QUEEN'S BENCH DIVISION
ADMINISTRATIVE COURT
Strand London WC2 |
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B e f o r e :
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THE QUEEN ON THE APPLICATION OF C | ||
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LINCOLNSIRE HEALTH AUTHORITY |
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190 Fleet Street, London EC4A 2AG
Telephone No: 202 7421 4040 Fax No: 020 7831 8838
(Official Shorthand Writers to the Court)
MR P HAMLIN (instructed by BEACHCROFT WANSBROUGHS SOLICITORS) appeared on behalf of the Respondent
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Crown Copyright ©
"It is hoped that, subject to these proceedings, [Long Leys] will cease to be a facility for long term patients in October 2001. The identification of suitable properties is now taking place taking into account not only the abilities of patients but also friendships [some patients get on very well and will be accommodated together or close together - others get on badly]. The care plans set the health and social care needs of each patient including K.. In practical terms this will include, in K.'s case, 24 hour social care support and access to her GP and other community health care services. I am authorised to state that should the Court refuse relief to the applicant then the funding is in place to rent a suitable property for K. and to provide the social care support indicated above."
"Although in my opinion, a number of the residents of Long Leys Court were able to live in the community and did not require NHS inpatient care (and in fact, some of them, including K., have been receiving a much reduced level of care for several years in readiness for such a move) initially, I was not sure as to whether all of the long-term residents in Long Leys Court could be discharged from NHS impatient care. I was aware of problems experienced elsewhere in the country where residents had been discharged into social care, and there had been difficulties, for example, in ensuring the safety in administering certain medication. In addition, I had seen the discharge of certain residents fail in circumstances where adequate supervision and support had not been provided. However, over time, I had formed the view that in fact, it is appropriate not only for some, but for all of the long-term residents of Long Leys Court to be discharged from NHS impatient care. This happened not only having regard to the needs of the residents but also following my coming across some of the patients I had known from Harmston Hall hospital who had been discharged to the community to live in homes catering for three to four people. On seeing some of these patients ten to twelve years later, I was very impressed by the change to the better in their general health, behaviour, social skills and communication. This has obviously been their response to the open normal way of living which care in the community brought to them. To me it was so pleasing to see these people live in ordinary homes, have neighbours and make friends who do not have a learning disability, access local amenities and lead a life as normal as their disabilities could allow. I have also continued to be impressed by the positive impact on those long-term residents who, after having been assessed as suitable for discharge, have been discharged from Long Leys into community care with appropriate support."
"This is understandable but I believe that we should work to allay any anxieties that those caring people may have and one important way of doing this is ensuring the appropriate level of support and a good match of the individual to the proposed new setting."
"In addition to providing input into the Continuing Care Assessment and Care Plan, we also undertake an annual review within the Trust of each individual long-term resident at Long Leys. During the last 2 years, annual (multi-disciplinary team) review meetings have been held in respect of K. on 26 May 2000 and 21 May 2001. K.'s parents are invited to attend these meetings and both parents were present at the meeting on 26 May 2000 and her father was in attendance at the meeting this year."
"...I advised Mr and Mrs C. that in my opinion, it was not in K.'s best interests to remain residing at Long Leys Court and that she did not require impatient care. This was the view of all of the multi professional team. We discussed K. moving into the community."
"At that meeting, it was resolved to approve the cessation of the provision of long term care beds currently operated by the Trust after 30 September 2001 or as soon as practicable after that date and to approve the commissioning of future care for the individuals by the Social Service Directorate. Of course, we considered the residents' position and although the Authority did not itself go through each resident's individual assessment, we were told by officers that such assessments indicated that all residents were well able to live in the community and did not require NHS impatient care, understanding the potential psychological impact the move could have on the residents and that as a result, for some people, the move would require careful planning. Taking everything into account, the Health Authority was of the view that the proposal was in the residents' best interests. It was further resolved to approve a request for officers to work closely with users of services at Long Leys Court, their relatives and carers, in the shape and design of new services to replace the long term care beds within the strategic policy framework and a Carer/Liaison Officer should be appointed to help to facilitate further discussion and dialogue between the Authority and the Long Leys Court carers in relation to further concerns, for example, in respect of the discharge of residents."
