an extension of his education for another year.
Eventually agreement was arrived at in that regard. The school year at St.
Paul's had been lengthened in response to the O'Donoghue judgment and the
summer holiday was only one month. Unfortunately, when Jamie returned in
September Ms. Kingston had left and this caused some disruption in his
education - particularly when later in the year her successor took maternity
leave and there was a succession of unqualified substitutes for several months.
24. In
September, 1997 Jamie's time at St. Paul's was finally up and the school was
not prepared to educate him any longer, even though, manifestly, he needed a
great deal more training to make up in some way for the many years when no
education had been provided for him. An impasse emerged. Mrs. Sinnott brought
Jamie to school as usual. He was allowed to sit in the class but received no
education there. Eventually she was told that it was intended to move Jamie to
the Orchard, another institution at COPE, where he would join a class of six
severely or profoundly mentally handicapped young adults of about his own age
and would receive some education and instruction from an unqualified teacher
who had little training in dealing with the profoundly handicapped and no
experience at all of autism. Mrs. Sinnott had serious reservations about the
proposed move on the ground that by their own admission the authorities at COPE
and the staff employed by them had no experience in dealing with any form of
autism - far less severely autistic young adults like Jamie. None of the
others in his class were ambulatory. They were not autistic and none had a
range of problems like his. No programme was devised for Jamie's education and
training until halfway through the trial when a grossly defective one was
cobbled together in haste which was roundly condemned by the experts - even
those called on behalf of the defence. It demonstrated a fundamental lack of
understanding of autism and its problems. Professor James Hogg, a world
renowned authority on autism, stated in evidence that if one of his staff had
produced the Orchard programme he would have been genuinely dismayed. He went
on to specify a series of fundamental flaws which it contained. Professor
Peter Mittler, also a major world authority on autism, who was called on behalf
of the defence, was critical of the programme and the best he was able to say
of it was that it might be a beginning on which a proper programme could be
built. In course of the trial a great deal of time was wasted by the defence
in a forlorn effort to establish that Jamie was not autistic but that
essentially he is profoundly mentally handicapped with some autistic
tendencies. In the end there was no sustainable case to support that
extraordinary proposition having regard to the wealth of evidence and expert
testimony, which I accept, that Jamie is severely autistic and has been so
afflicted since he was about four months old. (He was examined and diagnosed
as autistic by, among other experts, Professor Hogg, Dr. Creedon, Ms. Osten,
Mr. Willis and Mr. Reid.) That line was pursued in the hope of persuading the
Court that the regime at the Orchard is appropriate for Jamie's education and
training. Manifestly it is not. I am satisfied that Jamie was moved to the
Orchard as a temporary stop-gap measure without any realistic knowledge of what
his educational requirements are. The decision-makers were, or ought to have
been, well aware that having regard to his autism, it was entirely unsuitable
for him, not least because of the absence of any staff with experience of
autism and the special problems which it entails and the lack of crucial
services such as speech and other therapies.
25. Mrs.
Sinnott gave evidence about the CABAS (comprehensive applied behaviour analysis
system) school which was set up in Cork in the summer of 1999. It is a
'one-to-one' teaching service with auxiliary staff, for 12 autistic three to
five year old children. They suffer from varying degrees of autism, but three
of them on entry were as disabled as Jamie had been at the same age. It is run
by an American professor, Burgus Grier, and his assistant Mrs. Keohane. Mrs.
Sinnott's daughter, Brigid, is a trainee teacher there who is studying for an
MA postgraduate degree. It is a pilot project which is intended to run for 3
years. The school is having substantial success and the parents concerned are
well pleased with it. One of them, Mr. Brendan Toomey, gave evidence to that
effect. A particular success is in toilet training. The system devised is
specially suited to the autistic mind. Brigid Sinnott has adopted the same
method at home in training her brother, Jamie, and in a short time she has had
such success that it has been possible to discontinue the wearing of diapers.
He now rarely has accidents in that regard. Mrs. Sinnott has endeavoured to
persuade Ms. Healy, Jamie's teacher at the Orchard, to adopt a similar system
for him there, but without success and Jamie has reverted to wearing nappies at
school. This is another illustration of the lack of co-operation between the
Orchard and parents. The end result is that Jamie has one system of toileting
at home and another at school which causes him unnecessary confusion and sets
back his progress in that crucial area.
26. Mrs.
Sinnott and her daughter, Bridget, explained the CABAS system of education. In
essence the objective is to make everything very logical. They examine every
message they give a child and every message a child is trying to give them and
they endeavour to ensure that everything they do is in the logical pattern of
the messages which are interacting between the child and the teacher. They are
concerned not to give the wrong message to the child or to misinterpret a
message received from him/her. No system of that sort obtains in the Orchard.
Jamie is the only person in his class who is ambulatory. The other five are
confined to special chairs and so is Jamie though it is unnecessary in his
case. Mrs. Sinnott is dubious about the amount of teaching hours (such as it
is) which he receives per week as on several occasions when she has called to
the Orchard at times when the class ought to have been receiving instruction,
the teacher was not present and no instruction of any sort was in progress.
27. Mrs.
Sinnott has found that the disinterest in parental involvement at the Orchard
differs greatly from Ms. Naoimi Smith's conductive education course where the
parents were involved and were specifically brought in to watch what was going
on. Ms. Smith and her colleagues worked with the parents as partners who then
tried to carry on the instruction at home. She found a degree of partnership
also with Ms. Yvonne O'Malley in her class at St. Paul's and again with Ms.
Miriam Kingston in her class there. They were concerned to develop a
co-operative relationship with the parents. She found that it was particularly
beneficial for Jamie when there was interplay between parent and teacher and
they worked in partnership for the benefit of the child. Mrs. Sinnott has
found from experience that such collaboration is the only way forward. Her
experience has been that the occasions when Jamie has made most progress were
in programmes based on partnership. Unfortunately, the general attitude at
COPE is not conductive to that concept and there is little interaction and
co-operation with parents.
28. Mrs.
Sinnott made it clear in evidence that her experience had been over the years
that those caring for Jamie had always been particularly kind to him. Her
criticism of them relates solely to what she perceives as lack of experience,
training and expertise and also the lack of a viable structured programme for
his education and training devised in collaboration with her. Experience has
established that educators have achieved more with Jamie than health personnel.
Teachers are also more likely to co-ordinate efforts between school and home.
A few teachers, such as Ms. O'Malley and Ms. Kingston, have been successful in
that regard and have achieved more with Jamie than health orientated carers
with the exception of Ms. Naoimi Smith.
29. Mrs.
Sinnott was asked about the time she had devoted to her son over the years.
She responded that she had spent a great deal of time in doing a lot of things.
