FAMILY DIVISION
Strand, London, WC2A 2LL |
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B e f o r e :
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THE NHS TRUST |
Claimant |
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- and - |
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Ms T |
Defendant |
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Kate Markus (instructed by Fosters) for the Defendant
Edward Solomons, Solicitor Advocate and Deputy Official Solicitor
Hearing date: 20 May 2004
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Crown Copyright ©
The Hon. Mr Justice Charles:
Introduction
Background
"You are advised to read the guidance note before completing this document.
This is the advance directive of [Ms T].
If at any time in the future I experience a mental health crisis, I direct that the following instructions are complied with. In particular, I refuse treatment which is contrary to that stipulated in this document. Where I have objected to a specific form of treatment this shall be legally binding on those treating me, unless I am subject to compulsory treatment under the Mental Health Act 1983 [Ms T's signature follows this passage]
I confirm that I believe the above named [Ms T] has freely stated her directions in this document. It is my understanding and belief that she has the mental capacity to understand the nature and consequences of these directions.
[This passage is signed by (I think) the person named later in the document as Ms T's advocate]
MY WISHES REGARDING MEDICATION AND TREATMENT
Should my blood volume or HB level fall low, I do not wish to be given a blood transfusion or iron.
REASONS FOR MY DECISION
I make this decision for two reasons. First because I am caught in a vicious circle/set of circumstances too difficult for me to continue enduring. I am not aware of when I am cutting myself, and therefore cannot prevent my HB dropping very low periodically. Having a transfusion does not resolve this problem in the long term, only causes stress to myself.
Secondly I believe my blood is evil, carrying evil around my body. Although the blood given in transfusions is perfectly healthy/clean once given to me it mixes with my own and also becomes evil. Contaminated by my own. Therefore the volume of evil blood in my body will have increased and likewise the danger of my committing acts of evil.
UNDERSTANDING THE NATURE OF THIS DIRECTIVE AND THE EFFECT IT WILL HAVE
I am fully aware that in refusing a blood transfusion I may die.
At the time of writing this I have capacity and am mentally competent.
I attach a letter confirming my understanding of this directive from my GP [who is named].
It is my wish that the following people be told immediately should I be admitted to hospital [an advocate and a social worker are named]
MY CHOICE OF MENTAL HEALTH LAWYER IS [the lawyer is named]
IN THE EVENT THAT I LACK CAPACITY TO MAKE A DECISION FOR MYSELF, I WOULD LIKE THE FOLLOWING PERSON TO BE CONTACTED AND CONSULTED [the person named as the advocate is named]
I confirm that this person knows and understands the terms of this directive, and that they have given them permission to be contacted and will speak for me in a crisis
[The document is then signed by Ms T] "
"Ms T would like it noted that she is making a directive via a solicitor and that she would like a discussion with staff responsible for instituting treatment, i.e. blood transfusion, before it is forced upon her and she understands the implications of not undergoing treatment when her anaemia is severe and she is being advised to have a transfusion. Ms T understands that this decision may result in her death."
"Diagnosis: emotionally unstable / borderline personality disorder
Current medication: I believe unaltered compared with 30 January 2004
Current condition
Ms T came to outpatient clinic after her advocate (the advocate named in the advance directive). The purpose of this meeting was to discuss the matter of her longstanding unwillingness to accept future blood transfusions and specifically the advance directive which she has produced issue no. 2 dated 28 January 2004.
Having reviewed her case notes and interviewed her on this occasion, I concluded that I did not think she had capacity to refuse treatment, specifically blood transfusions or iron supplements.
I base this decision on the following:
Her present state of mind is not substantially different to that which pertained some years ago nor is likely to exist in the future. She is in a continuous state of disordered thinking brought about by her mental disorder, namely borderline personality disorder. She does not appear to be making an advanced directive to manage a mental disorder which may occur at a future time; it is present now and is now likely to remain with her for the foreseeable future.
I would emphasise that I do not think Ms T has a psychosis but one of her reasons for declining blood transfusion is that her blood is 'evil, carrying evil ' I believe that in itself represents disordered thinking and borderline personality disorder.