"The government recognises that some people will continue to need residential or nursing home care. For such people, this form of care should be a positive choice. And there will be others, in particular elderly and seriously mentally ill people and some people with serious mental handicaps together with other illnesses or disabilities, whose combination of health and social care needs is best met by care in a hospital setting. There will be a continuing need for this form of care."
"The large majority of people with learning disabilities not living with their families can be cared for in residential accommodation arranged through the relevant social services authority. There are, however, likely to be a small number of people with severe or profound learning disabilities and physical, sensory or psychiatric conditions who need long term residential care in a health setting. Where this seems to be the case a multi- professional assessment and consultation with parents or carers are necessary to determine whether the services they need can only be provided by the NHS or whether other alternatives would be more appropriate and cost effective. Similarly, where such people are ordinarily cared for by their families, there may be a need for some short term respite care arrangements to be provided by the NHS."
"6.1. In the late 1960's there were 60,000 people with learning disabilities living in mental handicap hospitals although many more people lived in the community, usually with their families. The 1971 White Paper 'Better Services for the Mentally Handicapped' was based on the shift from care in hospital to care in community. This policy was developed because there was an increasing concern about the adverse effects of institutionalisation and segregation and recognition that most people with a learning disability did not need to live in a hospital in order to have their health needs met. Hence there were two reasons for the hospital closure programs that have successfully taken place for long-stay hospital residents. As a result there has been deinstitutionalisation with the development of a wide range of community facilities. There has also been demedicalisation with a move from a medical/treatment model to that of a social model of care for disabled people, with emphasise on their right to an ordinary life. However there has been concern that the emphasise on the social model has led to the neglect of health needs which, even if extensive, can usually be met within a domestic-scale care environment if the right skills are available.
6.2 This good practice guidance re-affirms the commitment in HSG(92)43 regarding health authorities continuing to work with matching social services departments in planning the transfer of the remaining residents, and resources to support them to the community by a mutually agreed date, with a view to closing the old mental handicap hospitals as quickly as practicable. In 1997 there were less than 3000 people waiting to move out of NHS care.
6.3 It is expected that over the next two to three year the people still living in these hospitals will either transfer to specialist NHS provided care (reprovision) or to live in community settings often with NHS specialist input (resettlement).
6.4 It is strongly recommended that any work relating to reprovision of hospital services or the development of new community services is carried out jointly with partners from the local authority, the independent sector, health service providers and with a strong impute from users, relatives and carers."
"6.32 A proportion of people with learning disabilities will require intensive health care support through specialist community services, including learning disabilities teams and/or challenging behaviour teams, over a prolonged period of time - because of their complex disability or the challenges they place on services. Such people have the same entitlement to independence, choice, inclusion and civil rights as all others. The aim should be to provide them with ordinary housing an support services, in the least restrictive environment possible, with opportunity to leave full and purposeful lives.
6.33 Many people with such complex needs are currently living in community services as NHS in-patients. This is only appropriate where people require continuous medical supervision. A need for nursing supervision is not a sufficient reason for NHS in-patient care. Localities with large numbers of people living in such NHS accommodation should use person-centred planning and pooled budget to design more appropriate locally based housing and support and so reduce the number of long-term NHS in-patient beds to more appropriate levels. Forthcoming guidance on continuing care from the Department of Health will support this approach."
"Complete the discharge of all people with learning disabilities who are currently NHS in-patients to a model of social care support ensuring that appropriate monitoring and evaluation techniques are in place to ensure agreed quality standards."
"Guidance received from the Department of Health from 1992 onwards advise that people with learning disabilities need not remain as NHS in-patients by virtue of having a learning disability. This is underscored by the successful transfer of the individuals in the south of the county earlier this year. Nevertheless, what is crucial in ensuring quality care for people with a learning disability is to ensure that people's individual health needs are also met."
"The care planning in process ensures that services will be tailored to meet individual need and outcomes are clearly specified."
"K. has not been discharged but the National Policy and the New Strategy for Learning Disability Services makes it clear that Long Leys is to change to becoming an acute assessment and treatment unit, with part of it converting to a low secure unit for offenders who need to be in a secure Hospital setting.
...
The decision to discharge Long Leys Court residents is based on the New Strategy and need. Most of the inpatients in long term Hospital beds do not need to be in Hospital, and their needs could equally be met in the community."
