FAMILY DIVISION
Strand, London, WC2A 2LL |
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B e f o r e :
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A HEALTHCARE | ||
B NHS TRUST | Applicants | |
and | ||
(by his litigation friend, the Official Solicitor) | Respondent |
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Mr David Lock QC (instructed by the Official Solicitor) for the Respondent
Hearing dates: 20 February 2020
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Crown Copyright ©
Mrs Justice Lieven DBE :
Introduction
The Issues
i) Whether CC can be treated under section 63 of the MHA; the renal failure and refusal to accept dialysis being said to be a manifestation of his mental disorder;ii) Whether section 63 cannot be relied upon by the Applicants because of section 58 MHA;
iii) Whether in any event CC can be given dialysis pursuant to the Mental Capacity Act 2005 ('MCA 2005') because he does not have capacity to make the relevant decision;
iv) If CC has fluctuating capacity, whether a declaration can still be made under the MCA 2005.
CC's medical history
Mental health
24 Sep 2014 CC admitted informally to Bluebell Ward, Springfield Hospital, with a diagnosis of depression with psychotic features.
23 Mar 2015 CC detained under section 2 and then section 3 MHA 1983 at Springfield Hospital.
11 May 2015 CC admitted to X Ward, A Healthcare, where he has remained to date.
'The symptoms of [CC]'s psychotic depression are that he has sustained periods of very low mood which are accompanied by psychotic symptoms including hands signing in free space (which is a Deaf equivalent of hearing voices in a hearing person) and receiving command hallucinations from his dead grandmother. He has also had persecutory beliefs that people are trying to kill him or his family. When he is depressed he very significantly neglects his own wellbeing including by refusing treatment for his physical health problems.
The symptoms of [CC]'s personality disorder are that he finds it very difficult to control his emotions, particularly his anger, and his behaviour. This can lead to him becoming very easily agitated and very aggressive or abusive when he is agitated. He has significant difficulties in thinking through his actions and in particular accepting short term discomfort in order to achieve his long term goals. His personality disorder makes it exceptionally difficult for him to make any decision considering information other than the here and now. [CC]'s personality disorder leads to him depending very significantly on others to contain his distress and manage his problems for him. Historically this has been a dependence on his mother to do these things for him, and currently he projects this onto staff working with him as well as his family. [CC]'s personality disorder leads him to refuse treatment of his physical health problems as he is not able to weigh up the short term impact of having treatment that he does not immediately want, against his long term goal of staying alive'.
'[CC]'s risk to his own health is very significant. He has incredibly poorly controlled diabetes and is dependent on dialysis to stay alive. He actively undermines attempts to manage both of these conditions and regularly refuses treatment for them. He interferes with dialysis machines while he is undergoing dialysis and has turned off a dialysis machine while it was running which we have been advised could have led to his sudden death.
[CC]'s understanding of his diabetes and how to manage it is very limited. Whilst on Bluebell Ward he would snack on sweets which he would conceal from staff resulting in his blood sugars being very variable. His diabetes control has been so poor for so long that he has significant physical sequalae of these including his poor eyesight, renal failure, and severe impairment to his mobility due to him developing an infection in a muscle in his leg which had to debrided …'
'The degree of [CC]'s personality disorder is that he is self neglecting to an extreme level currently which places him at imminent risk of death due to his refusal of dialysis and other lifesaving treatments on a regular basis. He is extremely argumentative and abusive towards staff. He is very impulsive and puts himself at serious risk of harm as a result such as when he has turned off a dialysis machine while he was having active dialysis at the time. He is very skilled at subverting security and does this to get immediate gratification regardless of the longer term harm he does to himself or other'
Physical Health
Capacity
'[CC] has had many assessments of his capacity to make decisions regarding dialysis. These have been undertaken by many clinicians including myself and his renal consultant [Dr P]. At best [CC] has fluctuating capacity; when he is mentally well and compliant with dialysis he has had capacitous discussions with [Dr P] in which he has been able to understand, retain, and weigh up the relevant information and communicate a decision. When this has happened he has consented to dialysis and engaged in appropriate discussions about future care planning such as his desire to switch to peritoneal dialysis.
When [CC] is stressed or physically unwell, particularly if he has gone several days without dialysis he does not have capacity to make decisions about dialysis. When this happens he is unable to understand, retain, or weigh up the relevant information, and at times will refuse to communicate any decision. This includes when he becomes psychotic.