Trying to be his mother, therapist and educator. "Coping with things like
dressing and lifting and things that I feel wouldn't have been necessary and
hopefully will not arise in the future." She referred to the fact that Jamie
suffers a lot of frustration, particularly in connection with changes in
regimes or withdrawal of regimes which he enjoyed and periods of depression
arising out of his frustration. The manifestation of depression is that he
doesn't wish to move and curls into himself. This has a gloomy effect on the
entire family. His physical capacity has also seriously deteriorated in times
of regression - even to the extent of requiring a wheel-chair though previously
he had learned to walk as much as two miles at a time. As to the future; she
stated "I have always envisaged taking care of Jamie and I have never planned
on ever putting him into an institution as long as I can take care of him....".
The effect of lack of services for Jamie over the years on his mother was
congently described by Bridget Sinnott in her evidence (see First Appendix).
When asked what percentage of her mother's time and thoughts were devoted to
Jamie and his cause over the years her reply was "a huge disproportionate
amount".
30. Although
at best the likelihood is that Jamie always would have suffered from serious
mental and physical incapacity arising out of his autism and related
disabilities, even if he had received appropriate on-going education and
training at an early age similar to that which he had in Chicago and which the
CABAS organisation is pioneering in Cork, the expert evidence indicates a
probability that his physical and mental capacity and his enjoyment of life
would have improved substantially from an early age. It is reasonable to
assume that, in particular, he would have been fully toilet trained from early
childhood; his persistent drooling would have been cured or at least greatly
improved long ago; he would have been substantially more mobile and would have
developed greater dexterity with his hands. There are positive indications
that his mental capacity probably would have improved and, through professional
speech therapy, he may have developed in time a rudimentary capacity with
language - though the latter development appears to be no more than a
possibility. Early signs indicate a probability that he could have been
successfully trained for sheltered employment similar to that of the
towel-folding youngster employed in a gymnasium which was referred to by Dr.
Walsh in course of her evidence. (See First Appendix) This would have done
wonders for his self-esteem by giving him the status of a place, albeit a very
simple one, in the work-force.
31. All
of the experts agree that the earlier a severely autistic and mentally
handicapped child such as Jamie has specialised education and training the
greater the likelihood of improving the capacity and quality of life of the
sufferer. Jamie has had less than three years of meaningful education and
training so far in 23 years of existence. He has suffered grievously through
the failure of the State to meet its constitutional obligation to provide him
with such services and its negligence in that regard. The end result is that
he has lost many years which in all probability would have been of great value
to him in the improvement of his physical and mental capacity and quality of
life through education and training. Whatever happens to him in the future,
that loss can never be fully restored because, as the experts point out,
education now is arriving too late in his life to achieve optimum results.
Progress is more difficult and potentially more stressful for him than would
have been the case if he had been educated from an early age. At best he has
suffered through lack of educational training a diminution in the quality of
his life which has been substantial up to now but which will also continue
significantly into the future - even if he derives major benefit from the
education and training now proposed for him. It is probable that he will have
a life-long need for on-going basic education and training consistent with his
requirements as they emerge in the future. Regular assessment will be
important for him.
32. Apart
from Mrs. Sinnott and her daughter, Brigid (a trainee), the following experts
gave evidence on behalf of Jamie:-
44. Some,
such as Professor Hogg and Professor Carpenter, have major international
reputations in the sphere of autism and profound mental handicap. Two other
international authorities in that area, Professor Peter Mittler and Dr. Jean
Ware, were called as witnesses for the defendants. There was no significant
controversy between their testimony and that of the other experts. Aspects of
evidence given by the foregoing (including Professor Mittler and Dr. Ware) and
by Mrs. Sinnott and others who gave evidence for the plaintiff to which I have
attached particular significance are set out in the First Appendix hereto.
45. Apart
from the testimony of Prof. Mittler and Dr. Ware to which I have already
referred, evidence adduced on behalf of the defendants' was in three segments.
First, that of Dr. M. J. Ledwith, psychiatrist, and Dr. Rita Honan, senior
clinical psychologist of the Eastern Region Health Authority, in support of the
contention that Jamie Sinnott is not autistic but suffers primarily from a
profound mental and physical handicap with some autistic features. As already
stated, the defence hoped to persuade the Court to accept that assessment, even
though it was against a formidable tide of expert testimony to the contrary,
and to accept also that the Orchard is a suitable place for Jamie's ongoing
education and care - notwithstanding the established fact that none of the
carers there have any experience of autism whether in the nature of so called
"autistic features" or otherwise. The defence evidence failed to establish
that proposition. Dr. Ledwith ultimately conceded that Jamie Sinnott is
autistic and that the autistic aspects of his condition should have been taken
into account in the provision of appropriate education for him. Dr. Honan, who
was instructed in the matter on behalf of the State in course of the trial,
deposed that through other work commitments she did not have sufficient time to
carry out a full formal assessment of the plaintiff and she had so informed the
defence. She was unable to carry out tests which would have been of assistance
in formulating her diagnosis. She also had no time to read the reports and
assessments made by fellow psychologists, Mr. Willis and Mr. Reid, nor to
consider the various reports received from Chicago. She had obtained extensive
professional documentation from the State but through lack of time she read
only those documents referred to in her report. She did not see the Chicago or
music therapy videos. Dr. Honan's assessment was based solely upon Jamie's
contemporary situation as it appeared to her at one short interview in
November, 1999 supplemented by questioning Mrs. Sinnott on that occasion which
was also limited to her son's contemporary situation. She did not investigate
his earlier history. It transpired in course of Dr. Honan's evidence that
there were many significant aspects of the plaintiff's contemporary and earlier
behaviour of which she was unaware and which were relevant to a diagnosis of
autism. It seems to me that the criticisms made by other psychologists of her
assessment of Jamie Sinnott and her opinion based thereon are well founded. I
am satisfied that her assessment was based on an incomplete and insufficiently
informed investigation. I reject her conclusions. I have no hesitation in
accepting the wealth of expert testimony that Jamie Sinnott suffers from, and
has suffered almost all of his life from severe autism and related profound
mental and physical handicap. Even if both disabilities are not directly
related, they each require specialist education and treatment. In practical
terms it is unreal to attempt to differentiate between them. As previously
stated I am satisfied that the Orchard is entirely unsuitable for the education
and care of Jamie Sinnott and ought not to have been selected by the State for
that purpose. It is of interest that the selection was made without seeking or
obtaining any expert advice as to its suitability for Jamie's education or the
formulation of any programme in that regard. It is obvious that it was a
hurried, ill conceived stop-gap solution.
46. The
second segment of the defendant's evidence comprises the testimony of Mr.
Matthew Ryan, the Department of Education administrator having responsibility
for special education of those with severe or profound learning difficulties
such as the plaintiff; Mr. Peadar McCann, the senior inspector of special
schools in Munster and parts of Leinster and Connaught; Mr. Gerry Buttimer, the
chief executive officer of the COPE Foundation and Ms. Louise Healy, Jamie's
teacher at the Orchard. The third segment comprises relevant documentation,
including inter-departmental memoranda and correspondence which throws much
light on the attitude of the State towards the education of Jamie Sinnott and
its response to the O'Donoghue judgment. Aspects of testimony given by the
foregoing witnesses and documentation to which I attach particular significance
are set out in, respectively, the Second and Third Appendices hereto.