I am aware that my opinion is shared by some psychiatrists but not by others who have pronounced on Ms T's circumstances. I do not think it will be possible for clinicians alone to reach a conclusion as to what should happen when, inevitably, she requires further blood transfusions in the future. Ms T led me to understand that there have already been some discussions between [the mental health care trust and the Claimant] and I shall make contact with [the mental health care trust] to clarify the position.
Ms T tells me that today in other respects she remains reasonably well and led me to understand cutting had been rather less in recent months since the last transfusion in October 2003. She felt it however, likely, that she would become liable to need a transfusion over the next few months, although she emphasises she would not wish to accept it .."
"Upon hearing Mr Robert Francis QC on behalf of the Claimant
IT IS ORDERED THAT
1 It is declared that in spite of the defendant not consenting in the present circumstances it is lawful for the Claimant's servants or agents who are attending on and treating the defendant, to administer a blood transfusion and such other treatment as may be necessary to stabilise her condition.
2. It is further declared for the purpose of administering the treatment referred to above it is lawful for the Claimant's servants or agents to use such minimum force as may be reasonably necessary for that purpose.
3. The Claimant shall, as soon as may be possible following the commencement of the next legal term, apply for directions for the determination of the lawfulness of such treatment referred to above as may be required in the future."
"I have been Ms T's consultant psychiatrist since the end of the year 2003. I had prior acquaintance with her in the year 2001 when I saw her for a 'second opinion' while she was under the care of Dr Cr, consultant psychiatrist, H hospital
My point in drawing your attention to that existing discussion is that Ms T's condition in the broadest sense has pertained for some years and, in my opinion, will do so for the foreseeable future, i.e. a matter of years if not for ever. Her condition and attitudes, albeit given my limited personal knowledge, do not appear to fluctuate over weeks and months. For the sake of the record, I will restate my opinion.
Based on my last meeting with her on 22 March 2004 and I have not seen her since, I would say that;
The diagnosis is that of an emotionally unstable borderline personality disorder.
I understand that because of self-cutting and letting of blood she becomes severely anaemic.
She has for some while now been pursuing the matter of an advance directive which she hopes would allow her to refuse blood transfusion to save her life.
In my opinion she does not have the capacity to refuse treatment, specifically blood transfusions or iron supplements.
I say she does not have the capacity because she is affected by personality disorder as described above. She is in a continuous state of disordered thinking brought about by the mental disorder and it is very likely that that disorder will persist for the foreseeable future.
I believe she is attempting to making a valid advance directive to manage any consequences of her mental disorder, namely severe anaemia but that mental disorder is present now and will be for the foreseeable future. It is not the case that she has a mental disorder or illness which is now present and not affecting her so that she is able to consider her actions and responses unaffected by the disorder.
Given the present level of understanding in psychiatry, there has not yet been identified a validated means of treating her mental disorder, namely emotionally unstable personality disorder.
It is very likely that recent circumstances will recur in that because of Ms T's self-cutting she will become anaemic and require a life saving transfusion. Unless she changes her mind, I think it is equally likely that she will continue to pursue the means, legal or otherwise, to allow her to refuse blood transfusions.
It is very likely, therefore, when I do see her again I will reach the same conclusions as I have earlier."
The issues in the present proceedings.
i) an adult of sound mind (i.e. with capacity) is entitled to refuse medical treatment even if his or her life depends upon such treatment (see, for example, St George's Healthcare NHS Trust v S [1998] 2FLR 728 'S'), whereas in contrastii) if an adult does not have capacity the court can authorise his or her medical treatment in his or her best interests.
i) in the absence of Ms T being subject to treatment under the Mental Health Act 1983 it is to be treated as a binding assertion of her wishes which must be respected by those responsible for her medical treatment, orii) it is a declaration that Ms T wishes to be consulted, or for her advocate and further or alternatively her social worker to be consulted, if and when the question of her having a blood transfusion arises.
