Newcastle-upon-Tyne Tyne & Wear NE1 3LA |
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B e f o r e :
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Re S |
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Telephone: 01642 232324
Facsimile: 01642 244001
Denmark House
169-173 Stockton Street
Middlehaven
Middlesbrough
TS2 1BY
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Crown Copyright ©
"C was left as a living guinea pig for medical testing for some kinds of bacteria."
"B and C have profound and complex neuro disability. They are highly dependent on others for all aspects of their care and remain highly vulnerable to complications. As such, the level of parenting capacity required to meet their needs is extremely high and it is expected that any parent in that situation would require the help and support of a wide range of professionals, to give expert advice and opinion. Professionals working with families caring for such disabled children are generally highly skilled and experienced at working with families with a variety of different beliefs and levels of understanding and work hard to develop positive relationships with the families, regardless of any differences in opinion. However, in order to work in an effective way with families, professionals need to be able to expect a level of honesty and openness and to be satisfied that parents and carers have a reasonable understanding of key health issues. Where parental understanding or belief systems appear to be acting as a barrier to providing adequate care to highly vulnerable children, professionals must raise their concerns. Professionals working with F have had long standing concerns about his mental health and well being and how his strongly held beliefs are impacting on the care of his children and his ability to work with professionals. There has been real professional anxiety about the possibility of actual harm occurring, as a result of his beliefs and behaviour and about the potential future risk to the children, owing to any possible undiagnosed, untreated and unmonitored mental health condition. There is now additional witness evidence of incidents of a very serious nature, in which the children have been placed at high risk due to F's behaviour. I strongly recommend that he should not be allowed any further unsupervised access to his children and that he undergoes an expert psychiatric assessment."
"A court may only make a care order or supervision order if it is satisfied:
(a) that the child concerned is suffering, or is likely to suffer significant harm.
(b) that the harm or likelihood of harm is attributable to
(i). the care given to the child or likely to be given to him if the order were not made, not being what it would be reasonable to expect a parent to give him."
"The balance of probability standard means that a court is satisfied an event occurred if the court considers that on the evidence the occurrence of the event was more likely than not."
"i) Both children have profound disabilities and severe cognitive impairment which gives rise to significant medical and educational and care needs. Their care requires consistent compliance with specialist medical advice and care and health plans devised to ensure that their needs are met. Failure to comply with such advice could place the children's health at severe risk of significant and potentially fatal compromise."
"ii). On 13th March 2015, C was admitted to hospital with severe and life threatening dystonia. The severe episode leading to admission placed C at risk of airways compression which was life threatening. F was aware that the spasms had been increasing in severity over the preceding weeks."
"iii) On 19th May, B was admitted to hospital as a result of severe seizures. F had been insistent on a reduction of the Lamotrigine medication on 16th May 2015. B's admission three days later was more likely than not caused by the reduction in this medication."
"iv) F holds strong and dogmatic views on the treatment of his children. Some of these views are paranoid and delusional. His insistence on the validity of these views impinges on the ability of the treating team to treat the children effectively. F is unable to exercise consistently rational judgments in relation to what care and treatments are in the children's best interests, thus placing them at the risk of significant harm. The following are examples.(i). C had a microchip deliberately implanted in his head, which is the cause of his fits.(ii). B has been deliberately inoculated with harmful substances.(iii). B's fits at school are caused by allergens and bacteria.(iv). The dose of Keppra may be poisoning B.(v). An obsessive belief that Lamotrigine is the cause of B's fits.(vi). Both children have been implanted with bacterial pathogens and silver fragments in their brain.(vii). A refusal to submit to psychiatric assessment by professionals from the National Health Service who were 'the opponent' and were 'a criminal organisation', who fabricate information.(viii). M has gone to India to have children since it is safer. The NHS have made the children how they are.(ix). The other paranoid beliefs, some of which I have mentioned, including the view that his emails are being hacked."
"v) F has received extensive education/training in relation to children's epilepsy but remains either unwilling or unable to provide accurate information about when and how often the children are suffering from seizures. A list of examples from the chronology is given. These entries show significant discrepancies between fits witnessed by professionals and F; failure to report the number of seizures accurately leads to problems with the children's care, especially with regard to anti-convulsant medication. This places the children at risk of increased and prolonged seizure which increases the risk of sudden death from epilepsy, a well known side effect of children with such complex needs."
"vi) F's inability to recognise seizures and administer medication or seek prompt treatment places the children at risk of significant harm."
"vii) F is either unwilling or unable to follow clear medical advice about the administration of medicines and seeks to influence medical decisions on the administration of appropriate medication, either by constant challenge, threat or manipulation. F does not provide clear and accurate information about which medication has been administered and when. For example:(i). Failure to administer Keppra medicine properly.(ii). Discontinuation of Seravit without medical advice.(iii). Wanting to give the children extra fluid when to do so could be positively dangerous.(iv). The obsessive belief that Lamotrigine is the cause of the fits and the persistent cause of conduct designed to stop the drug being administered.(v). Not administering sodium valproate effectively.(vi). Seeking to change the timing of the administration of medications.(vii). Feeding excessive quantities of potato and tomato soup without seeking medical advice, placing B at significant risk of aspiration.(viii). F claims to have given B natural feed for years, '12 meals per week'. This would be directly contrary to safe dietary advice.(ix). F prevented the administration of medication.(x). F threatened to sue the dietician."
"viii) F made unsubstantiated claims of expertise in science, microbiology, biology, immunology and pharmacology. He seeks to take on a medical role in relation to the children, over and above that which it is reasonable for a parent to claim in such circumstances. The following are specific examples:(i). F required various medical equipment – a blood monitoring machine – which he had no expertise to utilise.(ii). F dresses in a white coat and has been seen examining the children with a stethoscope in hospital.(iii). F brought intravenous bags to administer fluids without seeking advice.(iv). The use of an Abigail pump incompatible with the current feeding regime.(v). Administering high flow oxygen without medical advice.(vi). Administering privately acquired nebuliser.(vii). Administering a significant quantity of potato and tomato soup, either orally, or via a nasogastric tube, without seeking prior advice.(viii). F's expressed intention to return to a natural feeding regime, should the children return to his care, which is contrary to professional advice, which will place the children at risk of harm."
"ix) An unwillingness to accept financial support and professional advice in relation to housing and equipment. The result has been:(i). The children residing in a property which was regularly described as cold.(ii). Failing to ensure that the children had appropriately equipped bathing facilities and inadequate equipment.(iii). Failing properly to secure B in her wheelchair in taxi transport to school.(iv). Failing to ensure that the property in which the children live was properly adapted to their needs."
"x) Leaving the United Kingdom without prior consultation with the team treating the children, leaving F to deal with the children alone. M knew, or ought to have known that, due to F's behaviour and beliefs, leaving him in sole charge was likely to place the children at risk."
"xi) M spending 15 months in India without sufficient reason and thus having no contact with her children M and vice versa."
"xii) Despite knowing F's extreme views in relation to the children's health and treatment, she has failed to exhibit any consistent judgment, independent of F and thus cannot be relied upon to protect the children from F's pursuit of unsuitable medical treatment, drug administration or diet. The local authority relies upon M's behaviour in November/December 2015 in the context of the parenting assessment."
We hereby certify that this judgment has been certified by His Honour Judge Simon Wood.
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