47. It
is established that the primary weakness in our administrative structure which
has given rise to the plaintiffs' claims is twofold. First, insufficient
liaison between Departments of State where a particular problem involves two or
more of them (e.g. as in Jamie's case where he requires continuing
education/training and also medical type services including various therapies)
- see, inter alia, the evidence of Inspector McCann and Mr. Ryan in the second
Appendix. The evidence of the latter, both senior officials in the Department
of Education with long experience in the area of special educational needs,
indicate that there is an urgent requirement for an integrated departmental
approach to the fulfilment of the constitutional obligations of the State to
disabled sections of society such as those like Jamie Sinnott who are
profoundly handicapped and to whom a life-long obligation may exist. I
understand from their evidence that they regard it as unreal to draw
demarcation lines between the obligations of individual Departments of State to
such claimants. The reality is that the constitutional obligation to provide
primary education, training and health care for the plaintiff and others like
him is that of the State per se. It seems to me, as indicated by Messrs Ryan
and McCann, that this must be recognised and accepted particularly in cases
where the problem is obviously inter-departmental in nature. It is encouraging
to learn that a beginning has been made recently in moving towards integration
of education and health services for the profoundly mentally handicapped.
48. Secondly,
the administrators in the Department of Finance, who play a major role in
advising on the dispositioning of the financial resources of the State, appear
to be insufficiently informed regarding the constitutional obligations of the
State to the weak and deprived in society to enable them to assess
realistically the degree of priority which should be attached to each such
claim and the structure of priority which the State should devise in meeting
its constitutional as distinct from other non-constitutional obligations. It
is, of course, a fact of life that in times of economic difficulty the State
may be obliged to rein back severely on expenditure and many projects for which
exchequer funding is sought may have to be postponed or curtailed through lack
of resources at the particular time. In such circumstances the need for
government, and financial administrators, to exercise a balance of
constitutional justice where appropriate in prioritising such claims is of
particular importance. This necessarily implies that the ultimate financial
decision-makers and officials who devise annual revenue/exchequor budgets and
administer State funds must have real awareness and appreciation of the
constitutional obligations of the State to all sectors of the community and in
particular to the rights of the grievously deprived in society, including those
such as Jamie Sinnott who suffer profound mental disablement. Those entitled
to State aid by constitutional right should not have to depend on numerical
strength and/or political clout to achieve their just desserts. Needs should
be met as a matter of constitutional priority and savings, if necessary, should
be made elsewhere. A citizen's constitutional right must be responded to by
the State in full. A partial response has no justification in law, even in
difficult financial circumstances which may entail the raising of new tax
revenue to meet such claims - happily a situation which has not pertained for
several years. Jamie Sinnott and those like him who are grievously handicapped
have a profound need for on-going primary education, training and medical care
and a constitutional right to such services from the State. Yet we find (as
illustrated in the inter-departmental correspondence to which I have referred
and the evidence of Mr. Ryan and the Mr. McCann) that Finance has persistently
dragged its feet in recognising and implementing the obligations of the State
as made abundantly clear by O'Hanlon J. in the O'Donoghue judgment. It seems
that the reason for that unhappy state of affairs is a lack of understanding by
finance providers of the status and implications of the constitutional
obligations of the State and in consequence an inability on their part to
prioritise in constitutional justice claims made on the resources of the State
by those having such rights which the State has an obligation to vindicate in
full and as a matter of urgency.
49. The
circumstances of this case also indicate that another problem area of potential
difficulty arises out of the long established practice of the State in meeting
many of its constitutional obligations to society at large, and to the
handicapped in particular, not by direct intervention but through the
employment of others, notably charitable and religious institutions, to provide
services on its behalf. The State is entitled to fulfil its obligations in
that way and it may elect to discharge its duties through third party
organisations. However, if it takes that course I believe that it has an
obligation to the service providers and to the beneficiaries of such services
to adopt in discharge of its constitutional obligations a hands-on approach, as
advised by Professor Peter Mittler, (see First Appendix pp. 36/7); to take a
positive role in the organisation, provision and supervision of services
offered on its behalf, and also to provide funds necessary to meet its
constitutional obligations where they are contracted out in that way.
Professor Mittler's observations on the practice in New Zealand, where the
structure as to the provision of such services is similiar to that in Ireland,
is of particular interest.
50. The
sad history of Jamie Sinnott is an indictment of the State and cogently
illustrates that it has failed to participate actively and meaningfully in the
provision of appropriate services for him and those like him over the years.
The history of some others referred to in this action comprise a similar
indictment of the State. It is unfair to the COPE Foundation and other such
institutions, who are trying with great dedication to do their best for those
suffering profound mental disablement, not to give them all necessary support
in organisation and finance - including the provision of expertise, equipment
and appropriately trained personnel necessary to provide the services which
such claimants require and the State has a constitutional duty to provide.
51. The
documentation contained in the Third Appendix hereto underlines the failure of
Finance to accept the judgment of O'Hanlon J. in the O'Donoghue case that
children with severe or profound mental handicap should have the benefit of a
pupil/teacher ratio (PTR) of 6:1 and also two child care assistants per class.
The final paragraph of a Speaking Note for the Minister for Education and
Science dated the 18th September, 1997 (see p 21 of the Appendix) for a meeting
with the Minister for Finance is particularly illuminating. It reads as
follows:-
52. In
fact there was never any validity in that excuse. In the light of the
overwhelming expert opinion in the O'Donoghue case in support of a PTR of
6:1and the finding of the Government's own Special Education Review Committee
that reported in 1993 soon after the judgment of O'Hanlon J. and which also
called for implementation of such a pupil/teacher ratio for the severe or
profoundly mentally handicapped, it must have been obvious to all in Finance
that there never was any hope whatever of successfully challenging in the
Supreme Court the findings of O'Hanlon J. regarding PTR and the provision of
child care assistants for the education of those with severe or profound
learning difficulties. Government approval was ultimately granted on 29th
October, 1998 (see Third Appendix p37) - more than five years after the
judgment in O'Donoghue. In the meantime many hundreds of children with severe
or profound mental handicap, including Jamie Sinnott, were deprived of
education notwithstanding their established constitutional right to that
service from the State.
53. It
seems from the memorandum of the Secretary to the Government to which I have
referred that it had been decided also that autistic children are to have a PTR
of 6:1, but with only one child care assistant per class. There is no evidence
to suggest that any decision has been made at departmental or government level
even yet about the provision of any ancillary services for sufferers from
severe autism (e.g. speech, occupational and physio therapies and
54. The
documentation also confirms that there are hundreds of claims broadly similar
to that brought on behalf of Jamie Sinnott which are outstanding against the
State. This is an alarming situation which points to a fundamental problem
which needs to be addressed urgently. It is the essence of a democratic
society that we live under the rule of law. It is important that the State
should be seen to lead the way in support of that fundamental principle -
particularly in the area of constitutional obligations. It is unjust that the
grievously handicapped, such as Jamie Sinnott, and their families should have
to struggle painfully for years to obtain their constitutional rights; that
they should have to contend with persistent obstruction and obduracy from
officialdom as the evidence in these actions illustrates and that in the end
they should be obliged to seek the aid of the courts as guardians of their
constitutional rights.