"...K. would be much better off, with opportunities to help her develop her potential, in an ordinary home. She, like us all, will go into a Hospital bed, get treated and leave to go home."
"The proposals are part of the Joint Learning Disability Strategy as encapsulated within our Joint Investment Plan dated June 2000. This will bring services in Lincolnshire for people with learning disabilities in line with government policy to integrate people into the wider community rather than segregate them in inappropriate institutional settings."
"...the agreed financial planning context for this proposal is that it should be resource neutral."
"Authorities should respect the right of individuals to make informed choices about where they live (including for placements in village communities), wherever that preferred choice can meet their assessed needs, and is affordable. Guidance issued on the National Assistance Act 1948 (Choice of Accommodation) Directions 1992... states clearly that a placement should not be regarded as unsuitable simply because it fails to conform with the authority's preferred model of provision, or meet a standard service specification in every detail."
"People with learning disabilities should be given a genuine opportunity to choose between housing care and support options, local councils in considering the future housing care and support needs of people with learning disabilities, and their families should therefore ensure that all options are considered. These options should include small scale ordinary housing, supportive living and village and intentional communities as well as residential care. Councils should respect the preferences of individuals and their families wherever the preferred options will meet individuals assessed needs and are affordable. Where there is limited demand for a particular option councils and housing authorities may need to consider with joining neighbouring authorities to encourage the development of a greater range of provision."
"On the closure of Harmston Hall there were consultations and I remember attending a meeting at Harmston Hall and in the reception area there were large presentation boards showing artist's impressions of the new Long Leys Court and group homes advocating the scheme. The words 'homes for life' were on the huge presentation boards and the whole idea was to persuade us to agree to the proposals on the basis that Long Leys Court and the group homes would be homes for life.
9. The dramatic and distressing effect on the residents who were having to move was worsened by having to move into St John's for a short time as Long Leys Court was built but it was said 'At least you know that they will never have to move again'.
10. This promise was given to all the residents of Harmston Hall who transferred to Long Leys Court. That is at least 15 of the present residents of Long Leys Court including my daughter."
"At the Health Authority meeting on 26 October 2000, the proposals for transfer of residential accommodation to social care provision were discussed. Dr Atkins, a non-Executive member who is a General Practitioner and had previous knowledge of Harmston Hall Hospital, raised a concern in relation to the issue of a 'home for life' and whether such a promise had been given to residents when they were housed at Long Leys Court and if so, the moral of perhaps legal commitment owed. It was acknowledged that it was a possibility that such a promise had been given to some of the original residents. The wording of the promise was uncertain but it was thought to be that Long Leys Court would not close against the wishes of residents or carers. The Health Authority recognised that this was a significant issue and had to be taken into account. We were unsure as to the definition of 'home for life' and whether this meant the physical environment or the concept of the Health Authority providing an appropriate home. Because of its importance, it was agreed that a decision as to whether to discharge the long-term residents of Long Leys Court from NHS in patient care be deferred to enable more in-depth enquiries into the 'home for life' issue to be made."
"Although the Authority was not certain that a promise of a 'home for life' had been made to any of the residents at Long Leys Court, for the purposes of arriving at a decision, we proceeded on the assumption that such promises were made to the remaining original residence. Having read the advice from the Authority's solicitors dated 17 November 2000, the view was taken that any such promise meant a home at Long Leys Court, subject always to the needs and wishes of the residents, not merely that the recipient of the promise would be looked after by the NHS. Although the promise was not made to all residence, in practical terms, it enured for the benefit of all although some residents positively wished to move. The promise was regarded as significant and it was given considerable weight as was the fact that Long Leys Court was the settled home of all its residents."
"The promise of a 'home for life' to some residents was carefully considered therefore and considerable weight was given to it. In addition, weight was given to the fact that Long Leys Court was the settled home of all its residents."
"The Health Authority formed the view that it was in the best interest of the residents of Long Leys Court that, if they were able to, they should live in the community rather than as NHS inpatients and that it should depart from any promises of a 'home for life' at Long Leys Court. There was general consensus that if we could offer a better home and living conditions than had previously been the case (as we believe that we did at Long Lees Court after Harmston Hall) then we were under an obligation to ensure that we acted in the residents' best interest and to provide the best accommodation, living conditions and care possible."
