FAMILY DIVISION
Strand, London, WC2A 2LL |
||
B e f o r e :
____________________
A Hospital Trust |
Applicant |
|
and |
||
A Mother and A Father and A Local Authority and P, by her children's Guadian |
Respondents |
____________________
Mr Nicholas Stonor KC and Miss Sarah Kilvington for the mother
Miss Jacqueline Thomas KC and Miss Kalsoom Maqsood for the father
Miss Lorraine Cavanagh KC and Miss Lauren Maires for the local authority
Mr Michael Gration KC and Miss Natalie Oakes for P by her children's Guardian.
Hearing dates: 7 and 8 February 2024
____________________
Crown Copyright ©
Mrs Justice Knowles:
Introduction
Background
The Proceedings
The Law
"The following key principles can be drawn from the authorities, in particular In Re J (A Minor) (Wardship: Medical Treatment) [1991] Fam 33, R (Burke) v General Medical Council [2005] EWCA 1003, An NHS Trust v MB [2006] 2 FLR 319, Wyatt v Portsmouth NHS Trust [2006] 1 FLR 554, Kirklees Council v RE and others [2015] 1 FLR 1316 and Yates and Gard v Great Ormond Street Hospital for Children NHS Foundation Trust [2017] EWCA Civ 410:
i) The paramount consideration is the best interests of the child. The role of the court when exercising its jurisdiction is to take over the parents' duty to give or withhold consent in the best interests of the child. It is the role and duty of the court to do so and to exercise its own independent and objective judgement.
ii) The starting point is to consider the matter from the assumed point of view of the patient. The court must ask itself what the patient's attitude to treatment is or would be likely to be.
iii) The question for the court is whether, in the best interests of the child patient, a particular decision as to medical treatment should be taken. The term "best interests" is used in its widest sense, to include every kind of consideration capable of bearing on the decision, this will include, but is not limited to, medical, emotional, sensory and instinctive considerations. The test is not a mathematical one, the court must do the best it can to balance all of the conflicting considerations with a view to determining where the final balance lies. Within this context the wise words of Hedley J in Portsmouth NHS Trust v Wyatt and Wyatt, Southampton NHS Trust Intervening [2005] 1 FLR 21 should be recalled:
"This case evokes some of the fundamental principles that undergird our humanity. They are not to be found in Acts of Parliament or decisions of the courts but in the deep recesses of the common psyche of humanity whether they be attributed to humanity being created in the image of God or whether it be simply a self-defining ethic of a generally acknowledged humanism."
iv) In reaching its decision the court is not bound to follow the clinical assessment of the doctors but must form its own view as to the child's best interests.
v) There is a strong presumption in favour of taking all steps to preserve life because the individual human instinct to survive is strong and must be presumed to be strong in the patient. The presumption however is not irrebuttable. It may be outweighed if the pleasures and the quality of life are sufficiently small and the pain and suffering and other burdens are sufficiently great.
vi) Within this context, the court must consider the nature of the medical treatment in question, what it involves and its prospects of success, including the likely outcome for the patient of that treatment.
vii) There will be cases where it is not in the best interests of the child to subject him or her to treatment that will cause increased suffering and produce no commensurate benefit, giving the fullest possible weight to the child's and mankind's desire to survive.
viii) Each case is fact specific and will turn entirely on the facts of the particular case.
ix) The views and opinions of both the doctors and the parents must be considered. The views of the parents may have particular value in circumstances where they know well their own child. However, the court must also be mindful that the views of the parents may, understandably, be coloured by emotion or sentiment. There is no requirement for the court to evaluate the reasonableness of the parents' case before it embarks upon deciding what is in the child's best interests. In this context, in An NHS Trust v MB Holman J, in a passage endorsed by the Court of Appeal in Re A (A Child) [2016] EWCA Civ 79, said as follows:
"The views and opinions of both the doctors and the parents must be carefully considered. Where, as in this case, the parents spend a great deal of time with their child, their views may have particular value because they know the patient and how he reacts so well; although the court needs to be mindful that the views of any parents may, very understandably, be coloured by their own emotion or sentiment. It is important to stress that the reference is to the views and opinions of the parents. Their own wishes, however understandable in human terms, are wholly irrelevant to consideration of the objective best interests of the child save to the extent in any given case that they may illuminate the quality and value to the child of the child/parent relationship."
x) The views of the child must be considered and be given appropriate weight in the light of the child's age and understanding."
"Hence the focus on whether it is in the patient's best interests to give the treatment rather than whether it is in his best interests to withhold or withdraw it. If the treatment is not in his best interests the court will not be able to give its consent on his behalf and it will follow that it will be lawful to withhold or withdraw it. Indeed, it will follow that it will not be lawful to give it. It also follows that (provided of course they have acted reasonably and without negligence) the clinical team will not be in breach of any duty towards the patient if they withhold or withdraw it".
"The most that can be said therefore, is that in considering the best interests of this particular patient at this particular time, decision-makers must look at his welfare in the wider sense, not just medical but social and psychological; they must consider the nature of the medical treatment in question, what it involves and its prospects of success; they must consider what the outcome of that treatment for the patient is likely to be; they must try and put themselves in the place of the individual patient and ask what his attitude towards the treatment is or would be likely to be; and they must consult others who are looking after him or are interested in his welfare, in particular for their view of what his attitude would be."
The Medical Evidence
Analysis
Conclusion
Postscript
P's treatment was discontinued at about 12.10 on 9 February and she died at 18.48 later that same day. Her parents were with her until the end.
The court records its immense gratitude to the medical and nursing staff who have cared for P with such dedication. It also wishes to thank the prison staff who have supported the mother throughout with great compassion and humanity. The police should also be commended for their pragmatic approach to the necessary criminal justice formalities consequential on P's treatment being discontinued and her death. The court also thanks the social work team who have gone above and beyond what might have been expected to provide a humane response to P's parents. Finally, the court expresses its gratitude to the interpreters who attended court and assisted the parents to communicate but went beyond this in agreeing to help in whatever way they could to facilitate parental contact at the hospital later on 8 February and also on 9 February.