55. In
making the foregoing observations, I recognise that I should not trespass into
the realm of executive or administrative decision-making by the State in which
under the doctrine of separation of powers the Court has no function. However,
the evidence herein establishes that the difficulties encountered by Jamie
Sinnott and his mother in pursuing their rights against the State are
symptomatic of a widespread malaise. It seems to me that the Court as the
guardian of the constitutional rights of the citizen has a duty to criticise
the response of the State to such claims. In the instant case the grounds for
criticism are overwhelming. In my view the Court would be failing in its
responsibility as guardian of such rights if it did not allude to the perceived
problem areas which appear to have collectively contributed to the failure of
the State to honour its constitutional obligations to the plaintiffs which
comprise rights into the future as well as in the past. It is now a matter for
the State to assess the problem areas in its administrative and decision-making
structure which have brought about its failure to honour constitutional
obligations to the plaintiffs and other similiar claiments, and to remedy the
situation thus revealed as in its wisdom it deems most appropriate. Suffice it
to add that having regard to the hundreds of similar actions outstanding
against the State and the likelihood of many more in the future if the present
situation persists, it is obvious that such a review is imperative, not only
in the interest of those who otherwise would become future claimants seeking
constitutional redress against the State, but also in the interest of the State
exchequer to avoid or reduce a potentially massive liability for damages and
costs in such cases.
56. The
primary judicial authority relied upon by the plaintiffs in their respective
actions is the judgment of O'Hanlon J. in the High Court in
Paul O'Donoghue ( a minor) -v- The Minister for Health, the Minister for
Education, Ireland and the Attorney General [1996] 2 IR 20.
It is a major landmark in Irish constitutional law and jurisprudence. Paul
O'Donoghue's situation was broadly similar to that of Jamie Synnott. He was
born in 1984. At the age of 8 months he contracted an illness which left him
physically disabled and profoundly mentally handicapped. He resided in Cork
with his mother. His disability differs from Jamie's in that he is not
autistic. At the relevant time the COPE Foundation provided residential and
day-care services for disabled children. It was the only institution in the
Cork area which was equipped to offer full-time education facilities to
children with both physical disability and profound mental handicap. When the
applicant reached school age, his mother applied on a number of occasions to
have him admitted there as a pupil. These applications were refused on the
grounds that there were no vacancies and he was placed on a waiting list. His
mother cared for him at home and arranged private education at her own expense.
He benefited from and enjoyed the teaching which he received.
57. In
1992 the applicant, then 8 years old, instituted proceedings against the
respondents, seeking by way of judicial review an order of mandamus compelling
the first and second respondents to provide him with free primary education.
Shortly afterwards the applicant was informed that he would be provided with a
place at the COPE Foundation in the following September where he would be
educated in a group of 12 pupils by one teacher, assisted by care-workers.
58. In
the High Court it was submitted on behalf of the respondents, first, that such
efforts as were made to educate profoundly mentally handicapped children were
of no real or lasting benefit to them, and that the applicant was effectively
ineducable; secondly, that the education which the State was obliged to provide
pursuant to Article 42, s.4 of the Constitution was education of a scholastic
nature as exemplified in the curriculum for national schools, which could be of
no benefit to the applicant; thirdly, that such training as could be provided
for the applicant and as might benefit him could not be described as education
or primary education, and, fourthly, that the applicant, having been provided
with a place at the COPE Foundation, he had achieved the central relief sought
and that the instant proceedings were accordingly moot.
60. As
to the requirements referred to at 7 above, O'Hanlon J. concluded in the light
of the evidence of numerous expert witnesses on both sides that the
pupil/teacher ratio should be 6:1 and that in addition there should be two
assistants per group.
61. The
judgment includes an extensive review and analysis of world-wide developments
in the area of education for children who suffer from sever or profound mental
handicap. As the State now concedes the finding of O'Hanlon J. that such
persons are educable, it is unnecessary to reiterate in detail his analysis in
that regard. Suffice to comment that the learned judge traced developments in
that area from the report to the Government in 1965 of a commission of enquiry
into mental handicap which recommended establishment of a network of schools
for children suffering from mild and moderate handicap of that nature (which
was duly done). He also examined in depth the report of a subsequent
commission chaired by Mr. Sean Mac Glenoin, then Chief Inspector of the
Department of Education, (who also gave evidence). This report was published
in 1983 and is known as the "Blue Report". The commission concluded that
children who suffer from severe or profound mental handicap are educable in
special classes by appropriately trained teachers and that there should be a
PTR of 12:1 in that regard.
62. O'Hanlon
J. accepted the evidence of Professor James Hogg and others that the severe and
profoundly mentally handicaped are and have been for many years widely regarded
as capable of education in a real sense. He instanced developments in that
field in England, Wales, Scotland and the U.S.A., in all of which countries it
had been made compulsory by law to provide education for the severely and
profoundly mentally retarded. In bringing about the changeover from health to
education in that area, Professor Hogg had stated that considerable
international material had been available on the subject for many years. He
instanced the U.K. Change from Health to Education Report (1971), the Warnock
Report (1978) and many documents and Acts of Parliaments responding to these
developments.
63. Mr.
Jerry Buttimer, chief executive officer of COPE, gave evidence in the
O'Donoghue action that his Foundation was the only place in Cork catering for
those with profound mental and physical handicap. They had one teacher
provided under the Blue Report recommendations as of July, 1992 and at that
time they could cater for 12 pupils at most. He estimated that there were a
further 24 disabled children in the Cork area living at home for whom they were
unable to provide the necessary service and they were on a waiting list. COPE
had applied to the Department of Education in 1991 for more teachers but had
had no response. However, in 1992 when the O'Donoghue action was listed for
hearing, sanction was given for one additional teacher. As to back-up staff;
he expressed the opinion that at least four child care assistants were needed
i.e. two for each group of 12 children. When asked about the feasibility of
imparting education to severe and profoundly handicapped children Mr. Buttimer
stated "we would be convinced that they are capable of being educated - I have
been saying this for 20 years". [It is evident from Mr. Buttimer's evidence in
the O'Donoghue case that for upwards of 8 years the State had been dragging its
feet in the matter of implementing the basic recommendation in the "Blue
Report" which had been formally accepted by Government. More administrative
foot dragging continued for 5 years after the judgment of O'Hanlon J. and
persists to this day seven years later in relation to those, such as Jamie
Sinnott, who suffer from autism in addition to profound mental handicap].
64. Mr.
Mac Glenoin gave evidence in the O'Donoghue trial that his Commission
recommended a pilot scheme that should be set up for the education of severe or
profoundly mentally handicapped children. The pilot scheme was duly initiated
in 1986. A cadre of 19 special teachers were provided. The Department of
Education concluded in 1989 that the project was working reasonably well.