The position before me
The possibility of a relevant change of circumstances
i) the capacity of the relevant person before the proposed treatment became necessary, andii) the state of health of that person and the reasons for and effect of the proposed treatment.
i) the information presently available to the parties and the court indicates that there has been no material change concerning Ms T's capacity between the times that she entered into the advance directive and now and that it is not likely that there will be such a material change before the final hearing, andii) Ms T's history and the present medical information available to the parties and before the court demonstrate that the circumstances and events leading up to the situation that existed on 9 April 2004, when Ms T was given her last blood transfusion, are likely to be repeated with no material differences. (This is why I say in paragraph 31 'as and when' rather than ' if and when' such a situation occurs in the future).
As to both these points see the citations in this judgment from the views of psychiatrists in 2001 and now.
Pragmatism
Jurisdiction to grant an interim declaration
"Because a declaratory order does have effect, between the parties to the proceedings in which it was made, as a conclusive definition of their legal rights, it should only be made as a final order. The notion of an interim declaration is (as Diplock LJ said in International General Electric v C & E Commissioners [1962] Ch 784, 790) a contradiction in terms. That was recognised by this court, in the context of authority for medical intervention, in Riverside Mental Health Trust v Fox [1994] 1 FLR 614."
"Orders for interim remedies
25.1(1) The court may grant the following interim remedies
(a) An interim injunction;
(b) An interim declaration;
(c) "
My approach to the grant of an interim declaration.
"Since a declaration ought not to be made on an interim basis, or without adequate investigation of the evidence put forward by either side, it follows that a declaration (especially one affecting an individual's personal autonomy) ought not to be made on an ex parte basis. Apart from injustice and other more obvious objections, it will simply be ineffective to achieve its purpose, that is (in Lord Brandon's words in Re F at 56 and 420-421 respectively) 'to protect the doctor or doctors who perform the operation, and any others who may be concerned in it, from subsequent adverse criticisms and claims'. Non-compliance with a declaration cannot be punished as a contempt of court, nor can a declaration be enforced by any normal form of execution, although exceptionally a writ of sequestration might be appropriate: see Webster v Southwark London Borough Council [1983] QB 698. Apart from that rare exception it operates solely by creating an estoppel per rem judicatam between the parties and their privies (Re F [1990] 2 AC 1, 64 and [1989] 2 FLR 376, 428 respectively). No estoppel can be created by a judgment pronounced in a party's absence without that party having been given notice of the proceedings or any opportunity to be heard. There is authority (New Brunswick Railway Co v British & French Trust Corp [1939] AC 1) that an estoppel per rem judicatam may arise on a default judgment, but in that case the default judgment was regularly obtained. No estoppel can arise from an order which the defendant could not oppose, and which was made in proceedings (or proposed proceedings) of which he or she knew nothing."
Later at 767D, the court said:
"In this case the judge made a declaratory order (i) on an ex parte application in proceedings which had not then been (and at the start of the hearing of this appeal still had not been) instituted by the issue of a summons; (ii) without S's knowledge or even any attempt to inform her or her solicitor of the application; (iii) without any evidence, oral or by affidavit; and (iv) without any provision for S to apply to vary or discharge the order. The order declared that St George's could subject S to invasive surgery. It is inappropriate (for the reasons given by Lord Diplock) to describe such an order as void, or made without jurisdiction. But it is an order which S is entitled to have set aside ex debito justitiae. That may involve some unfairness to the doctors and nurses at St George's who were all conscientiously, and in very anxious circumstances, seeking to do the right thing. But the unfairness (indeed, injustice) to S would be much greater if the order were not set aside. "
And at 758B the court gave the following guidelines:
"Guidelines
The case highlighted some major problems which could arise for hospital authorities when a pregnant woman presented at hospital, the possible need for Caesarean surgery was diagnosed, and there was serious doubt about the patient's capacity to accept or decline treatment. To avoid any recurrence of the unsatisfactory events recorded in this judgment, and after consultation with the President of the Family Division and the Official Solicitor, and in the light of written submissions from Mr Havers and Mr Gordon, we shall attempt to repeat and expand the advice given in Re MB (Medical Treatment) [1997] 2 FLR 426. This advice also applies to any cases involving capacity when surgical or invasive treatment may be needed by a patient, whether female or male. References to 'she' and 'he' should be read accordingly. It also extends, where relevant, to medical practitioners and health practitioners generally as well as to hospital authorities.
