FAMILY DIVISION
Strand, London, WC2A 2LL |
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B e f o r e :
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WARWICKSHIRE COUNTY COUNCIL |
Applicant |
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- and - |
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MOTHER |
First Respondent |
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and |
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FATHER |
Second Respondent |
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and |
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JR (a child, through the Children's Guardian) |
Third Respondent |
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Mr Stephen Crispin (instructed by Alsters Kelley) for the First and Second Respondents
Mr Nick Flatt (instructed by Sills & Betteridge) for the Third Respondent
Hearing dates: 1 March 2024
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Crown Copyright ©
Mrs Justice Lieven DBE :
Dr Bryn Williams' report
"3.19. Young people with NVLD often present as socially able but with many other features consistent with autism, and the issues, behaviours and experiences of a child with NVLD often manifest in the same way as more typical autism. Some in the UK, including the National Autistic Society, see NVLD as a subtype under the autistic umbrella.
3.20. I have little doubt that ASD, ADHD, Sensory Integration difficulties, anxiety, conduct disorder are all entirely appropriate, and I am somewhat reluctant to bring another player onto the field. However, in my clinical experience, particularly in the field of neurodevelopmental work with adopted children, we fail a young person is we do not link their problems back to probable cause. Whilst developmental trauma is likely to have played an incremental role in the development of [JR's] difficulties, neither can we ignore where we started. A highly probable exposure to drugs and particularly alcohol during the pre-natal stages of his development. I would argue that the conditions set out in the first sentence of this paragraph are symptoms of his underlying neurodevelopmental presentation.
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3.22. We have to understand much of [JR's] problems within the context of anxiety that results from experiencing the world in this way can be crippling, and this may explain why [JR] struggles so much with anxiety. …
3.23. As well as identifying [JR's] non-verbal learning disability, the assessment highlighted that verbal parts of the brain are stronger than the non-verbal parts, as we see clearly in his cognitive assessment. He may appear bright and able, but because of anxiety, non-verbal weaknesses, inattention, sensory integration (and in some cases, social and behaviour problems) problem solving and thinking through the consequence of actions with teachers, carers parents and peers alike is chaotic and fragmented.
3.24. One of [JR's] greatest strengths is that he is a warm and engaging young person, but his difficulties nevertheless have a hugely negative impact on his day-to-day coping. Rourke, who first described non-verbal difficulties, recognised that extreme psychological problems was a key feature of the children he was describing. From clinical experience, this is not anxiety that many of us would recognise. The metaphor of the glass elevator from Charlie and the Chocolate Factory comes to mind when helping a child with NVLD cope with anxiety – it does not just go up, it bursts through the roof in a completely irrational and uncontrollable way, and it remains paralyzing unless we intervene. His behaviour is functional insofar as it enables him to cope, the problem is that it is so destructive to both him, his family and, at times, his carers. [JR] externalises his difficulties.
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3.26. In the context of this assessment there is another emerging concern that appears to be increasing in clinical cases coming into clinical practice and in particular from the Family Courts. It is my own family law experience that children with DOLs commonly present with neurodiversity. I trust the Court will forgive me setting out a psychological position that may be of some assistance in understanding [JR's] presentation. At [JR's] age it is common for there to be an interruption in the normal development of 'identity' at this sensitive time of life, as described by Erikson many years ago.
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3.34. I would much prefer at present to focus on what I believe is likely to have been the cause of his poor regulation, namely something that compromised his neurodevelopment. It may have been substance misuse, but this remains equivocal. The NVLD is self-evident, not only in terms of cognitive strengths and weaknesses, but the social, sensory, attentional, rigidity of thinking, anxiety and communication strengths and difficulties. It is this that I believe needs to be placed at the centre of his identity formation, working out who [JR] is, not what he is."
"3.46. In general, across all environments there needs to be a strategic Approach – First and foremost, young people with non-verbal weaknesses have strengths and the most important recommendation is to find those strengths, to build on them, use them, cherish and celebrate them. Finding a place for [JR] in the world has to be a long-term priority and using his strengths will help him achieve this to the best of his ability. It is so normal for us to focus on what is going wrong, but we are more likely to succeed if we focus on what is good and right. For example, quite often [JR's] left brain is working far more efficiently than his right brain, so be creative, verbal, and use his strengths to master any weaknesses. I observed him talking to himself frequently during the assessment. This is a key marker for everyone that he needs to talk about everything to be able to process and problem solve those things that are expected of him.
3.47. Managing [JR's] Anxiety – Perhaps the greatest challenge for [JR] is coping with his anxiety, which has grown to such an extent he sometimes feels quite self-destructive. Engaging [JR] in psychological therapies to manage anxiety is likely to be necessary, and the most effective approach from clinical experience appears to be helping him to maintain a close, stable and reliable relationship with a therapist who he can revisit when necessary, supported by attuned parenting and a special person at school. Short-term, one-off interventions are less helpful unless they are augmented by repeated intervention and a solid therapeutic relationship. He will struggle to retain what he has learned, but do not give up."
The Nuffield Family Justice Observatory Report on Principles of Care
"What do we mean by 'complex needs and circumstances'?
We use the phrase 'children with complex needs and circumstances' to refer to children with multiple, overlapping difficulties that are not being met by the services and systems collectively responsible for their care and safety. This includes the many children who are deprived of their liberty due to concerns about their well-being, and who are placed in unregulated settings because there is nowhere else for them to go. These children have multiple emotional and behavioural needs that are often associated with experiences of early and ongoing childhood adversity (such as abuse and neglect, but also poverty and racism) and complex trauma. There may have been repeated failures by children's services, mental health services and education services to provide them with effective help. The children's behaviour may cause significant risk to others (e.g. physical aggression) and to themselves (e.g. self-harm), which is very challenging to manage at home and in residential settings. They often have overlapping difficulties with mental health, emotion regulation, neurodevelopmental conditions (e.g. autism and ADHD), risk of exploitation, and missing education. It is often the combined impact of these multiple, intersecting (and mutually synergistic) needs – rather than the impact or 'severity' of any individual risk factor – that increases a child's vulnerability, and that systems struggle to effectively respond to."
5 Principles of Care | What children currently experience |
1. All children need valued, trusted relationships. They should be actively supported to maintain relationships with people that are important to them. |
Perpetually disrupted, often temporary, non-robust relationships with insufficient attention paid to the relationships that children identify as important to them. |
2. Every child should have a holistic, multidimensional, high-quality assessment of their mental health, social care, education, and well-being needs. This should be followed by a detailed formulation and plan of the interventions and support required to address the child's short, medium, and long-term needs. This should be co-produced with the child and their family. |
Repeat assessments that are siloed. No holistic care. Undiagnosed and unmet treatable mental health needs. |
3. Long-term support that is tailored to the child's needs: Services and professionals working with the child should be flexible and dynamic, and able to respond to changing circumstances. All decisions about a child's care should explicitly consider their short, medium, and long-term needs. |
Short term crisis interventions, focused on managing risk rather than supporting healthy development. Services unable to flex to changing circumstances. |
4. Children should be supported by experienced staff within multidisciplinary teams who are highly attuned to their needs. Staff with such skills should be the most highly trained, rewarded and valued in the children's sector. |
Poorly paid and undervalued staff, often inexperienced. Services in dispute over who has responsibility for a child. |
5. Children should be able to express a view about what happens to them and be listened to. Decisions should be clearly communicated to them and (if safe to do so) their family. |
Children have limited agency in their day-to-day lives and decisions made about them. |
Conclusions