However, the scheme was not developed and was held back not only by Finance but
also by divisions of opinion between different interests and the need for the
full co-operation and support of two separate Departments of State - Health and
Education. [That problem too remains unresolved many years later although
evidence in the Sinnott case indicates that in recent times there has been some
movement in that area].
65. It
is also of interest that O'Hanlon J. quoted the following prophetic observation
in chapter 11, para. 141 in the report of the Commission of Inquiry into Mental
Handicap published in 1965;-
66. The
third Irish report considered by O'Hanlon J. was that published in 1990 which
was formulated by a review group on mental handicap services and is called the
"Lilac Report". He quoted with approval, inter alia, one of the important
conclusions which is recorded at p.35 of the report:-
67. In
course of his conclusions the learned judge adopted the definition of education
by O'Dalaigh C.J. in Ryan -v- The Attorney General [1965] IR 294 at p.350.
70. This
process will work differently for each a child, according to the child's own
natural gifts, or lack thereof. In the case of the child who is deaf, dumb,
blind, or otherwise physically or mentally handicapped, a completely different
programme of education has to be adopted and a completely different rate of
progress has to be taken for granted, than would be regarded as appropriate for
a child suffering from no such handicap.
71. The
State has hitherto responded generously to its obligations in relation to
virtually all of these categories of handicapped children, as has been
recognised in the reports already referred to, but has clearly lagged behind
many other developed countries in what has been undertaken on behalf of the
small but most seriously handicapped group of all - the category to which the
applicant in the present proceedings belongs. Admittedly, it is only in the
last few decades that research into the problems of the severely and
profoundly, physically and mentally handicapped has lead to positive findings
that education in a formal setting involving schools and teachers, educational
equipment of many kinds, and integration as far as possible in the conventional
school environment, can be of real benefit to children thus handicapped. But
once that has been established - and my conclusion is that it has been
established on a world-wide basis for many years past, then it appears to me
that it gives rise to a constitutional obligation on the part of the State to
respond to such findings by providing for free primary education for this group
of children in as full and positive a manner as it has done for all other
children in the community...I therefore come to the conclusion that the
education to which the applicant in the present case lays claim in reliance on
rights derived from the provisions of Article 42 of the Constitution can be
correctly described as 'primary education' within the meaning of that phrase as
used in Article 42, s.4."
74. I
adopt with respect the learned judge's definition of education and his
foregoing findings, including that relating to the right of the severely or
profoundly mentally handicapped to primary education provided for by the State
under article 42, s. 4 of the Constitution; the pupil/ teacher ratio and care
assistants ratio per group of six students.
75.
In
August, 1991 the then Minister for Education established the Special Education
Review Committee comprising a group of 22 experts which was charged with the
task of reporting and making recommendations on the educational position for
children with special needs, including the linkage which should exist between
the Department of Education and other Departments of State and the services
provided under their aegis. By coincidence, the report of that body was
furnished to the Minister almost coincidentally with the pronouncement of the
O'Donoghue judgment and it was published four months later in October, 1993.
76. The
Report contains much information of importance and value in the assessment of
the educational requirements of those who suffer from severe or profound mental
handicap.
78. In
a section dealing with Childhood Autism (pp. 140/142) it is observed in the
Report under a heading entitled "Nature of the Disability":-
79. It
is of particular interest and significance that the Review Committee
recommended a pupil/teacher ratio of 6:1 for pupils with autism who have been
identified in accordance with accepted criteria, with one Special Needs
Assistant for a class of 6, or 2 SNA where the students are also severly or
profoundly mentally handicapped. It will be observed that the foregoing
assessment is similar to that made by O'Hanlon J. in the O'Donoghue judgment
which, surprisingly, was appealed by the State. Not surprisingly the ground of
appeal that children who suffer from severe or profound mental handicap are not
educable was abandoned at the door of the Supreme Court on 6th February, 1997
as was opposition to the pupil/teacher and SNA ratios specified in the
judgement. It is impossible to avoid the conclusion that such grounds of
appeal were persisted in against an overwhelming tide of national and
international expert opinion without any hope of success on the appeal but with
the intention of delaying the implementation of the O'Donoghue judgment for as
long as possible. In the event, there was no compliance with it until 1998 -
5 years after the judgment. Even then nothing was done for those suffering
from autism. There is no doubt whatever that the judgment of O'Hanlon J. and
the Review Body Report in 1993 made it absolutely clear that the State had a
constitutional duty to provide for the primary education of those who suffer
severe or profound mental handicap and that performance of that duty was a
matter of urgency.
80. I
note that in their closing written submission counsel for the defendants have
again contended that Jamie Sinnott suffers primarily from severe or profound
mental handicap with an overlay of autistic tendencies or characteristics
(whatever that may mean). I have already commented on this persistent attempt
during the trial to downgrade the autism from which the plaintiff has patently
suffered since four months old and which has been well established by an
abundance of expert testimony and other evidence, including video film and
reports made by experts on Jamie's condition over the years, some of which have
emerged from the defendants' own discovery of documents. I have already
commented that counsel sought to make that case for the first time during the
trial when at a late stage Dr. Rita Honan was recruited to advise the
defendants. Based on insufficient research and investigation she has advanced
the "autistic tendencies" theory since espoused by counsel for the defendants.
Her evidence has been discredited and, as previously stated, I reject the
opinions expressed by her which are of no value in the light of the admittedly
inadequate investigation which she made. It is of interest that two experts of
high international repute, Professor Peter Mittler and Dr. Jean Ware, who gave
evidence for the defendants, and who had been advising them before trial, did
not challenge Jamie Sinnott's autism and were not invited to support Dr.
Honan's theories. As previously stated, in the light of the evidence I have no
doubt whatever that Jamie Sinnott suffers and has suffered since infancy from
profound mental disablement, physical disablement and severe autism. Which of
these conditions gave rise to which, and what connection, if any, there are
between them does not seem to me to be of significance in the context of the
primary education and training which Jamie requires. The autistic symptoms
which he has displayed over the years and continues to display are obvious,
numerous and seriously disabling per se. His history makes it abundantly clear
that his autistic symptoms require a specialist education and training by
experts in that sphere. The primary education which he needs includes features
which are irrelevant to other profoundly handicapped students who are not
autistic. He is the odd man out in his class at the Orchard - none of whom are
ambulatory or autistic. His autism, which is a major part of his disablement,
is not being addressed there because, as Mr. Buttimer has stated, COPE has no
staff trained in dealing with autism or facilities, such as speech therapy,
which is required in the treatment of that condition. Sadly, experience has
shown that the Orchard is not good for Jamie. I accept his mother's evidence
that he is regressing there. Nothing is being done by or on behalf of the State
to put matters right and to provide him with meaningful primary education
having regard to his particular needs either at the Orchard or elsewhere.