The guidelines depend upon basic legal principles which we can summarise:
(i) They have no application where the patient is competent to accept or refuse treatment. In principle a patient may remain competent notwithstanding detention under the Mental Health Act.
(ii) If the patient is competent and refuses consent to the treatment an application to the High Court for a declaration would be pointless. In this situation the advice given to the patient should be recorded. For their own protection hospital authorities should seek unequivocal assurances from the patient (to be recorded in writing) that the refusal represents an informed decision: that is, that she understands the nature of and reasons for the proposed treatment, and the risks and likely prognosis involved in the decision to refuse or accept it. If the patient is unwilling to sign a written indication of this refusal, this too should be noted in writing. Such a written indication is merely a record for evidential purposes. It should not be confused with or regarded as a disclaimer.
(iii) If the patient is incapable of giving or refusing consent, either in the long term or temporarily (eg due to unconsciousness), the patient must be cared for according to the authority's judgment of the patient's best interests. Where the patient has given an advance directive, before becoming incapable, treatment and care should normally be subject to the advance directive. However, if there is reason to doubt the reliability of the advance directive, (for example it may sensibly be thought not to apply to the circumstances which have arisen) then an application for a declaration may be made.
Concern over capacity
(iv) The authority should identify as soon as possible whether there is concern about a patient's competence to consent to or refuse treatment.
(v) If the capacity of the patient is seriously in doubt it should be assessed as a matter of priority. In many such cases the patient's general practitioner or other responsible doctor may be sufficiently qualified to make the necessary assessment, but in serious or complex cases involving difficult issues about the future health and well-being or even life of the patient, the issue of capacity should be examined by an independent psychiatrist, ideally one approved under s 12(2) of the Mental Health Act. If following this assessment there remains a serious doubt about the patient's competence, and the seriousness or complexity of the issues in the particular case may require the involvement of the court, the psychiatrist should further consider whether the patient is incapable by reason of mental disorder of managing her property or affairs. If so the patient may be unable to instruct a solicitor and will require a guardian ad litem in any court proceedings. The authority should seek legal advice as quickly as possible. If a declaration is to be sought the patient's solicitors should be informed immediately and if practicable they should have a proper opportunity to take instructions and apply for legal aid where necessary. Potential witnesses for the authority should be made aware of the criteria laid down in Re MB and this case, together with any guidance issued by the Department of Health, and the British Medical Association.
(vi) If the patient is unwilling to instruct solicitors, or is believed to be incapable of doing so, the authority or its legal advisors must notify the Official Solicitor and invite him to act as guardian ad litem. If the Official Solicitor agrees he will no doubt wish, if possible, to arrange for the patient to be interviewed to ascertain her wishes and to explore the reasons for any refusal of treatment. The Official Solicitor can be contacted through the Urgent Court Business Officer out of office hours on 0171 936 6000 [now 020 7947 6000].
The hearing
(vii) The hearing before the judge should be inter partes. As the order made in her absence will not be binding on the patient unless she is represented either by a guardian ad litem (if incapable of giving instructions) or (if capable) by counsel or solicitor, a declaration granted ex parte is of no assistance to the authority. Although the Official Solicitor will not act for a patient if she is capable of instructing a solicitor, the court may in any event call on the Official Solicitor (who has considerable expertise in these matters) to assist as an amicus curiae.
(viii) It is axiomatic that the judge must be provided with accurate and all the relevant information. This should include the reasons for the proposed treatment, the risks involved in the proposed treatment, and in not proceeding with it, whether any alternative treatment exists, and the reason, if ascertainable, why the patient is refusing the proposed treatment. The judge will need sufficient information to reach informed conclusion about the patent's capacity, and, where it arises, the issue of best interest.
(ix) The precise terms of any order should be recorded and approved by the judge before its terms are transmitted to the authority. The patient should be accurately informed of the precise terms.
(x) Applicants for emergency orders from the High Court made without first issuing and serving the relevant applications and evidence in support have a duty to comply with the procedural requirements (and pay the court fees) as soon as possible after the emergency hearing.