In January 2020 [CC] capacitously asked that he be restrained in future if he lacks capacity and is refusing lifesaving treatment as he does not want to die and recognises that when he becomes ill or confused he does not accept treatment that he would accept when capacitous.
Following extensive discussions between myself, [Dr P], the [X Ward] MDT, [CC], [CC]'s family, and [CC]'s IMHA, it is my opinion that it is in [CC]'s Best Interests to have dialysis, under restraint/sedation if it is necessary to prevent imminent death and he is refusing dialysis for as long as he is clear and consistent that he does not want to die. If he makes capacitous statements that he wants to die, or lacks capacity but is consistent in stating that he wants to die, his Best Interests need to be re-assessed.
The purpose of ensuring that [CC] has dialysis, even if he is refusing it, is so that his long held desire to stay alive is met, and to enable him to stay alive long enough to receive a renal transplant which will very significantly improve the length and quality of his life'
With some further discussion [CC] was also able to say that if he didn't continue to have dialysis he "… would, not could, would die". I asked him how he felt about that. He said "I don't want to die" and said that he was afraid of dying. I asked him how he thought his family would feel if he got poorly or died. [CC] said that they would be "… very upset … devastated … very sad" and that he would not want to cause them that hurt and so, if for that reason only, he would continue having dialysis. "100% it's my intention to carry on having dialysis" he said.
He was reluctant to accept the possibility that he might refuse it but said that "… if I did, I won't but if I did, I would want to be restrained and have it given to me. I've said that before. It's the right thing. I've had discussions about it".
Issue One: The Mental Health Act 1983
Section 63
The consent of a patient shall not be required for any medical treatment given to him for the mental disorder from which he is suffering, not being a form of treatment to which section 57, 58 or 58A above applies, if the treatment is given by or under the direction of the approved clinician in charge of the treatment.
Section 145(4)
(4) Any reference in this Act to medical treatment, in relation to mental disorder, shall be construed as a reference to medical treatment the purpose of which is to alleviate, or prevent a worsening of, the disorder or one or more of its symptoms or manifestations.
Section 58(1)(b) and (3)
(1) This section applies to the following forms of medical treatment for mental disorder—
…
(b) the administration of medicine to a patient by any means (not being a form of treatment specified under paragraph (a) above or section 57 above [or section 58A(1)(b) below]1) at any time during a period for which he is liable to be detained as a patient to whom this Part of this Act applies if three months or more have elapsed since the first occasion in that period when medicine was administered to him by any means for his mental disorder.
…
(3) Subject to section 62 below, a patient shall not be given any form of treatment to which this section applies unless—
(a) he has consented to that treatment and either the [approved clinician in charge of it] or a registered medical practitioner appointed for the purposes of this Part of this Act by the regulatory authority has certified in writing that the patient is capable of understanding its nature, purpose and likely effects and has consented to it; or
(b) a registered medical practitioner appointed as aforesaid (not being the responsible clinician or the approved clinician in charge of the treatment in question) has certified in writing that the patient is not capable of understanding the nature, purpose and likely effects of that treatment or being so capable has not consented to it but that [it is appropriate for the treatment to be given].
Section 62(1)
62.— Urgent treatment.
(1) Sections 57 and 58 above shall not apply to any treatment—
(a) which is immediately necessary to save the patient's life; or
(b) which (not being irreversible) is immediately necessary to prevent a serious deterioration of his condition; or
(c) which (not being irreversible or hazardous) is immediately necessary to alleviate serious suffering by the patient; or
(d) which (not being irreversible or hazardous) is immediately necessary and represents the minimum interference necessary to prevent the patient from behaving violently or being a danger to himself or to others.
45.In B v Croydon Health Authority [1995] 1 ALL ER 683 it was held by the Court of Appeal that the feeding by nasogastric tube of a patient who was suffering from borderline personality disorder was treatment which fell within the scope of section 63 MHA 1983 because such treatment was aimed at treating a symptom of the disorder which was a compulsion to self harm. Therefore, the basic proposition that force feeding can be treatment within the meaning of s.63 is established, and not in issue.