81. Two
arguments have been advanced on behalf of the defendants which comprise the
kernel of their case. The first deals specifically with age limitation and the
other with retrospection.
82. It
is argued that the constitutional obligation of the State under article 42, s.
4 to provide primary education for those who are severely or profoundly
mentally handicapped is a benefit which by implication applies only to children
and, therefore, ceases when the child reaches the age of 18 years. In that
regard reliance was placed on the definition of education by O'Dalaigh C.J. in
the Supreme Court in
Ryan
-v- Attorney General
[1965] IR 294 at 350 to which I have already referred. That definition was
recited with approval by O'Hanlon J. in O'Donoghue. In course of his judgment
he stated that education "constituted giving each child such advice,
instruction and teaching as would enable him to make the best possible use of
his inherent and potential capabilities, physical, mental and moral, however
limited these capacities might be".
83. The
issues which O'Dalaigh C.J. in Ryan and O'Hanlon J. in O'Donoghue were
addressing did not include the question which arises in Sinnott as to whether
the State's obligation to provide for free primary education under Article 42,
s. 4 is subject to an age-limit or may be open-ended in particular
circumstances. Neither had occasion to turn his mind to that matter. Each was
dealing with a problem relating to all minor children in Ryan and a minor child
of eight years of age in O'Donoghue. I do not accept that the foregoing
definitions of education import into Article 42, s. 4 an age limitation which
is not stated in the provision itself. It is also submitted that if the Court
interprets it as being open-ended in given circumstances, that amounts to a
declaration of an unspecified personal right under Article 40.s.3 which on the
facts is not justified. I accept that where the Court considers that a
particular personal right ought to be regarded as an unspecified constitutional
right that such a declaration amounts to a far-reaching exercise of judicial
authority which if not justified would amount to an abuse of judicial power.
The making of such a declaration opens up a difficult area of constitutional
jurisprudence. Happily in this case those potentially hazardous waters do not
require to be navigated by me. If Jamie Sinnott needs continuing primary
education and related services from the State probably for life, which I am
satisfied he does, it seems to me that his right to such services derives from
Article 42, s.4 of the Constitution and is not a newly found and declared
previously unspecified constitutional right. The sub-article enacts that "The
State shall provide for free primary education........ and when the public good
requires it, provide other educational facilities or institutions..."
84. As
already stated there is general agreement that Jamie Sinnott suffers from
severe or profound mental handicap with substantial autistic symptoms and has
done so since he was about four months old. I have pointed out already that the
only area of apparent disagreement is the relationship between his autism and
his profound mental handicap. No one contends that Jamie's autism does not
require specialist education, therapy and training by experts who are capable
of dealing with that condition. He will probably remain grievously afflicted
for the rest of his life, but if given appropriate education and ancillary
services his condition and the quality of his life can be significantly
improved. The education which he requires includes specialised instruction to
help him contend with his autistic symptoms. It also includes the ancillary
services such as speech therapy, occupational therapy, physiotherapy, job
training and general health care which are an integral part of the primary
education package which a disabled person such as Jamie Sinnott requires as a
minimum meaningful education and training. There is nothing in Article 42, s. 4
which supports the contention that there is an age limitation on a citizen's
right to on-going primary education provided by or on behalf of the State. It
is evident that the right to primary education would be fundamentally flawed if
narrowly interpreted as ending at an arbitrary age - eighteen years. It has
been conceded on behalf of the Minister for Education that Jamie Sinnott at
twenty-three years of age requires on-going primary education and training and
that he will probably continue to do so indefinitely. However, it is submitted
that his entitlement in that regard is not derived from Article 42 s.4.but, it
seems, is an undefined "right" which is likely to be granted to him only by way
of ministerial grace and favour. If the Oireachtas reduces the arbitrary
threshold into adulthood as it has done in the past (from 21 to 18 years) does
that entail also an arbitrary contraction of the citizen's constitutional right
to free primary education? That cannot be so. The Oireachtas has no power to
interfere with such rights - only the People by referendum may amend the
Constitution.
85. Jamie
Sinnott's history graphically underlines the importance of on-going education
and training from early childhood as advocated by the experts on both sides
which should continue for as long as it is required. It follows, therefore,
that in his case, and others like him, there is a fundamental need for
continuous education and training which is not age related. In my opinion, in
the absence of a specific provision in terms, it would be wrong to imply any
age limitation on the constitutional obligation of the State to provide for the
primary education of those who suffer severe or profound mental handicap. In
the light of the foregoing I am satisfied that the constitutional obligation of
the State under Article 42, s. 4 to provide and continue to provide for primary
education and related ancillary services for Jamie Sinnott is open-ended and
will continue as long as such education and services are reasonably required by
him.
86. In
the final analysis the defendants' contention that Jamie Sinnott, and others
who suffer from severe or profound mental handicap, have no constitutional
entitlement to primary education and ancillary services after the age of
eighteen years has no reality. In my opinion the ultimate criteria in
interpreting the State's constitutional obligation to provide for primary
education of the grievously disabled is "need" and not "age". If a child's
disability is such that he/she requires on-going specialist primary education
and training for life, then the obligation of the State to provide for that
service will continue into adulthood for the lifetime of the child. To cut off
a crucial educational life-line because a child has reached his/her majority
and to thereby condemn the sufferer to the risk of regression in hard earned
gains which have enhanced his/her life would amount to an appalling loss, the
effect of which might be to negative the advantages of the constitutional right
to education (if provided) enjoyed by the sufferer for many years during
infancy. The argument advanced on behalf of the defendants in support of the
submission that I am obliged to hold that Jamie Sinnott's constitutional right
to on-going education provided for him by the State ceased when he reached
arbitrary adulthood, even though unsupported by the wording of the Article 42
s.4, is fundamentally flawed for the foregoing reasons. Such an interpretation
would create an obvious constitutional injustice.
87. Notwithstanding
the defendants' contention that there is no constitutional obligation to
provide continuing primary education for Jamie Sinnott after he reached
adulthood, a form of continuing education has been provided for him at the
Orchard in consequence of this litigation. However it does not meet the
State's obligation under Article 42, s. 4 and no alternative service has been
made available to him. I have already referred to the inadequacies of the
purported form of education which he is presently receiving at the Orchard. I
note that there are plans to provide an adult educational service there for
those suffering from severe or profound mental handicap, including autism,
which may eventuate in or about two or three years time. No firm plans are yet
in being. If and when such a service does come on stream it may meet Jamie's
on-going educational and related requirements. In the meantime the
constitutional obligation of the State to provide for his continuing primary
education should be met by the provision of sufficient funds for an alternative
system of primary education, therapy and training which is suitable to his
needs and such funding should continue, at least on an interim basis, pending
the outcome of the possible developments at COPE.
88. The
O'Donoghue judgment was delivered on 27th May, 1993. Jamie Sinnott first
obtained treatment for his disabilities at Chicago in October, 1981. He reached
the age of eighteen years on 11th October, 1995 and his action commenced on 6th
January, 1997. His mother's action commenced on 17th December, 1996.