Conclusion
There may be occasions when, assuming a serious question arises about the competence of the patient, the situation facing the authority may be so urgent and the consequences so desperate that is impracticable to attempt to comply with these guidelines. The guidelines should be approached for what they are, that is, guidelines. Where delay may itself cause serious damage to the patient's health or put her life at risk then formulaic compliance with these guidelines would be inappropriate.
Guidance
[100] Guidance has already been given by the Court of Appeal in St George's Healthcare NHS Trust v S; R v Collins and Others ex parte S [1999] Fam 26, [1998] 2 FLR 728, at 63 and 758E respectively. The circumstances of the present case are however very different from the facts of that case. It might be helpful if I restate some basic principles and offer additional guidelines in case a situation similar to the present should arise again:
(i) There is a presumption that a patient has the mental capacity to make decisions whether to consent to or refuse medical or surgical treatment offered to him/her.
(ii) If mental capacity is not in issue and the patient, having been given the relevant information and offered the available options, chooses to refuse the treatment, that decision has to be respected by the doctors. Considerations that the best interests of the patient would indicate that the decision should be to consent to treatment are irrelevant.
(iii) If there is concern or doubt about the mental capacity of the patient, that doubt should be resolved as soon as possible, by doctors within the hospital or NHS Trust or by other normal medical procedures.
(iv) In the meantime, while the question of capacity is being resolved, the patient must, of course, be cared for in accordance with the judgment of the doctors as to the patient's best interests.
(v) If there are difficulties in deciding whether the patient has sufficient mental capacity, particularly if the refusal may have grave consequences for the patient, it is most important that those considering the issue should not confuse the question of mental capacity with the nature of the decision made by the patient, however grave the consequences. The view of the patient may reflect a difference in values rather than an absence of competence and the assessment of capacity should be approached with this firmly in mind. The doctors must not allow their emotional reaction to or strong disagreement with the decision of the patient to cloud their judgment in answering the primary question whether the patient has the mental capacity to make the decision.
(vi) In the rare case where disagreement still exists about competence, it is of the utmost importance that the patient is fully informed of the steps being taken and made a part of the process. If the option of enlisting independent outside expertise is being considered, the doctor should discuss this with the patient so that any referral to a doctor outside the hospital would be, if possible, on a joint basis with the aim of helping both sides to resolve the disagreement. It may be crucial to the prospects of a good outcome that the patient is involved before the referral is made and feels equally engaged in the process.
(vii) If the hospital is faced with a dilemma which the doctors do not know how to resolve, it must be recognised and further steps taken as a matter of priority. Those in charge must not allow a situation of deadlock or drift to occur.
(viii) If there is no disagreement about competence but the doctors are for any reason unable to carry out the wishes of the patient, their duty is to find other doctors who will do so.
(ix) If all appropriate steps to seek independent assistance from medical experts outside the hospital have failed, the NHS Hospital Trust should not hesitate to make an application to the High Court or seek the advice of the Official Solicitor.
(x) The treating clinicians and the hospital should always have in mind that a seriously physically disabled patient who is mentally competent has the same right to personal autonomy and to make decisions as any other person with mental capacity.
i) the declaratory relief can relate to a particular type or session of treatment without being an interim declaration, and indeed in many cases the relevant treatment is a one off (e.g. a caesarean or an amputation). Once such treatment is carried out that is an end of the matter and the relevant crisis, and thus of the effectiveness of the declaration which is (or is effectively) a final declaration, andii) a declaration in respect of treatment and the estoppel based thereon is founded on a particular set of circumstances and facts. From which it follows that as with an advance directive (see the guidance in S paragraph (iii)) it would no longer be determinative (or found the relevant estoppel) if there was a material change in those circumstances and facts. Thus, in my view, a material change in circumstances can found a reconsideration of issues relating to conclusions on both capacity and best interests on which a final (or an interim) declaration was based.
i) to make every effort to ensure that the person who it is proposed should be treated in reliance on any declaration has an opportunity to make representations (either directly or indirectly) to the court (and thus in cases of emergencies out of hours to the Duty Judge) before any declaration is made, andii) for the Judge to decide on capacity and then if appropriate on best interests by applying the normal civil standard on the best evidence then available.