46.In R v Collins ex p ISB [2000] Lloyd's Rep. Med. 355 , Mr Justice Maurice Kay was considering an application for judicial review by Ian Brady, challenging a decision by the clinicians at Ashworth Hospital to force feed him. Mr Brady had been diagnosed as having a psychopathic disorder and had decided to refuse food in part as a protest against events in Ashworth. The Judge's conclusion is at [44];
'On any view, and to a high degree of probability, section 63 was triggered because what arose was the need for medical treatment for the mental disorder from which the Applicant was and is suffering. The hunger strike is a manifestation or symptom of the personality disorder. The fact (if such it be) that a person without mental disorder could reach the same decision on a rational basis in similar circumstances does not avail the Applicant because he reached and persists in his decision because of his personality disorder'.
47.A similar issue arose before Baker J in A NHS Trust v Dr A [2014] Fam 161 In that case the patient had been diagnosed as suffering from a delusional disorder and was refusing to eat, at least in part in protest about being placed in immigration detention. He was found under the MCA not to have capacity and had been detained under s.3 of the MHA . The Judge found, when considering the MCA , that it was in A's best interests to force feed him, but there was a significant problem in determining by what power the Court could so order. The Judge considered s.63 but found that its terms were not met. He said at [79] that he;
'found the views articulated by the treating clinicians, and in particular Dr. WJ, persuasive. She does not consider that the administration of artificial nutrition and hydration to Dr. A. in the circumstances of this case to be a medical treatment for his mental disorder, but rather for a physical disorder that arises from his decision to refuse food. That decision is, of course, flawed in part because his mental disorder deprives him of the capacity to use and weigh information relevant to the decision. The physical disorder is thus in part a consequence of his mental disorder, but, in my judgement, it is not obviously either a manifestation or a symptom of the mental disorder. This case is thus distinguishable from both the Croydon case and Brady'.
48.The Judge went on to hold that A could not be force fed under the MCA , even though he did not have capacity, because the MHA had primacy over the MCA when a person is detained in hospital under the hospital treatment regime. Baker J however, went on to find that the Health Board could be authorised to force feed A pursuant to the inherent jurisdiction, because there was a lacuna in the statutory schemes, between the MCA and MHA on the facts of the case, and Dr A was a vulnerable person.
49.In Nottinghamshire Healthcare NHS Trust v RC [2014] EWCOP 1317 Mostyn J observed at paragraph 24 that the extent to which a condition is within the ambit of section 63 read with section 145 can be difficult to ascertain:
"The cases have drawn a distinction between a condition which is, on the one hand, a consequence of the disorder, and, on other hand, a condition which is a symptom or manifestation of it. The former is not within section 63 , the latter is. I confess to finding the distinction intellectually challenging. At all events a wide (but not always consistent) interpretation has been given to section 145(4) . Thus the decision to force-feed Ian Brady was held to be within section 63 . His hunger strike, ostensibly in protest at the decision to move him to another ward, was held to be a manifestation or symptom of his very profound personality disorder (he was additionally found to be incapacitated): see Ex parte Brady [2000] Lloyd's Rep Med 355 . In B v Croydon Health Authority [1995] Fam 133 the court declared that it was lawful to force-feed a patient who would otherwise die from self-starvation which was the result of her borderline personality disorder. By contrast in A NHS Trust v Dr A [2014] 2 WLR 607 a hunger strike by a detained Iranian doctor protesting about the impoundment of his passport was held to be not a manifestation or symptom of his mental disorder. In Tameside and Glossop Acute Services v CH [1996] 1 FLR 762 it was held that section 63 could be used to restrain a patient to enforce a Caesarean section upon her; while in St George's Healthcare NHS Trust v S the opposite conclusion was reached."
The MHA makes lawful further interference with Article 8 rights in permitting treatment without consent. As Baroness Hale pointed out in B v Ashworth, until 1983 the legislation dealt expressly only with the right to detain for treatment, taking it for granted that it would be lawful compulsorily to treat those detained. Part IV of the MHA now deals expressly with the power compulsorily to treat where that is the object of the detention. A distinction is drawn between the most invasive treatment, which can only be administered with the capacitated consent of the patient (section 57), medical treatment for mental disorder, which requires capacitated consent or the opinions of two medical officers that the treatment should be given having regard to the likelihood that it will alleviate or prevent a deterioration of the patient's condition (section 58) and other medical treatment for the patient's mental condition, which can be administered without consent (section 63).