89. It
was submitted on behalf of the defendants that Jamie's claims are tortious in
nature. It is alleged that the "tort" in question did not exist until
established by the O'Donoghue judgment and therefore the question of
retrospection beyond the date of that judgment cannot arise. In support of
that contention the State relied upon the judgments of the Supreme Court in
Murphy
-v- Attorney General
[1982] IR 241;
McDonnell
-v- Ireland
[1998] 1 IR 135, and judgments of the European Court of Justice in
Defrenne
-v- Sabena
[1976] ECR 455 and
Barber
-v- Guardian Royal Exchange
[1990] ECR 1 - 1889. The judgment in Murphy declared unconstitutional certain
provisions of the Income Tax Act, 1967 relating to the taxation of married
women in a manner that failed to respect their rights under the Constitution.
The effect of the judgment was that the relevant provisions in the statute are
deemed to be void from enactment. None-the-less, the Supreme Court held that
other claimants who had not commenced proceedings prior to the judgment in
Murphy are not entitled to mount claims retrospectively. Counsel for the
defendants submitted that by analogy with Murphy the constitutional right of
those suffering from severe or profound mental handicap to the provision of
primary education by the State was created by the O'Donoghue judgment and no
claimant was entitled to maintain a retrospective claim prior to the date of
that judgment. Accordingly, it was argued that Jamie Sinnott could maintain a
claim under Article 42, s. 4 only from 27th May, 1993 until his eighteenth
birthday in 1995. In my opinion that argument is not well founded. A crucial
distinction between the particular facts in Murphy and the circumstances of
O'Donoghue is that in Murphy the Supreme Court struck down a provision of the
Income Tax Act, 1967 which until then had a presumption of legality. In
O'Donoghue, O'Hanlon J. did not create a new right but declared that the
obligation of the State to provide for primary education under Article 42, s. 4
of the Constitution applies to all citizens and that those who suffer from
severe or profound mental handicap are not excluded form the constitutional
benefit of appropriate primary education. That right has existed from the
enactment of the Constitution in 1937 and failure to honour it has sounded in
damages at least from the early 1970's when expert opinion widely accepted that
those who suffer grievous mental disablement are capable of and would derive
benefit from appropriate primary education. In short, Jamie Sinnott is not
availing of a new right and cause of action which did not exist prior to the
O'Donoghue judgment in 1993. The right which he enjoys existed from the time
when he was diagnosed and treated in Chicago in October, 1981 and it remains
on-going into the future. His entitlement to damages for breach of that right
does not spring from the O'Donoghue judgment, the effect of which was to
underline an existing right - not to create a new one.
90. McDonnell's
case deals with the enforcement of constitutional rights and contains the
following passage from the judgment of Keane J. (as he then was) at pp. 158/159.
91. I
think that paragraph is perfectly consistent with the constitutional right
being protected by a new form of action in tort, provided, of course, the form
of action thus fashioned sufficiently protects the constitutional right in
question.
92. Nor
do I see any conflict between that view and the passage in the judgment of
Henchy J. in Hanrahan -v- Merck Sharp and Dohme (Ireland) Ltd [1988] 1 I.L.R.M.
629 on which counsel for the plaintiff relied. The learned judge pointed out at
p. 636:-
93. Later
at p. 160 having referred to policy considerations which underlie statutes of
limitation such as the Act of 1957, the following pithy observation was made:-
94. Barrington
J. in McDonnell's case on the topic of dual causes of action i.e.
constitutional and at common law, referred by way of example to a citizen's
constitutional right to his/her good name which also has the protection of the
law of defamation. He stated that in such circumstances the victim is obliged
to avail of his remedy in ordinary law which entails being bound by the
appropriate limitation period.
96. Her
claim is also based on breach by the State of constitutional rights enjoyed by
her and there is no corresponding right in ordinary law. Defence counsels'
submission dated 8th February, 2000 seems to concede by inference that Mrs.
Sinnott has constitutional rights relating to the duty of the State to provide
for appropriate primary education for her son, Jamie. The case made against her
is essentially concerned with retrospection and also a contention that her
claim relates to rights created by the O'Donoghue judgment delivered on 17th
May, 1993. As her action did not commence until 17th December, 1996 it is
contended that it is barred under section 11(2) of the Statute of Limitations,
1957. In my opinion the latter submission is unfounded.
97. In
essence Mrs. Sinnott's constitutional rights vis-á-vis the State may be
summarised as follows:-
98. There
is one other aspect of the State's obligations under the foregoing provision
which requires to be addressed. In stipulating that the State shall provide
for
free primary education, the concept envisaged included a continuance of the
structure which existed in 1937 when the Constitution was enacted on foot of
which education was provided by non-state bodies, notably religious
institutions, which were funded in whole or in part by the State. As previously
stated, the latter does not have a constitutional obligation to provide
education directly but may rely on other appropriate bodies to supply that
service on its behalf. However, when the State elects to take that course in so
doing it does not water down it's obligation under sub-article 4. In my opinion
it retains primary responsibility for the nature and quality of the educational
service which is provided on it's behalf. If that were not so then the State
could shelter behind third party incompetence in a given case and seek to avoid
constitutional responsibility for not providing a citizen with appropriate
primary education.
99. Finally,
one other point has been taken by counsel on behalf of the defendants relating
to Mrs. Sinnott's action. It is contended that she had no justification for
bringing separate proceedings from that of her son. Such an argument would have
substance if two separate actions were tried. However, in fact both actions
were listed together and for practical purposes I have treated them as one and
that will be reflected in due course in the matter of costs.
100. Having
reviewed all of the evidence adduced at the trial, I am satisfied that the
following conclusions which are summarised hereunder emerge beyond reasonable
controversy in the light of the established facts:-
103. Failure
to provide necessary ancillary services, in particular speech therapy;
occupational therapy; physiotherapy; and music therapy.
106. Failure
to devise, revise and keep in operation a viable programme for Jamie's
education and training and to do so in consultation with his mother.
107. Failure
to keep adequate records of his education, training and treatment. Failure to
keep his mother adequately informed of her son's progress and of intended plans
for his education and training.
111. Failure
to address and provide instruction and treatment for his on-going drooling
problem which is and has been a major difficulty for the plaintiff since
infancy and a source of continuing distress.
112. Failure
to provide him with any occupational training which might enable him to obtain
meaningful sheltered employment.
113. Failure
to provide for Jamie a teacher and other ancillary experts who are trained in
autism and familiar with its problems.
114. Failure
to establish and maintain reasonable co-ordination between the Orchard and Mrs.
Sinnott.
115. Placing
Jamie in an institution (the Orchard) which is unsuitable to his requirements
and positively harmful to him by creating a climate for regression.
116. Failure
to supervise adequately the services for Jamie Sinnott which the State
contracted with the COPE Foundation and others to provide on its behalf from
time to time.
117. Failure
to take any adequate steps to ensure that such services were structured in a
meaningful, appropriate way.