"I have no doubt in this case that the application for an interim declaration is premature because the legal foundation for such an application has not yet been established. There is a presumption that J has full capacity. It has not yet been displaced. I do not know one way or the other whether the evidence will displace that presumption. It appears to me that only if and when that evidence is available before the court that he does lack capacity, would it be appropriate to consider whether an interim declaration should be granted. I refuse the application at this stage and it will therefore be necessary to timetable the hearing of the issues so that the matter can be heard on its merits as soon as possible."
That passage envisages that an interim declaration could be made on some evidence provided that it was sufficient to rebut the presumption.
The application of the above approach.
Capacity
Conclusions on capacity to decide
All the decisions made in the Caesarean section cases to which we have referred arose in circumstances of urgency or extreme urgency. The evidence was in general limited in scope and the mother was not always represented as a party. With the exception of Re S (above), in all the cases the court decided that the mother did not have the capacity to make the decision. In these extremely worrying situations, it is important to keep in mind the basic principles we have outlined, and the court should approach the crucial question of competence bearing the following considerations in mind. They are not intended to be determinative in every case, for the decision must inevitably depend upon the particular facts before the court:
(1) Every person is presumed to have the capacity to consent to or to refuse medical treatment unless and until that presumption is rebutted.
(2) A competent woman who has the capacity to decide may, for religious reasons, other reasons, for rational or irrational reasons or for no reason at all, choose not to have medical intervention, even though the consequence may be the death or serious handicap of the child she bears, or her own death. In that event the courts do not have the jurisdiction to declare medical intervention lawful and the question of her own best interests objectively considered, does not arise.
(3) Irrationality is here used to connote a decision which is so outrageous in its defiance of logic or of accepted moral standards that no sensible person who had applied his mind to the question to be decided it could have arrived at it. As Kennedy and Grubb Medical Law (Butterworths, 2nd edn, 1994) point out, it might be otherwise if a decision is based on a misperception of reality (eg the blood is poisoned because it is red). Such a misperception will be more readily accepted to be a disorder of the mind. Although it might be thought that irrationality sits uneasily with competence to decide, panic, indecisiveness and irrationality in themselves do not as such amount to incompetence, but they may be symptoms or evidence of incompetence. The graver the consequences of the decision, the commensurately greater the level of competence is required to take the decision: Re T (above), Sidaway (a) [1985] AC 871, at 904 and Gillick v West Norfolk and Wisbech Area Health Authority and Another [1986] AC 112, 169 and 186, [1986] 1 FLR 224, 234 and 251.
(4) A person lacks capacity if some impairment or disturbance of mental functioning renders the person unable to make a decision whether to consent to or to refuse treatment. That inability to make a decision will occur when:
(a) the patient is unable to comprehend and retain the information which is material to the decision, especially as to the likely consequences of having or not having the treatment in question;
(b) the patient is unable to use the information and weigh it in the balance as part of the process of arriving at the decision. If, as Thorpe J observed in Re C (above), a compulsive disorder or phobia from which the patient suffers stifles belief in the information presented to her, then the decision may not be a true one. As Lord Cockburn CJ put it in Banks v Goodfellow (1870) LR 5 QB 549, 569:
'... one object may be so forced upon the attention of the invalid as to shut out all others that might require consideration.'
(5) The 'temporary factors' mentioned by Lord Donaldson MR in Re T (above) (confusion, shock, fatigue, pain or drugs) may completely erode capacity but those concerned must be satisfied that such factors are operating to such a degree that the ability to decide is absent.
(6) Another such influence may be panic induced by fear. Again, careful scrutiny of the evidence is necessary because fear of an operation may be a rational reason for refusal to undergo it. Fear may also, however, paralyse the will and thus destroy the capacity to make a decision.