"Where the court considers that a lawful promise or practice has induced a legitimate expectation of a benefit which is substantive, not simply procedural, authority now establishes that here too the court will in a proper case decide whether to frustrate the expectation is so unfair that to take a new and different course will amount to an abuse of power. Here, once the legitimacy of the expectation is established, the court will have the task of weighing the requirements of fairness against any overriding interest relied upon for the change of policy."
"The property of such an exercise of power should be tested by asking whether the need which the health authority judge to exist to move Miss C. to a local authority facility was such as to outweigh its promise that Mardon House would be her home for life."
"This was an express promise or representation made on a number of occasions in precise terms. It was made to a small group of severely disabled individuals who had been housed and cared for over a substantial period in the health authority's predecessor's premises at Newcourt. It specifically related to identified premises which it was represented would be their homes for as long as they chose. It was in unqualified terms. It was repeated and confirmed to reassure the residents. It was made by the health authority's predecessor for its own purposes, namely to encourage Miss C. and her fellow residents to move out of Newcourt and into Mardon House, a specially built substitute home in which they would continue to receive nursing care. The promise was relied upon by Miss C.. Strong reasons are required to justify resiling from a promise given in those circumstances."
"We have no hesitation in concluding that the decision to move Miss C. against her will and in breach of the health authority's own promise was in the circumstances unfair. It was unfair because it frustrated her legitimate expectation of having a home for life in Mardon House. There was no overriding public interest which justified it. In drawing the balance of conflicting interests the court will not only accept the policy change without demur but will pay the closest attention to the assessment made by the public body itself. Here, however, as we have already indicated, the health authority failed to weigh the conflicting interest correctly. Furthermore, we do not know (for reasons we will explain later) the quality of the alternative accommodation about services which will be offered to Miss C.. We cannot prejudge what would be the result if there was on offer accommodation which could be said to be reasonably equivalent to Mardon house and the health authority made a properly considered decision, in favour of closure in the light of that offer. However, absent such an offer, here there was unfairness amounting to an abuse of power by the health authority."
"Such people have the same entitlements to independence, choice, inclusion and civil rights as all others."
"The aim of assessment should be to arrive at a decision on whether services should be provided, and in what form. Assessments will therefore have to be made against a background of stated objectives and priorities determined by the local authority. Decisions on service provision will have to take account of what is available and affordable. Priority must be given to those whose needs are greatest. As part of its planning machinery, every local authority should monitor the outcomes of its assessment process, and the implications of these outcomes for future development of services."
"Decisions on service provision should include clear agreement about what is going go done, by whom and by when, with clearly identified points of access to each of the relevant agencies that a service users carers and for the care manager. No agency's resources should be committed without its prior agreement..."
"In addition to providing input into the Continuing Care Assessment and Care Plan, we also undertake an annual review within the Trust of each individual long-term resident at Long Leys Court. During the last 2 years, annual (multi-disciplinary team) review meetings have been held in respect of K. on 26 May 2000 and 21 May 2001. K.'s parents are invited to attend these meetings and both parents were present at the meeting on 26 May 2000 and her father was in attendance at the meeting this year."
"I was aware that all of the long-term residents had been medically assessed as not requiring NHS inpatient care and that, with the appropriate support and/or supervision, they would be able to live in the community and I received copies of the assessment documentation and care plans in relation to all of the long-term residents of Long Leys Court. It was acknowledged that the proposed move was likely to have a psychological impact on some, if not all, of the residents and that this would be implicit in all of the discharge plans but certain residents would require specific additional planning to support them in their move."
"When facing the challenge or moving people out of hospital into different forms of accommodation, health authorities need to be clear about their own responsibilities and accountabilities and also those of their partners, particularly social services. No one should move out of hospital without a joint assessment involving social services."