This is a powerful submission. But I have come to the conclusion that it is too atomistic. It requires every individual element of the treatment being given to the patient to be directed to his mental condition. But in my view this test applies only to the treatment as a whole. Section 145(1) gives a wide definition to the term "medical treatment." It includes "nursing, and also includes care, habilitation and rehabilitation under medical supervision." So a range of acts ancillary to the core treatment fall within the definition. I accept that by virtue of section 3(2)(b) a patient with a psychopathic disorder cannot be detained unless the proposed treatment, taken as a whole, is "likely to alleviate or prevent a deterioration of his condition." In my view, contrary to the submission of Mr. Francis, "condition" in this paragraph means the mental disorder on grounds of which the application for his admission and detention has been made. It follows that if there was no proposed treatment for Ms. B.'s psychopathic disorder, section 63 could not have been invoked to justify feeding her by nasogastric tube. Indeed, it would not be lawful to detain her at all.
And Neil LJ, who agreed with Hoffman LJ added;
I am satisfied that the words in section 63 of the Mental Health Act 1983 "any medical treatment given to him for the mental disorder from which he is suffering" include treatment given to alleviate the symptoms of the disorder as well as treatment to remedy its underlying cause. In the first place it seems to me that it would often be difficult in practice for those treating a patient to draw a clear distinction between procedures or parts of procedures which were designed to treat the disorder itself and those procedures or parts which were designed to treat its symptoms and sequelae. In my view the medical treatment has to be looked at as a whole, and this approach is reinforced by the wide definition of "medical treatment" in section 145(1) as including "nursing" and also "care, habilitation and rehabilitation under medical supervision."
In the second place I too find support for this construction of "medical treatment" in section 63 in the provisions relating to urgent treatment in section 62. Section 57 of the Act of 1983, which is concerned primarily with medical treatment which involves surgery on brain tissue, contains detailed provisions for the steps which have to be taken before such treatment can be administered. Similarly section 58 which is concerned with other specified forms of treatment and with the administration of medicine where the medicine has been administered for a period in excess of three months, contains provisions for the steps to be taken before the treatment is given or continued as the case may be. It is against this background that one turns to section 62 which provides:
"(1) Sections 57 and 58 above shall not apply to any treatment - (a) which is immediately necessary to save the patient's life; or . . . (c) which (not being irreversible or hazardous) is immediately necessary to alleviate serious suffering by the patient; or (d) which (not being irreversible or hazardous) is immediately necessary and represents the minimum of interference necessary to prevent the patient from behaving violently or being a danger to himself or to others."
It seems to me to be clear that section 62 contemplates treatment which is designed to deal with the symptoms of the disorder rather than the disorder itself. It follows therefore that as section 62 excepts urgent treatment from the regimes imposed by sections 57 and 58 medical treatment in those sections includes treatment of symptoms as well as of causes".
Issue Two: Mental Capacity Act 2005
i. The physical condition CC is now in, by which dialysis is critical to keep him alive, is properly described as a manifestation of his mental disorder. There is a very real prospect that if he was not mentally ill he would self-care in a way that would have not led to the need for dialysis. Further, CC's refusal of dialysis is very obviously a manifestation of his mental disorder and dialysis treatment is therefore treatment within the scope of section 63 MHA 1983.ii. CC's capacity to consent to dialysis treatment fluctuates, however his consent is not required in order to be treated, by way of dialysis treatment, under section 63 MHA 1983.
iii. The decision whether it is in CC's best interests to receive dialysis treatment is a matter for CC's responsible clinician (having consulted clinicians attending to his physical health, including the consultant nephrologist), subject to the supervisory jurisdiction of the Court.
iv. Section 58 has no applicability. Section 62 disapplies section 58 in urgent treatment cases such as this where treatment is immediately necessary to save CC's life, to prevent a serious deterioration of his condition, and to alleviate serious suffering. Section 63 is the appropriate course.
v. As section 63 MHA 1983 can be used as authority to provide medical treatment to CC, including by dialysis treatment and by the use of light physical restraint and chemical restraint (if required), it is unnecessary for the court to exercise its discretion and make a contingent declaration pursuant to section 15(1)(c) MCA 2005 that it is lawful to treat CC in accordance with the proposed dialysis treatment plan in the event that he lacks capacity to make a decision regarding dialysis treatment at the relevant time.