Earlier at page 433A/G it was stated:
Capacity to decide
Problems can arise on the issue of capacity to consent to or refuse treatment. The starting-point for consideration of the test to be applied is the decision of this court in Re T (above). The patient who was pregnant had been involved in a car accident and during hospital treatment required a blood transfusion. Lord Donaldson MR reviewed the relevant authorities and said at 112 and 470 respectively:
'Capacity to decide
The right to decide one's own fate presupposes a capacity to do so. Every adult is presumed to have that capacity, but it is a presumption which can be rebutted. This is not a question of the degree of intelligence or education of the adult concerned. However, a small minority of the population lack the necessary mental capacity due to mental illness or retarded development (see, for example, Re F (Mental Patient) (Sterilisation) [1990] 2 AC 1). This is a permanent or at least a long-term state. Others who would normally have that capacity may be deprived of it or have it reduced by reason of temporary factors, such as unconsciousness or confusion or other effects of shock, severe fatigue, pain or drugs being used in their treatment.
Doctors faced with a refusal of consent have to give very careful and detailed consideration to the patient's capacity to decide at the time when the decision was made. It may not be the simple case of the patient having no capacity because, for example, at that time he had hallucinations. It may be the more difficult case of a temporarily reduced capacity at the time when his decision was made. What matters is that the doctors should consider whether at that time he had a capacity which was commensurate with the gravity of the decision which he purported to make. The more serious the decision, the greater the capacity required. If the patient had the requisite capacity, they are bound by his decision. If not, they are free to treat him in what they believe to be his best interests.'
Thorpe J, in Re C (Refusal of Medical Treatment) [1994] 1 FLR 31, formulated the test to be applied where the issue arose as to capacity to refuse treatment. In that case a man of 68 suffering from chronic paranoid schizophrenia refused to have an amputation of his leg). Thorpe J said at 36:
'I consider helpful Dr E's analysis of the decision-making process into three stages: first, comprehending and retaining treatment information, secondly, believing it and, thirdly, weighing it in the balance to arrive at choice. The Law Commission has proposed a similar approach in para 2.20 of its consultation paper 129, "Mentally Incapacitated Adults and Decision-Making".'
I add that I have also had regard to the points made on capacity in Re B under the headings "the presumption of mental capacity" and "assessing capacity".
"However, I am of the opinion that whilst she may be dissociating when she cuts herself deeply and when she produces a knife to threaten others, at the time when she is given a blood transfusion, it is likely that she is capable of consenting or withdrawing her consent to such treatment. There was nothing in the interview which I conducted to suggest that she did not have the capacity to consent or withdraw her consent to physical treatment.
Nevertheless this is a very complex case which understandably arouses many emotions in those caring for her. I can fully understand why it is that Dr Cr feels that she should be treated with blood transfusions. Indeed it seems unnecessarily destructive to place responsibility on the staff to carry out Ms T's wishes when she herself is giving a very mixed message. She could surely kill herself quite cleanly if she genuinely intended that. Without detailing appropriate parts of her anatomy, it is quite easy to kill oneself if one's haemoglobin is as low as Ms T's by a simple incision in an artery at various points. Ms T has chosen not to do that. I therefore doubt the genuineness of her suicidal impulses."
"Some of her self harming behaviour seems to have taken place in a disassociative state, and this may have been the more serious episodes. However, she also clearly described cutting herself in clear consciousness, and as a deliberate action. She described this partly as attempts to kill herself, but also said that ' the less blood I've got the less evil there is in me' a somewhat odd statement which suggests that she might have some delusional belief about this. She was adamant she does not wish to have blood transfusions, and that she stood by the declaration she made earlier this year refusing such treatment. I know that you have stated that she is not competent to make this decision, and that she is taking further legal advice about this situation.
In the second opinion Dr C advised caution in prescribing medication, in view of her physical condition and I can understand the concerns. Even so there seems to be evidence of some continuing psychotic symptoms, with Ms T describing auditory hallucinations, and possibly some delusional ideas regarding 'evil' in her blood. Although cold caution is certainly appropriate it seems it will be important to treat mental state if at all possible.
Finally, I feel I should make some comment about the issue of her consent to medical treatment. I was able to discuss her attitude to blood transfusions with her in some detail, and although some of her ideas were slightly odd, it seemed clear to me that she fully understood the nature of the proposed treatment (i.e the blood transfusion), the possible risks and benefits of the treatment and the possible consequences of refusing the treatment. She has clearly been able to understand and retain any information given to her about this, and has reached a judgment as to whether or not she wishes to accept the treatment. My understanding of the common law situation, following the case of R v C is that this is sufficient that she has capacity to refuse treatment."