"K. does not need nor receive any input from a psychologist and a report was not obtained from a psychologist in respect of her potential discharge. In my view, this is not necessary nor required. Implicit in the assessment process as to whether it is appropriate and in the best interests of any resident for him or her to be discharged from Long Leys Court is an assessment of the likely psychological impact. All of the team recognises that the psychological effect of uprooting the long-term residents from Long Leys Court is a matter of importance. It is the home of all of these residents and has been the home for a number of them (including K.) for more than 11 years. It is impossible to predict with accuracy the psychological impact a move will have on all of the residents but we are able to form a view having regard to the individual strengths and how they have coped with change in the past and adjusted to it and their level of social functioning. Those who enjoy outdoor pursuits (activities or trips away from Long Leys Court) would probably welcome such a move. In K.'s case, she is a person who would meet this sort of criteria. In addition, we have learned about such impact from the discharge of other residents in the past. When assessing any resident for discharge and if appropriate, subsequently planning that discharge, the psychological impact is a fundamental part of that progress. Accordingly, it is a necessary part of the assessment of whether a resident should be discharged from NHS inpatient care but it is also extremely important in the discharge itself and is implicit in the discharge plan of every resident. If there is a clear indication of the additional vulnerability, for example, autism, unstable moods or unassertiveness, this will be specifically referred to in the assessment and discharge process. This will aim to ensure that the placement is tailored to needs of the individual taking account of their developmental levels, their temperament likes and dislikes etc. As regards to K., no specific vulnerabilities have been identified that would make her more prone to an adverse psychological impact following the discharge. K. has happily visited her parents her parents every weekend and has spent the weekend with them and returned to the bungalow. She has always coped well with this minor change. K. would adjust well with any change provided there is a degree of support. This will become more likely if she continues to live with residents and staff with whom she is familiar and the plan we have is for some of the staff to move with the residents for a short while until they are established in the community. It is inevitable that some tranquillising medication and behavioural therapy may be needed in the initial stage but this is something that we have had to use at times when K. returned from weekend visits to her parents, possibly as an exhibition on her part of her unhappiness on leaving her parents and coming to the unit."
MR HAMLIN: Then we ask your Lordship to dismiss as your Lordship has. There is no application for costs.
MR WISE: My Lord, may I thank your Lordship for the long and considered judgment that you have just given. There are important and sensitive issues that arise in this case. In particular, there are two issues which do merits further consideration and those points I ask your Lordship to grant leave to appeal.
The first point is whether best interests and that is the perceived best interest as your Lordship identified as by the professionals, whether those perceived best interests can constitute an overriding public interest such as to allow a health authority to resile from the promise for a home for life. That is a novel point that has not, as far as I am aware, been considered by the Court before.
Secondly, and clearly related to that, concerning the alleged breach of Article 8. Whether that is right, under Article 8 of the European Convention can lawfully be breached whereas here the only justification is that the claimant will be qualitative and better off in alternative accommodation. That again, we say, is an important point and one that, so far as I am aware, has not been considered before by these courts. We would say that both points would properly be matters for the Court of Appeal to give further consideration for and I ask your Lordship to grant leave accordingly.
MR PANNICK: Mr Hamlin, do you want to say anything?
MR HAMLIN: Nothing on the proposition that has been put forward. I am sure they have not been considered by the Court of Appeal although, with respect, it seems self-evident what the answer must be.
There is also a need for finality in this case as your Lordship will appreciate. This is a sensitive issue where there are a number of residents who have different views as to the future would best hold for them. Your Lordship may recall Dr Sidahmed's evidence at the end of his statement, which you will find of course at bundle 3 and if I could direct your attention to the final paragraph, which appears at the foot of page 74.
MR PANNICK: Yes.
MR HAMLIN: Bundle 3, tab 4.
MR PANNICK: Yes thank you.
MR HAMLIN: Your Lordship may recall it, referring to the concern about the delays. The effect upon residence of the delays causing them to experience anxiety and promoting an increase in behaviour problems.
MR PANNICK: Mr Wise do you want to say anything else?
MR WISE: One short point on the question of delay. Your Lordship will be aware of course, there have not been any alternative placements identified as yet. When placements are identified, there will clearly be considerable work to be carried out prior to any actual move. In our submission, time is not as pressing as my learned friend suggests. In those circumstances not an impediment to prosecuting an appeal.
MR PANNICK: I am not going to grant permission to appeal. It seems to me there are insufficient prospects of success to justify the granting of permission.
MR WISE: May I have an order for CLV funding.
MR PANNICK: I thank both of you for your very considerable assistance in this matter.