118. Failure
to provide its contractors with the resources necessary to meet the
constitutional obligation of the State to educate the plaintiff and to meet his
special needs having regard to his particular disabilities as a person who
suffers and has suffered from severe autism since the age of four months and
major physical and mental handicap.
119. Both
plaintiffs are entitled to the declarations which they claim in their
respective Statements of Claim and to damages arising out of breach of their
constitutional rights, negligence and breach of duty by the State in that
regard. In Jamie Sinnott's case further damages may be awarded on review of
his situation in April, 2003. The mandatory injunction claimed in each action
shall be considered by the Court as part of the foregoing review, but, if
necessary, the plaintiffs shall have liberty to make earlier application in
that regard.
121. As
to the cost of future education and training; I have already stated that I
accept the unanimous opinion of the experts on both sides that Jamie is
educable and is entitled to continuing education and training for so long as
may be reasonably necessary in his particular circumstances. The expert
assessment is that he will probably require such services for life and I note
that that point has been conceded by Mr. Ryan. The plaintiff's rights in that
regard are not limited by age. Expert opinion also indicates that it is
probably too late now for Jamie Sinnott to achieve optimum results from
education and training. The consensus view is that, none-the-less,
substantial progress is likely if he receives the benefit of appropriate
teaching and services. In the interest of justice it is proper that he now
should have the best available primary education and training so that he may
have the maximum prospect of making up lost ground and thus limiting the degree
of permanent damage which he has suffered through the defendants' breach of
duty. I have been much impressed by the evidence of Mr. Alan Willis about the
ABA (Applied Behaviour Analysis) home-based programme for sufferers from autism
which is presently being successfully pioneered in England. I note that it
has a methodology broadly similar to that of CABAS and the Disfunctioning Child
Centre at the Michael Reese Hospital, Chicago. It comprises an intensive
'one-to-one' education programme at home supported by a multi-disciplinary team
comprising speech, physio, occupational and music therapists together with
general medical care. Mr. Willis advises that the course should continue for
two to three years followed by a review of progress. If necessary the experts
required for providing the programme may be recruited in England or elsewhere.
The estimated annual cost is about £21,000 stg. Allowing for the present
currency differential the equivalent annual cost in Irish currency is
approximately IR £28,000 p.a. Bearing in mind that there appears to be
some tentative plans for providing a centre at COPE, for continuing education
of autistic adults which might prove suitable for Jamie, it seems to me that an
equitable way of dealing with his future education and training is to have
provided by the State a fund for a two and a half year ABA programme as
envisaged by Mr. Willis. Towards the end of that period Jamie should be
assessed and,
inter alia
,
due regard should be had to the possibility that a place may be available to
him at a centre for autistic adults in COPE if one exists at that time and it
offers a suitable on-going programme of education and therapy run by a
sufficient number of appropriately trained and qualified experts. In short,
it may transpire then that the State is in a position to offer Jamie acceptable
on-going education and training at the proposed new centre in COPE or, in the
absence of such a facility, it may be necessary for him to embark on a further
ABA programme or some similar alternative regime. In the latter event, of
course, it also would be necessary for this Court to award further damages to
cover the cost of any additional programme which may be required. It occurs to
me that during the ABA 'one to one' programme Jamie may make sufficient
progress to enable him to attend from time to time a FAS training workshop
leading to meaningful sheltered employment. I envisage that such work
instruction would be in tandem with the ABA programme.
122. There
is another element of potential further loss which Jamie may suffer i.e.
earnings from sheltered employment if it transpires that through protracted
delay in his education he is unable to learn sufficient skills now to open up
that possibility. On reflection, it seems to me that such a potential loss is
too speculative to establish its likelihood on the balance of probabilities.
129. As
Jamie Sinnott is of unsound mind, application should be made at an early date
to the President of the High Court to bring the plaintiff into wardship and to
administer the damages awarded to him.
130. The
breach of duty of the State in failing to honour its constitutional obligations
to Jamie and to her has given rise to a corresponding loss suffered by his
mother and primary carer which also will have some on-going effect into the
future. She has had the anguish of seeing substantial progress made by Jamie
frittered away through the failure of the State over and over again to respond
meaningfully to his needs. She has seen time, a vital commodity for Jamie,
squandered by bureaucracy. It appears that she has worn herself quite
literally to the bone struggling on behalf of her son. Her heroic efforts to
have education and care provided for him have dominated her life to a degree
far greater than in all probability would have been the case if the State had
honoured its obligations to Jamie and to her. She has been subjected many
times over the years to the lack of understanding of an apparently
disinterested bureaucracy. She has had to contend with the distress and
indignity of having to deal with various problems of a child, now a man, which,
if the State had provided appropriate services when required, probably would
have been resolved many years ago - not least of these are his present lack of
mobility, persistent frequent drooling and the continuing need for diapers at
the age of 23 years. I have no doubt that all of these elements of avoidable
anguish in Mrs. Sinnott's life are consequences of the State's breach of duty
in failing to honour its constitutional obligations to Jamie and to her. She
has responded to that failure with indefatigable love, courage and devotion but
at great personal cost. In that regard she is following in the footsteps of
Mrs. Marie O'Donoghue and Mrs. Annie Ryan who gave evidence at this trial and
many other heroic parents of grievously disabled children who have had to
contend with similar difficulties. The State's breach of duty and failure to
honour its constitutional obligations has also created distress which for the
reason explained in Jamie's case will continue indefinitely, albeit to a lesser
degree, even if his future education is reasonably successful.
131. As
to damages; I note that specials (which include Jamie's case also) have been
agreed at £15,000.
132. It
is difficult to assess compensation for a devoted mother's overlay of distress
and anguish in a case like this and for the burden of unnecessary work
inflicted on her over the years both as a carer and in her struggle trying to
achieve Jamie's rights from a reluctant beaucracy. If, like him, Mrs. Sinnott
was entitled to compensation from October, 1981, I would have awarded her
general damages of £80,000 from then until now. However, as she is
entitled to compensation only for the wrong done to her from 17th December,
1993, there must be a substantial reduction in that amount. She is entitled to
a modest sum for probable continuing distress in the future arising out of the
loss of time which militates against Jamie making the degree of progress which
he probably would have made if he had received from the State early primary
education and training. That situation casts at least a minor cloud over Mrs.
Sinnott's future (including on-going avoidable work) which ought not to be
there and for which in my opinion she is also entitled to compensation.
137. The
conscious, deliberate failure of Finance administrators to pay due regard to
and take effective steps to honour the obligations of the State to Jamie
Sinnott on foot of the O'Donoghue judgment opens up an issue as to whether
punitive damages should be awarded against the defendants. As that point was
not argued, I do not propose to pursue it in this judgment. However, it is
proper to lay down a marker that the issue of punitive damages will arise if it
transpires in future litigation that this warning is not heeded and
decision-makers persist in failing to meet the constitutional obligations of
the State to the grievously afflicted and deprived in our society with the
urgency which is their right.