"I was imagining on my way to see her that I would have to address the problems of competence, capacity and such like in respect of her refusal to accept necessary medical treatment, but as it turned out, we had a frank heart to heart and she was rapidly persuaded as to what was in her best interest and she went on to have a further blood transfusion, sufficient for her to be discharged the following day.
To deal adequately with the subject would require a dissertation and there is no call for that at present. It is worth noting, however, that if she had refused transfusion and I thought she was in imminent danger of dying, I should probably have drawn the conclusion on balance of probabilities, that there was a temporary lack of competence and capacity because of her unsound mind, such that she could have been treated against her will."
Dr O went on to discuss the decision of the Court of Appeal in S.
Her present state of mind is not substantially different to that which pertained some years ago nor is likely to exist in the future. She is in a continuous state of disordered thinking brought about by her mental disorder, namely borderline personality disorder. She does not appear to be making an advanced directive to manage a mental disorder which may occur at a future time; it is present now and is now likely to remain with her for the foreseeable future.
I would emphasise that I do not think Ms T has a psychosis but one of her reasons for declining blood transfusion is that her blood is 'evil, carrying evil ' I believe that in itself represents disordered thinking and borderline personality disorder. (March letter)
I say she does not have the capacity because she is affected by personality disorder as described above. She is in a continuous state of disordered thinking brought about by the mental disorder and it is very likely that that disorder will persist for the foreseeable future.
I believe she is attempting to making a valid advance directive to manage any consequences of her mental disorder, namely severe anaemia but that mental disorder is present now and will be for the foreseeable future. It is not the case that she has a mental disorder or illness which is now present and not affecting her so that she is able to consider her actions and responses unaffected by the disorder." (May letter)
Best interests
I turn from the outcome in the present case to some more general observations. There can be no doubt in my mind that the evaluation of best interests is akin to a welfare appraisal. The speeches in Re F (Mental Patient: Sterilisation) [1990] AC 1, sub nom Re F (Sterilization: Mental Patient) [1989] 2 FLR 376 read in their context can only bear this interpretation: see particularly the speech of Lord Goff at 77D-G and 440C-F respectively. Subsequently the Law Commission in their 1995 report on mental incapacity recommended an extensive evaluation of best interests: see para 3.28. The latest statement of government policy in Making Decisions shows that the Government currently accepts the Law Commission's recommendation: see para 1.10. Pending the enactment of a checklist or other statutory direction it seems to me that the first instance judge with the responsibility to make an evaluation of the best interests of a Claimant lacking capacity should draw up a balance sheet. The first entry should be of any factor or factors of actual benefit. In the present case the instance would be the acquisition of foolproof contraception. Then on the other sheet the judge should write any counterbalancing dis-benefits to the applicant. An obvious instance in this case would be the apprehension, the risk and the discomfort inherent in the operation. Then the judge should enter on each sheet the potential gains and losses in each instance making some estimate of the extent of the possibility that the gain or loss might accrue. At the end of that exercise the judge should be better placed to strike a balance between the sum of the certain and possible gains against the sum of the certain and possible losses. Obviously, only if the account is in relatively significant credit will the judge conclude that the application is likely to advance the best interests of the Claimant.
Interpretation of the advance directive
Discretion
(a) the admission of Ms T to hospital, and(b) the making of a decision to give Ms T the treatment referred to in the declaration.
The interim declaration
It is declared that, with effect until the substantive hearing of this matter or further order:
(a) The defendant (Ms T) lacks capacity to make medical treatment decisions relating to any need she may have for the treatment referred to in sub paragraph (b) below and lacked such capacity when she signed her advance directive on 28 January 2004; and(b) It is lawful for the Claimant its servants or agents to administer a blood transfusion and any other treatment necessary to stabilise her condition, using such minimum force as may be necessary, if the claimant is medically advised that her haemoglobin level is such that such transfusion or treatment is necessary to preserve the defendant's life or avoid imminent risk of serious injury to her health.
Tailpiece